NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Armin, Julie S; Williamson, Heather J; Begay, Andria; Etcitty, Jennifer; Attakai, Agnes; Russell, Kim; Baldwin, Julie A Adapting a Cancer Screening Education Program for Native American Women with Disabilities Journal Article Int J Environ Res Public Health, 19 (15), 2022. @article{Armin2022, title = {Adapting a Cancer Screening Education Program for Native American Women with Disabilities}, author = {Julie S. Armin and Heather J. Williamson and Andria Begay and Jennifer Etcitty and Agnes Attakai and Kim Russell and Julie A. Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368495/}, doi = {10.3390/ijerph19159280}, year = {2022}, date = {2022-07-29}, journal = {Int J Environ Res Public Health}, volume = {19}, number = {15}, abstract = {Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD. |
Samtani, Grace; Bassford, Tamsen L; Williamson, Heather J; Armin, Julie S Intellectual and Developmental Disabilities, 59 (2), 2021. @article{Samtani2021, title = {Are Researchers Addressing Cancer Treatment and Survivorship Among People With Intellectual and Developmental Disabilities in the U.S.? A Scoping Review}, author = {Grace Samtani and Tamsen L. Bassford and Heather J. Williamson and Julie S. Armin}, url = {https://doi.org/10.1352/1934-9556-59.2.141}, doi = {10.1352/1934-9556-59.2.141}, year = {2021}, date = {2021-04-01}, journal = {Intellectual and Developmental Disabilities}, volume = {59}, number = {2}, abstract = {People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care through additional research with PWIDD.}, keywords = {}, pubstate = {published}, tppubtype = {article} } People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care through additional research with PWIDD. |
Davis, Jenna L; McGinnis, Kara E; Walsh, Margaret L; Williams, Coni; Sneed, Kevin B; Baldwin, Julie A; Green, Lee B An Innovative Approach for Community Engagement: Using an Audience Response System Journal Article Journal of Health Disparities Research and Practice, 5 (2), pp. 1, 2017. @article{Davis2017, title = {An Innovative Approach for Community Engagement: Using an Audience Response System}, author = {Jenna L Davis and Kara E McGinnis and Margaret L Walsh and Coni Williams and Kevin B Sneed and Julie A Baldwin and Lee B Green}, url = {https://www.ncbi.nlm.nih.gov/pubmed/23302776}, year = {2017}, date = {2017-01-01}, journal = {Journal of Health Disparities Research and Practice}, volume = {5}, number = {2}, pages = {1}, abstract = {Community-based participatory research methods allow for community engagement in the effort to reduce cancer health disparities. Community engagement involves health professionals becoming a part of the community in order to build trust, learn from the community and empower them to reduce disparities through their own initiatives and ideas. Audience Response Systems (ARS) are an innovative and engaging way to involve the community and obtain data for research purposes using keypads to report results via power point. The use of ARS within communities is very limited and serves to widen the disparity gap by not delivering new advances in medical knowledge and technology among all population groups. ARS was implemented at a community town hall event sponsored by a National Institute on Minority Health and Health Disparities Exploratory Center of Excellence, the Center for Equal Health. Participants appreciated being able to see how everyone else answered and felt included in the research process. ARS is beneficial because the community can answer truthfully and provides instant research results. Additionally, researchers can collect large amounts of data quickly, in a non-threatening way while tracking individual responses anonymously. Audience Response Systems proved to be an effective tool for successfully accomplishing community-based participatory research.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Community-based participatory research methods allow for community engagement in the effort to reduce cancer health disparities. Community engagement involves health professionals becoming a part of the community in order to build trust, learn from the community and empower them to reduce disparities through their own initiatives and ideas. Audience Response Systems (ARS) are an innovative and engaging way to involve the community and obtain data for research purposes using keypads to report results via power point. The use of ARS within communities is very limited and serves to widen the disparity gap by not delivering new advances in medical knowledge and technology among all population groups. ARS was implemented at a community town hall event sponsored by a National Institute on Minority Health and Health Disparities Exploratory Center of Excellence, the Center for Equal Health. Participants appreciated being able to see how everyone else answered and felt included in the research process. ARS is beneficial because the community can answer truthfully and provides instant research results. Additionally, researchers can collect large amounts of data quickly, in a non-threatening way while tracking individual responses anonymously. Audience Response Systems proved to be an effective tool for successfully accomplishing community-based participatory research. |
2022 |
Armin, Julie S; Williamson, Heather J; Begay, Andria; Etcitty, Jennifer; Attakai, Agnes; Russell, Kim; Baldwin, Julie A Adapting a Cancer Screening Education Program for Native American Women with Disabilities Journal Article Int J Environ Res Public Health, 19 (15), 2022. @article{Armin2022, title = {Adapting a Cancer Screening Education Program for Native American Women with Disabilities}, author = {Julie S. Armin and Heather J. Williamson and Andria Begay and Jennifer Etcitty and Agnes Attakai and Kim Russell and Julie A. Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368495/}, doi = {10.3390/ijerph19159280}, year = {2022}, date = {2022-07-29}, journal = {Int J Environ Res Public Health}, volume = {19}, number = {15}, abstract = {Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD. |
2021 |
Samtani, Grace; Bassford, Tamsen L; Williamson, Heather J; Armin, Julie S Intellectual and Developmental Disabilities, 59 (2), 2021. @article{Samtani2021, title = {Are Researchers Addressing Cancer Treatment and Survivorship Among People With Intellectual and Developmental Disabilities in the U.S.? A Scoping Review}, author = {Grace Samtani and Tamsen L. Bassford and Heather J. Williamson and Julie S. Armin}, url = {https://doi.org/10.1352/1934-9556-59.2.141}, doi = {10.1352/1934-9556-59.2.141}, year = {2021}, date = {2021-04-01}, journal = {Intellectual and Developmental Disabilities}, volume = {59}, number = {2}, abstract = {People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care through additional research with PWIDD.}, keywords = {}, pubstate = {published}, tppubtype = {article} } People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care through additional research with PWIDD. |
2017 |
Davis, Jenna L; McGinnis, Kara E; Walsh, Margaret L; Williams, Coni; Sneed, Kevin B; Baldwin, Julie A; Green, Lee B An Innovative Approach for Community Engagement: Using an Audience Response System Journal Article Journal of Health Disparities Research and Practice, 5 (2), pp. 1, 2017. @article{Davis2017, title = {An Innovative Approach for Community Engagement: Using an Audience Response System}, author = {Jenna L Davis and Kara E McGinnis and Margaret L Walsh and Coni Williams and Kevin B Sneed and Julie A Baldwin and Lee B Green}, url = {https://www.ncbi.nlm.nih.gov/pubmed/23302776}, year = {2017}, date = {2017-01-01}, journal = {Journal of Health Disparities Research and Practice}, volume = {5}, number = {2}, pages = {1}, abstract = {Community-based participatory research methods allow for community engagement in the effort to reduce cancer health disparities. Community engagement involves health professionals becoming a part of the community in order to build trust, learn from the community and empower them to reduce disparities through their own initiatives and ideas. Audience Response Systems (ARS) are an innovative and engaging way to involve the community and obtain data for research purposes using keypads to report results via power point. The use of ARS within communities is very limited and serves to widen the disparity gap by not delivering new advances in medical knowledge and technology among all population groups. ARS was implemented at a community town hall event sponsored by a National Institute on Minority Health and Health Disparities Exploratory Center of Excellence, the Center for Equal Health. Participants appreciated being able to see how everyone else answered and felt included in the research process. ARS is beneficial because the community can answer truthfully and provides instant research results. Additionally, researchers can collect large amounts of data quickly, in a non-threatening way while tracking individual responses anonymously. Audience Response Systems proved to be an effective tool for successfully accomplishing community-based participatory research.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Community-based participatory research methods allow for community engagement in the effort to reduce cancer health disparities. Community engagement involves health professionals becoming a part of the community in order to build trust, learn from the community and empower them to reduce disparities through their own initiatives and ideas. Audience Response Systems (ARS) are an innovative and engaging way to involve the community and obtain data for research purposes using keypads to report results via power point. The use of ARS within communities is very limited and serves to widen the disparity gap by not delivering new advances in medical knowledge and technology among all population groups. ARS was implemented at a community town hall event sponsored by a National Institute on Minority Health and Health Disparities Exploratory Center of Excellence, the Center for Equal Health. Participants appreciated being able to see how everyone else answered and felt included in the research process. ARS is beneficial because the community can answer truthfully and provides instant research results. Additionally, researchers can collect large amounts of data quickly, in a non-threatening way while tracking individual responses anonymously. Audience Response Systems proved to be an effective tool for successfully accomplishing community-based participatory research. |