NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Dunn, Dorothy J; Schwartz, Anna; Teufel-Shone, Nicolette I; Meyer, Linda A Visions: The Journal of Rogerian Scholar Science, 25 (2), pp. 16, 2019. @article{Dunn2019, title = {Educational Program to Build Resilience for Caregivers, Family Members, and Community Members in the Care of Elder Native Americans who are Experiencing Memory Loss and Cognitive Decline}, author = {Dorothy J Dunn and Anna Schwartz and Nicolette I. Teufel-Shone and Linda A. Meyer }, url = {https://www.thefreelibrary.com/Educational+Program+to+Promote+Resilience+for+Caregivers%2C+Family...-a0583693719}, year = {2019}, date = {2019-03-01}, journal = {Visions: The Journal of Rogerian Scholar Science}, volume = {25}, number = {2}, pages = {16}, abstract = {Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced. |
Williamson, Heather J; Perkins, Elizabeth A; Massey, Oliver T; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Levins, Bruce L Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports Journal Article Journal of Policy and Practice in Intellectual Disabilities, 15 (3), pp. 214-225, 2018. @article{Williamson2018, title = {Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports}, author = {Heather J Williamson and Elizabeth A Perkins and Oliver T Massey and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Bruce L Levins}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12258}, year = {2018}, date = {2018-08-24}, journal = {Journal of Policy and Practice in Intellectual Disabilities}, volume = {15}, number = {3}, pages = {214-225}, abstract = {Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS. |
Williamson, Heather J; Perkins, Elizabeth A; Levin, Bruce L; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Massey, Oliver T Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas Journal Article Intellectual and Developmental Disabilities, 55 (2), pp. 84-96, 2017. @article{Williamson2017b, title = {Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas}, author = {Heather J Williamson and Elizabeth A Perkins and Bruce L Levin and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Oliver T Massey}, url = {http://www.aaiddjournals.org/doi/10.1352/1934-9556-55.2.84}, year = {2017}, date = {2017-04-01}, journal = {Intellectual and Developmental Disabilities}, volume = {55}, number = {2}, pages = {84-96}, abstract = {Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is limited evidence of MLTSS effectiveness. This study's objective was to contribute to the growing MLTSS research literature by describing MLTSS implementation in Kansas for adults with IDD. Thirty-one stakeholders completed in-depth semi-structured interviews, representing state or regional groups, service coordination providers, and family caregivers. Findings identify key aspects of the Centers for Medicare and Medicaid Services' new MLTSS regulations in the design and implementation of MLTSS programs.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is limited evidence of MLTSS effectiveness. This study's objective was to contribute to the growing MLTSS research literature by describing MLTSS implementation in Kansas for adults with IDD. Thirty-one stakeholders completed in-depth semi-structured interviews, representing state or regional groups, service coordination providers, and family caregivers. Findings identify key aspects of the Centers for Medicare and Medicaid Services' new MLTSS regulations in the design and implementation of MLTSS programs. |
2019 |
Dunn, Dorothy J; Schwartz, Anna; Teufel-Shone, Nicolette I; Meyer, Linda A Visions: The Journal of Rogerian Scholar Science, 25 (2), pp. 16, 2019. @article{Dunn2019, title = {Educational Program to Build Resilience for Caregivers, Family Members, and Community Members in the Care of Elder Native Americans who are Experiencing Memory Loss and Cognitive Decline}, author = {Dorothy J Dunn and Anna Schwartz and Nicolette I. Teufel-Shone and Linda A. Meyer }, url = {https://www.thefreelibrary.com/Educational+Program+to+Promote+Resilience+for+Caregivers%2C+Family...-a0583693719}, year = {2019}, date = {2019-03-01}, journal = {Visions: The Journal of Rogerian Scholar Science}, volume = {25}, number = {2}, pages = {16}, abstract = {Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced. |
2018 |
Williamson, Heather J; Perkins, Elizabeth A; Massey, Oliver T; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Levins, Bruce L Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports Journal Article Journal of Policy and Practice in Intellectual Disabilities, 15 (3), pp. 214-225, 2018. @article{Williamson2018, title = {Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports}, author = {Heather J Williamson and Elizabeth A Perkins and Oliver T Massey and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Bruce L Levins}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12258}, year = {2018}, date = {2018-08-24}, journal = {Journal of Policy and Practice in Intellectual Disabilities}, volume = {15}, number = {3}, pages = {214-225}, abstract = {Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS. |
2017 |
Williamson, Heather J; Perkins, Elizabeth A; Levin, Bruce L; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Massey, Oliver T Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas Journal Article Intellectual and Developmental Disabilities, 55 (2), pp. 84-96, 2017. @article{Williamson2017b, title = {Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas}, author = {Heather J Williamson and Elizabeth A Perkins and Bruce L Levin and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Oliver T Massey}, url = {http://www.aaiddjournals.org/doi/10.1352/1934-9556-55.2.84}, year = {2017}, date = {2017-04-01}, journal = {Intellectual and Developmental Disabilities}, volume = {55}, number = {2}, pages = {84-96}, abstract = {Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is limited evidence of MLTSS effectiveness. This study's objective was to contribute to the growing MLTSS research literature by describing MLTSS implementation in Kansas for adults with IDD. Thirty-one stakeholders completed in-depth semi-structured interviews, representing state or regional groups, service coordination providers, and family caregivers. Findings identify key aspects of the Centers for Medicare and Medicaid Services' new MLTSS regulations in the design and implementation of MLTSS programs.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is limited evidence of MLTSS effectiveness. This study's objective was to contribute to the growing MLTSS research literature by describing MLTSS implementation in Kansas for adults with IDD. Thirty-one stakeholders completed in-depth semi-structured interviews, representing state or regional groups, service coordination providers, and family caregivers. Findings identify key aspects of the Centers for Medicare and Medicaid Services' new MLTSS regulations in the design and implementation of MLTSS programs. |