NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
Please type in a key word or author LAST name to search
Armin, Julie S; Williamson, Heather J; Begay, Andria; Etcitty, Jennifer; Attakai, Agnes; Russell, Kim; Baldwin, Julie A Adapting a Cancer Screening Education Program for Native American Women with Disabilities Journal Article Int J Environ Res Public Health, 19 (15), 2022. @article{Armin2022, title = {Adapting a Cancer Screening Education Program for Native American Women with Disabilities}, author = {Julie S. Armin and Heather J. Williamson and Andria Begay and Jennifer Etcitty and Agnes Attakai and Kim Russell and Julie A. Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368495/}, doi = {10.3390/ijerph19159280}, year = {2022}, date = {2022-07-29}, journal = {Int J Environ Res Public Health}, volume = {19}, number = {15}, abstract = {Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD. |
Armin, Julie S; Rothers, Janet; Baldwin, Julie A Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities Journal Article 2020. @article{Armin2020, title = {Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities}, author = {Julie S. Armin and Janet Rothers and Julie A Baldwin}, doi = {10.1158/1538-7755.DISP20-PO-026}, year = {2020}, date = {2020-12-01}, organization = {AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; October 2-4, 2020}, abstract = {This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026}, keywords = {}, pubstate = {published}, tppubtype = {article} } This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026 |
Sanderson, Priscilla R; Teufel-Shone, Nicolette; Baldwin, Julie A; Sandoval, Nellie; Robinson, Frances Breast cancer education for Navajo women: a pilot study evaluating a culturally relevant video Journal Article Journal of Cancer Education, 25 (2), pp. 217-223, 2010. @article{Sanderson2010, title = {Breast cancer education for Navajo women: a pilot study evaluating a culturally relevant video}, author = {Priscilla R Sanderson and Nicolette Teufel-Shone and Julie A Baldwin and Nellie Sandoval and Frances Robinson}, url = {https://www.ncbi.nlm.nih.gov/pubmed/20111913}, doi = {10.1007/s13187-009-0036-7}, year = {2010}, date = {2010-06-01}, journal = {Journal of Cancer Education}, volume = {25}, number = {2}, pages = {217-223}, abstract = {This pilot study evaluated a culturally specific video designed to teach Navajo women about breast cancer treatment options. Fourteen Navajo women diagnosed with breast cancer and 26 healthcare providers participated in a mixed-method evaluation that documented their perceptions immediately and 6 months after viewing the video. After initial viewing, women reported reduced anxiety about treatment and interest in support groups. Six months later, women said the video prompted them to seek more information from printed sources and their provider. Younger Navajo women who were 44 to 51 years old were more likely to attend support groups than women who were 55-67 years. Providers corroborated the positive effects of the video. The providers believed the video encouraged patients to seek information about breast cancer and to ask questions about treatment plans and side effects. A culturally relevant video for Navajo women can be an effective teaching tool and can enhance patient-provider communication.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This pilot study evaluated a culturally specific video designed to teach Navajo women about breast cancer treatment options. Fourteen Navajo women diagnosed with breast cancer and 26 healthcare providers participated in a mixed-method evaluation that documented their perceptions immediately and 6 months after viewing the video. After initial viewing, women reported reduced anxiety about treatment and interest in support groups. Six months later, women said the video prompted them to seek more information from printed sources and their provider. Younger Navajo women who were 44 to 51 years old were more likely to attend support groups than women who were 55-67 years. Providers corroborated the positive effects of the video. The providers believed the video encouraged patients to seek information about breast cancer and to ask questions about treatment plans and side effects. A culturally relevant video for Navajo women can be an effective teaching tool and can enhance patient-provider communication. |
2022 |
Armin, Julie S; Williamson, Heather J; Begay, Andria; Etcitty, Jennifer; Attakai, Agnes; Russell, Kim; Baldwin, Julie A Adapting a Cancer Screening Education Program for Native American Women with Disabilities Journal Article Int J Environ Res Public Health, 19 (15), 2022. @article{Armin2022, title = {Adapting a Cancer Screening Education Program for Native American Women with Disabilities}, author = {Julie S. Armin and Heather J. Williamson and Andria Begay and Jennifer Etcitty and Agnes Attakai and Kim Russell and Julie A. Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9368495/}, doi = {10.3390/ijerph19159280}, year = {2022}, date = {2022-07-29}, journal = {Int J Environ Res Public Health}, volume = {19}, number = {15}, abstract = {Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, “What are the influences on breast and cervical cancer screening for Native American women with IDD?” with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD. |
2020 |
Armin, Julie S; Rothers, Janet; Baldwin, Julie A Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities Journal Article 2020. @article{Armin2020, title = {Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities}, author = {Julie S. Armin and Janet Rothers and Julie A Baldwin}, doi = {10.1158/1538-7755.DISP20-PO-026}, year = {2020}, date = {2020-12-01}, organization = {AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; October 2-4, 2020}, abstract = {This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026}, keywords = {}, pubstate = {published}, tppubtype = {article} } This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026 |
2010 |
Sanderson, Priscilla R; Teufel-Shone, Nicolette; Baldwin, Julie A; Sandoval, Nellie; Robinson, Frances Breast cancer education for Navajo women: a pilot study evaluating a culturally relevant video Journal Article Journal of Cancer Education, 25 (2), pp. 217-223, 2010. @article{Sanderson2010, title = {Breast cancer education for Navajo women: a pilot study evaluating a culturally relevant video}, author = {Priscilla R Sanderson and Nicolette Teufel-Shone and Julie A Baldwin and Nellie Sandoval and Frances Robinson}, url = {https://www.ncbi.nlm.nih.gov/pubmed/20111913}, doi = {10.1007/s13187-009-0036-7}, year = {2010}, date = {2010-06-01}, journal = {Journal of Cancer Education}, volume = {25}, number = {2}, pages = {217-223}, abstract = {This pilot study evaluated a culturally specific video designed to teach Navajo women about breast cancer treatment options. Fourteen Navajo women diagnosed with breast cancer and 26 healthcare providers participated in a mixed-method evaluation that documented their perceptions immediately and 6 months after viewing the video. After initial viewing, women reported reduced anxiety about treatment and interest in support groups. Six months later, women said the video prompted them to seek more information from printed sources and their provider. Younger Navajo women who were 44 to 51 years old were more likely to attend support groups than women who were 55-67 years. Providers corroborated the positive effects of the video. The providers believed the video encouraged patients to seek information about breast cancer and to ask questions about treatment plans and side effects. A culturally relevant video for Navajo women can be an effective teaching tool and can enhance patient-provider communication.}, keywords = {}, pubstate = {published}, tppubtype = {article} } This pilot study evaluated a culturally specific video designed to teach Navajo women about breast cancer treatment options. Fourteen Navajo women diagnosed with breast cancer and 26 healthcare providers participated in a mixed-method evaluation that documented their perceptions immediately and 6 months after viewing the video. After initial viewing, women reported reduced anxiety about treatment and interest in support groups. Six months later, women said the video prompted them to seek more information from printed sources and their provider. Younger Navajo women who were 44 to 51 years old were more likely to attend support groups than women who were 55-67 years. Providers corroborated the positive effects of the video. The providers believed the video encouraged patients to seek information about breast cancer and to ask questions about treatment plans and side effects. A culturally relevant video for Navajo women can be an effective teaching tool and can enhance patient-provider communication. |