NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Karmarkar, Amol M; Roy, Indrakshi; Lane, Taylor; Shaibi, Stefany; Baldwin, Julie A; Kumar, Amit Home health services for minorities in urban and rural areas with Alzheimer's and related dementia Journal Article Home Health Care Service Quarterly, pp. 1-17, 2023. @article{Karmarkar2023, title = {Home health services for minorities in urban and rural areas with Alzheimer's and related dementia}, author = {Amol M Karmarkar and Indrakshi Roy and Taylor Lane and Stefany Shaibi and Julie A Baldwin and Amit Kumar}, url = {https://www.tandfonline.com/doi/abs/10.1080/01621424.2023.2206368?journalCode=whhc20}, doi = {10.1080/01621424.2023.2206368}, year = {2023}, date = {2023-04-27}, journal = {Home Health Care Service Quarterly}, pages = {1-17}, abstract = {Timely access and continuum of care in older adults with Alzheimer's Disease and Related Dementia (ADRD) is critical. This is a retrospective study on Medicare fee-for-service beneficiaries with ADRD diagnosis discharged to home with home health care following an episode of acute hospitalization. Our sample included 262,525 patients. White patients in rural areas have significantly higher odds of delay (odds ratio [OR], 1.03; 95% CI, 1.01-1.06). Black patients in urban areas (OR, 1.15; 95% CI, 1.12-1.19) and Hispanic patients in urban areas also were more likely to have a delay (OR, 1.07; 95% CI, 1.03-1.11). Black and Hispanic patients residing in urban areas had a higher likelihood of delay in home healthcare initiation following hospitalization compared to Whites residing in urban areas.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Timely access and continuum of care in older adults with Alzheimer's Disease and Related Dementia (ADRD) is critical. This is a retrospective study on Medicare fee-for-service beneficiaries with ADRD diagnosis discharged to home with home health care following an episode of acute hospitalization. Our sample included 262,525 patients. White patients in rural areas have significantly higher odds of delay (odds ratio [OR], 1.03; 95% CI, 1.01-1.06). Black patients in urban areas (OR, 1.15; 95% CI, 1.12-1.19) and Hispanic patients in urban areas also were more likely to have a delay (OR, 1.07; 95% CI, 1.03-1.11). Black and Hispanic patients residing in urban areas had a higher likelihood of delay in home healthcare initiation following hospitalization compared to Whites residing in urban areas. |
Armin, Julie S; Williamson, Heather J; Rothers, Janet; Lee, Michele S; Baldwin, Julie A JMIR Research Protocols, 12 (e37801), 2023. @article{Armin2023, title = {An adapted cancer screening education program for Native American women with intellectual and developmental disabilities and their caregivers: Protocol for feasibility and acceptability testing}, author = {Julie S Armin and Heather J Williamson and Janet Rothers and Michele S Lee and Julie A Baldwin }, url = {https://www.researchprotocols.org/2023/1/e37801}, doi = {10.2196/37801}, year = {2023}, date = {2023-02-13}, journal = {JMIR Research Protocols}, volume = {12}, number = {e37801}, abstract = {Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC. |
Camplain, Carolyn; Kirby, Christine; Barger, Steven D; Thomas, Heather; Tutt, Marissa; Elwell, Kristan; Young, Sara; Morrison, Gerlinda; Hyeoma, Stephanie; Baldwin, Julie A Community-based Participatory Research Approaches to Combat Oral Health Inequities Among American Indian and Alaska Native Populations Journal Article Journal of Public Health Dentistry, 82 (1), pp. 79-82, 2022. @article{Camplain2022d, title = {Community-based Participatory Research Approaches to Combat Oral Health Inequities Among American Indian and Alaska Native Populations}, author = {Carolyn Camplain and Christine Kirby and Steven D Barger and Heather Thomas and Marissa Tutt and Kristan Elwell and Sara Young and Gerlinda Morrison and Stephanie Hyeoma and Julie A Baldwin}, url = {https://onlinelibrary.wiley.com/doi/10.1111/jphd.12525}, doi = {10.1111/jphd.12525}, year = {2022}, date = {2022-06-21}, journal = {Journal of Public Health Dentistry}, volume = {82}, number = {1}, pages = {79-82}, abstract = {American Indian and Alaska Native (AI/AN) communities have experienced a history of systemic racism and still face significant oral health disparities. These disparities extend to the youngest community members in the form of early childhood caries (ECC). Although behavior and biology contribute to ECC, the conditions where people live, grow, and work, and the systems and political and economic forces that shape individual health outcomes, are thought to greatly impact ECC among AI/AN populations. To address ECC in AI/AN communities, we used a community based participatory approach that incorporated social determinants of health. We found that implementing culturally-tailored, culturally-centered, and AI/AN-created materials for ECC interventions is viewed favorably by community members and tribal leaders. Because of the complexity of ECC in AI/AN communities we adopted a bundled approach of best practices to reduce ECC including: (1) incorporating locally, contextually, and culturally relevant strategies to present recommended ECC prevention approaches; (2) employing AI/AN community members as educators; (3) utilizing motivational interviewing with expectant mothers; and (4) providing fluoride varnish. Our work underscores the importance of developing trusting partnerships with each other and with our communities, drawing upon the insights of community advisory board members, and eliciting formative assessment data from tribal members to gain a more holistic understanding of our participants' lived experience to design relevant intervention materials. Incorporating local knowledge and situating Western oral health prevention approaches within culturally aligned frameworks can enhance partnerships and create sustainable materials for community work.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian and Alaska Native (AI/AN) communities have experienced a history of systemic racism and still face significant oral health disparities. These disparities extend to the youngest community members in the form of early childhood caries (ECC). Although behavior and biology contribute to ECC, the conditions where people live, grow, and work, and the systems and political and economic forces that shape individual health outcomes, are thought to greatly impact ECC among AI/AN populations. To address ECC in AI/AN communities, we used a community based participatory approach that incorporated social determinants of health. We found that implementing culturally-tailored, culturally-centered, and AI/AN-created materials for ECC interventions is viewed favorably by community members and tribal leaders. Because of the complexity of ECC in AI/AN communities we adopted a bundled approach of best practices to reduce ECC including: (1) incorporating locally, contextually, and culturally relevant strategies to present recommended ECC prevention approaches; (2) employing AI/AN community members as educators; (3) utilizing motivational interviewing with expectant mothers; and (4) providing fluoride varnish. Our work underscores the importance of developing trusting partnerships with each other and with our communities, drawing upon the insights of community advisory board members, and eliciting formative assessment data from tribal members to gain a more holistic understanding of our participants' lived experience to design relevant intervention materials. Incorporating local knowledge and situating Western oral health prevention approaches within culturally aligned frameworks can enhance partnerships and create sustainable materials for community work. |
Camplain, Ricky; Lininger, Monica; Baldwin, Julie A; Trotter, Robert T Validity of the International Physical Activity Questionnaire among jail inmates. Medicine and Science in Sports and Exercise Journal Article Forthcoming Clearinghouse, Forthcoming. @article{Camplain2022, title = {Validity of the International Physical Activity Questionnaire among jail inmates. Medicine and Science in Sports and Exercise}, author = {Ricky Camplain and Monica Lininger and Julie A Baldwin and Robert T Trotter}, year = {2022}, date = {2022-02-01}, journal = {Clearinghouse}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } |
Camplain, Ricky; Chief, Carmenlita; Camplain, Carolyn; Teufel-shone, Nicolette; Baldwin, Julie A American Indian/Alaska Native Involvement in the US Justice System: Trends, Health Impacts and Health Disparities Journal Article Forthcoming Indigenous Justice Series: Indigenous Peoples, Health, Resilience and Justice, Forthcoming. @article{Camplain2022b, title = {American Indian/Alaska Native Involvement in the US Justice System: Trends, Health Impacts and Health Disparities}, author = {Ricky Camplain and Carmenlita Chief and Carolyn Camplain and Nicolette Teufel-shone and Julie A Baldwin}, year = {2022}, date = {2022-02-01}, journal = {Indigenous Justice Series: Indigenous Peoples, Health, Resilience and Justice}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } |
Cox, Genevieve R; FireMoon, Paula; Anastario, Michael P; Ricker, Adriann; Thunder, Ramey Escarcega-Growing; Baldwin, Julie A; Rink, Elizabeth Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities Journal Article AlterNative: An International Journal of Indigenous Peoples, 2021. @article{Cox2021, title = {Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities}, author = {Genevieve R Cox and Paula FireMoon and Michael P Anastario and Adriann Ricker and Ramey Escarcega-Growing Thunder and Julie A Baldwin and Elizabeth Rink}, url = {https://doi.org/10.1177/11771801211042019}, doi = {10.1177/11771801211042019}, year = {2021}, date = {2021-08-26}, journal = {AlterNative: An International Journal of Indigenous Peoples}, abstract = {Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities. |
Ransdell, Lynda B; Wayment, Heidi A; Schwartz, Anna L; Lane, Taylor S; Baldwin, Julie A Precision mentoring (PM): a proposed framework for increasing research capacity in health-related disciplines Journal Article Medical Education Online, 26 (1), 2021. @article{Ransdell2021c, title = {Precision mentoring (PM): a proposed framework for increasing research capacity in health-related disciplines}, author = {Lynda B Ransdell and Heidi A Wayment and Anna L Schwartz and Taylor S Lane and Julie A Baldwin}, url = {https://www.tandfonline.com/doi/full/10.1080/10872981.2021.1964933}, doi = {10.1080/10872981.2021.1964933}, year = {2021}, date = {2021-08-24}, journal = {Medical Education Online}, volume = {26}, number = {1}, abstract = {Research productivity is expected of academic faculty, and mentoring can facilitate it. This paper presents a framework for using mentoring to develop researchers in health disciplines. We utilized recent literature reviews, and experience developing researchers at an emerging research institution within the Research Centers for Minority Institutions (RCMI) program, to propose a precision mentoring (PM) framework for research development. Although we cannot precisely determine how much improvement was due to the PM framework, over the 4 years of our program, the quality and quantity of pilot project proposals (PPP) has increased, the number of external proposals submitted and funded by PPP investigators has increased, and the number of faculty participating in our program has increased. Surveys distributed to our 2021–22 PPP applicants who did not receive funding (n = 5/6 or 86.7%) revealed that new investigators most frequently sought mentoring related to career guidance (e.g., institutional culture, pre-tenure survival strategies), grant proposal basics (e.g., working with funding agencies, reviewing aims, balancing priorities, and enhancing scientific rigor), and identifying funding opportunities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Research productivity is expected of academic faculty, and mentoring can facilitate it. This paper presents a framework for using mentoring to develop researchers in health disciplines. We utilized recent literature reviews, and experience developing researchers at an emerging research institution within the Research Centers for Minority Institutions (RCMI) program, to propose a precision mentoring (PM) framework for research development. Although we cannot precisely determine how much improvement was due to the PM framework, over the 4 years of our program, the quality and quantity of pilot project proposals (PPP) has increased, the number of external proposals submitted and funded by PPP investigators has increased, and the number of faculty participating in our program has increased. Surveys distributed to our 2021–22 PPP applicants who did not receive funding (n = 5/6 or 86.7%) revealed that new investigators most frequently sought mentoring related to career guidance (e.g., institutional culture, pre-tenure survival strategies), grant proposal basics (e.g., working with funding agencies, reviewing aims, balancing priorities, and enhancing scientific rigor), and identifying funding opportunities. |
Trotter, Robert; Baldwin, Julie A; Buck, Charles Loren; Remiker, Mark; Aguirre, Amanda; Milner, Trudie; Torres, Emma; von Hippel, Frank Arthur JMIR Research Protocol, 10 (8), 2021. @article{Trotter2021, title = {Health Impacts of Perchlorate and Pesticide Exposure: Protocol for Community-Engaged Research to Evaluate Environmental Toxicants in a US Border Community}, author = {Robert Trotter and Julie A Baldwin and Charles Loren Buck and Mark Remiker and Amanda Aguirre and Trudie Milner and Emma Torres and Frank Arthur von Hippel}, url = {https://pubmed.ncbi.nlm.nih.gov/34383679/}, doi = {10.2196/15864}, year = {2021}, date = {2021-08-11}, journal = {JMIR Research Protocol}, volume = {10}, number = {8}, abstract = {The Northern Arizona University (NAU) Center for Health Equity Research (CHER) is conducting community-engaged health research involving "environmental scans" in Yuma County in collaboration with community health stakeholders, including the Yuma Regional Medical Center (YRMC), Regional Center for Border Health, Inc. (RCBH), Campesinos Sin Fronteras (CSF), Yuma County Public Health District, and government agencies and nongovernmental organizations (NGOs) working on border health issues. The purpose of these efforts is to address community-generated environmental health hazards identified through ongoing coalitions among NAU, and local health care and research institutions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Northern Arizona University (NAU) Center for Health Equity Research (CHER) is conducting community-engaged health research involving "environmental scans" in Yuma County in collaboration with community health stakeholders, including the Yuma Regional Medical Center (YRMC), Regional Center for Border Health, Inc. (RCBH), Campesinos Sin Fronteras (CSF), Yuma County Public Health District, and government agencies and nongovernmental organizations (NGOs) working on border health issues. The purpose of these efforts is to address community-generated environmental health hazards identified through ongoing coalitions among NAU, and local health care and research institutions. |
Kumar, Amit; Roy, Indrakshi; Karmarkar, Amol M; Erler, Kimberly S; Rudolph, James L; Baldwin, Julie A Shifting US Patterns of COVID-19 Mortality by Race and Ethnicity From June-December 2020 Journal Article Journal of American Medical Direct Association, 22 (5), pp. 966-970, 2021. @article{Kumar2021b, title = {Shifting US Patterns of COVID-19 Mortality by Race and Ethnicity From June-December 2020}, author = {Amit Kumar and Indrakshi Roy and Amol M Karmarkar and Kimberly S Erler and James L Rudolph and Julie A Baldwin}, url = {https://www.sciencedirect.com/science/article/abs/pii/S1525861021002553?via%3Dihub}, doi = {10.1016/j.jamda.2021.02.034}, year = {2021}, date = {2021-05-05}, journal = {Journal of American Medical Direct Association}, volume = {22}, number = {5}, pages = {966-970}, abstract = {The COVID-19 pandemic has disproportionately affected racial and ethnic minorities in the United States and has been devastating for residents of nursing homes (NHs). However, evidence on racial and ethnic disparities in COVID-19-related mortality rates within NHs and how that has changed over time has been limited. This study examines the impact of a high proportion of minority residents in NHs on COVID-19-related mortality rates over a 30-week period.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The COVID-19 pandemic has disproportionately affected racial and ethnic minorities in the United States and has been devastating for residents of nursing homes (NHs). However, evidence on racial and ethnic disparities in COVID-19-related mortality rates within NHs and how that has changed over time has been limited. This study examines the impact of a high proportion of minority residents in NHs on COVID-19-related mortality rates over a 30-week period. |
Pro, George; Schumacher, Krista; Hubach, Randolph; Zaller, Nickolas; Giano, Zachary; Camplain, Ricky; Camplain, Carolyn; Haberstroh, Shane; Baldwin, Julie A; Wheeler, Denna L US trends in mask wearing during the COVID-19 pandemic depend on rurality Journal Article Rural and Remote Health, 21 , 2021. @article{Pro2021, title = {US trends in mask wearing during the COVID-19 pandemic depend on rurality}, author = {George Pro and Krista Schumacher and Randolph Hubach and Nickolas Zaller and Zachary Giano and Ricky Camplain and Carolyn Camplain and Shane Haberstroh and Julie A Baldwin and Denna L Wheeler}, url = {https://doi.org/10.22605/RRH6596}, doi = {10.22605/RRH6596}, year = {2021}, date = {2021-05-04}, journal = {Rural and Remote Health}, volume = {21}, abstract = {Face masks are widely recommended as a COVID-19 prevention strategy. State mask mandates have generally reduced the spread of the disease, but decisions to wear a mask depend on many factors. Recent increases in case rates in rural areas following initial outbreaks in more densely populated areas highlight the need to focus on prevention and education. Messaging about disease risk has faced challenges in rural areas in the past. While surges in cases within some communities are likely an impetus for behavior change, rising case rates likely explain only part of mask-wearing decisions. The current study examined the relationship between county-level indicators of rurality and mask wearing in the USA. National data from the New York Times’ COVID-19 cross-sectional mask survey was used to identify the percentage of a county’s residents who reported always/frequently wearing a mask (2–14 July 2020). The New York Times’ COVID-19 data repository was used to calculate county-level daily case rates for the 2 weeks preceding the mask survey (15 June – 1 July 2020), and defined county rurality using the Index of Relative Rurality (n=3103 counties). Multivariate linear regression was used to predict mask wearing across levels of rurality. The model was adjusted for daily case rates and other relevant county-level confounders, including county-level indicators of age, race/ethnicity, gender, political partisanship, income inequality, and whether each county was subject to a statewide mask mandate. Large clusters of counties with high rurality and low mask wearing were observed in the Midwest, upper Midwest, and mountainous West. Holding daily case rates and other county characteristics constant, the predicted probability of wearing a mask decreased significantly as counties became more rural (β=–0.560; p<0.0001). Conclusion: Upticks in COVID-19 cases and deaths in rural areas are expected to continue, and localized outbreaks will likely occur indefinitely. The present findings highlight the need to better understand the mechanisms underlying perceptions of COVID-19 risk in rural areas. Dissemination of scientifically correct and consistent information is critical during national emergencies.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Face masks are widely recommended as a COVID-19 prevention strategy. State mask mandates have generally reduced the spread of the disease, but decisions to wear a mask depend on many factors. Recent increases in case rates in rural areas following initial outbreaks in more densely populated areas highlight the need to focus on prevention and education. Messaging about disease risk has faced challenges in rural areas in the past. While surges in cases within some communities are likely an impetus for behavior change, rising case rates likely explain only part of mask-wearing decisions. The current study examined the relationship between county-level indicators of rurality and mask wearing in the USA. National data from the New York Times’ COVID-19 cross-sectional mask survey was used to identify the percentage of a county’s residents who reported always/frequently wearing a mask (2–14 July 2020). The New York Times’ COVID-19 data repository was used to calculate county-level daily case rates for the 2 weeks preceding the mask survey (15 June – 1 July 2020), and defined county rurality using the Index of Relative Rurality (n=3103 counties). Multivariate linear regression was used to predict mask wearing across levels of rurality. The model was adjusted for daily case rates and other relevant county-level confounders, including county-level indicators of age, race/ethnicity, gender, political partisanship, income inequality, and whether each county was subject to a statewide mask mandate. Large clusters of counties with high rurality and low mask wearing were observed in the Midwest, upper Midwest, and mountainous West. Holding daily case rates and other county characteristics constant, the predicted probability of wearing a mask decreased significantly as counties became more rural (β=–0.560; p<0.0001). Conclusion: Upticks in COVID-19 cases and deaths in rural areas are expected to continue, and localized outbreaks will likely occur indefinitely. The present findings highlight the need to better understand the mechanisms underlying perceptions of COVID-19 risk in rural areas. Dissemination of scientifically correct and consistent information is critical during national emergencies. |
Lockhart, Elizabeth; Turner, DeAnne; Martinez-Tyson, Dinorah; Baldwin, Julie A; Marhefka, Stephanie L Opportunities for and Perceptions of Integrating Community Health Workers Via the Affordable Care Act: Medicaid Health Homes Journal Article Journal of Public Health Management and Practice, 27 (01), pp. 193-200, 2021. @article{Lockhart2021, title = {Opportunities for and Perceptions of Integrating Community Health Workers Via the Affordable Care Act: Medicaid Health Homes}, author = {Elizabeth Lockhart and DeAnne Turner and Dinorah Martinez-Tyson and Julie A Baldwin and Stephanie L Marhefka}, url = {https://journals.lww.com/jphmp/Fulltext/2021/03000/Opportunities_for_and_Perceptions_of_Integrating.14.aspx}, doi = {10.1097/PHH.0000000000001118}, year = {2021}, date = {2021-03-01}, journal = {Journal of Public Health Management and Practice}, volume = {27}, number = {01}, pages = {193-200}, abstract = {The Affordable Care Act created opportunities for innovative, cost-saving measures to improve health care access. Community health workers (CHWs) are frontline public health workers who have a close understanding of the communities they serve. States that expanded Medicaid coverage could also create Medicaid Health Homes (MHHs)-virtual health care networks-to coordinate care for people with chronic conditions. New York was the second state to implement MHHs and gave the option to include CHWs as part of the health care team.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Affordable Care Act created opportunities for innovative, cost-saving measures to improve health care access. Community health workers (CHWs) are frontline public health workers who have a close understanding of the communities they serve. States that expanded Medicaid coverage could also create Medicaid Health Homes (MHHs)-virtual health care networks-to coordinate care for people with chronic conditions. New York was the second state to implement MHHs and gave the option to include CHWs as part of the health care team. |
Giano, Zachary; Camplain, Ricky L; Camplain, Carolyn; Pro, George; Haberstroh, Shane; Baldwin, Julie A; Wheeler, Denna L; Hubach, Randolph D Adverse Childhood Events in American Indian/Alaska Native Populations Journal Article American Journal of Preventive Medicine, 60 (2), pp. 213-221, 2021. @article{Giano2021, title = {Adverse Childhood Events in American Indian/Alaska Native Populations}, author = {Zachary Giano and Ricky L Camplain and Carolyn Camplain and George Pro and Shane Haberstroh and Julie A Baldwin and Denna L Wheeler and Randolph D Hubach}, url = {https://doi.org/10.1016/j.amepre.2020.08.020}, doi = {10.1016/j.amepre.2020.08.020}, year = {2021}, date = {2021-02-01}, journal = {American Journal of Preventive Medicine}, volume = {60}, number = {2}, pages = {213-221}, abstract = {Adverse childhood experiences are linked to deleterious outcomes in adulthood. Certain populations have been shown to be more vulnerable to adversity in childhood than others. Despite these findings, research in this area lacks an empirical investigation that examines adverse childhood experiences among American Indian and Alaska Native populations using large, nationally representative data. As such, the authors have compiled what they believe is the largest empirical investigation of adverse childhood experiences among American Indian and Alaska Native individuals to date.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adverse childhood experiences are linked to deleterious outcomes in adulthood. Certain populations have been shown to be more vulnerable to adversity in childhood than others. Despite these findings, research in this area lacks an empirical investigation that examines adverse childhood experiences among American Indian and Alaska Native populations using large, nationally representative data. As such, the authors have compiled what they believe is the largest empirical investigation of adverse childhood experiences among American Indian and Alaska Native individuals to date. |
McCarthy, Michael J; Sanchez, Angelica; Garcia, Yolanda Evie; Dunn, Dorothy; Williamson, Heather J; Baldwin, Julie A; Hustead, Morgan Lee-Regalado; Bakas, Tamilyn Systematic Review of Interventions for LatinX and American Indian Family Dyads Coping With Chronic Illness Journal Article Innovation in Aging, 4 (1), pp. 98–99, 2020. @article{McCarthy2020, title = {Systematic Review of Interventions for LatinX and American Indian Family Dyads Coping With Chronic Illness}, author = {Michael J McCarthy and Angelica Sanchez and Yolanda Evie Garcia and Dorothy Dunn and Heather J Williamson and Julie A Baldwin and Morgan Lee-Regalado Hustead and Tamilyn Bakas}, url = {https://doi.org/10.1093/geroni/igaa057.325}, doi = {10.1093/geroni/igaa057.325}, year = {2020}, date = {2020-12-16}, journal = {Innovation in Aging}, volume = {4}, number = {1}, pages = {98–99}, abstract = {The United States is experiencing growth in populations from culturally diverse backgrounds. Studies suggest that Latinx and American Indians experience chronic conditions such as cancer, heart disease, and diabetes in greater numbers than whites. Literature also suggests that Latinx and American Indian families play a significant role as informal caregivers for loved ones with chronic illness. However, little information is available about interventions to assist these patient-family caregiver dyads cope. The purpose of this systematic review is to synthesize published studies about psychosocial interventions developed or adapted for Latinx and American Indian care dyads in order to determine: (1) the benefits of these interventions; (2) their distinguishing features or adaptations, and; (3) recommendations for future intervention development. The protocol for this review was registered in advance with the International Prospective Register of Systematic Reviews (PROSPERO). We searched the databases CINAHL, PsycINFO, MEDLINE, and PubMeb using MeSH-derived keywords developed in consultation with a research librarian. Studies were included/excluded based upon pre-specified criteria. Three-hundred thirty-five records were identified, screened by the research team, and tracked according to PRISMA guidelines. After removing duplicates (n=9), studies that did not pertain to the conditions of interest (n=13), and studies that did not meet inclusion criteria (n=305), eight studies remained. Relevant information was abstracted from the final studies and synthesized by the research team. The majority of interventions for these populations are in cancer. Findings about benefits are largely inconclusive. Adaptations include a focus on cultural contexts, as well as culturally-based strengths, caregiving norms, and values.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The United States is experiencing growth in populations from culturally diverse backgrounds. Studies suggest that Latinx and American Indians experience chronic conditions such as cancer, heart disease, and diabetes in greater numbers than whites. Literature also suggests that Latinx and American Indian families play a significant role as informal caregivers for loved ones with chronic illness. However, little information is available about interventions to assist these patient-family caregiver dyads cope. The purpose of this systematic review is to synthesize published studies about psychosocial interventions developed or adapted for Latinx and American Indian care dyads in order to determine: (1) the benefits of these interventions; (2) their distinguishing features or adaptations, and; (3) recommendations for future intervention development. The protocol for this review was registered in advance with the International Prospective Register of Systematic Reviews (PROSPERO). We searched the databases CINAHL, PsycINFO, MEDLINE, and PubMeb using MeSH-derived keywords developed in consultation with a research librarian. Studies were included/excluded based upon pre-specified criteria. Three-hundred thirty-five records were identified, screened by the research team, and tracked according to PRISMA guidelines. After removing duplicates (n=9), studies that did not pertain to the conditions of interest (n=13), and studies that did not meet inclusion criteria (n=305), eight studies remained. Relevant information was abstracted from the final studies and synthesized by the research team. The majority of interventions for these populations are in cancer. Findings about benefits are largely inconclusive. Adaptations include a focus on cultural contexts, as well as culturally-based strengths, caregiving norms, and values. |
Armin, Julie S; Rothers, Janet; Baldwin, Julie A Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities Journal Article 2020. @article{Armin2020, title = {Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities}, author = {Julie S. Armin and Janet Rothers and Julie A Baldwin}, doi = {10.1158/1538-7755.DISP20-PO-026}, year = {2020}, date = {2020-12-01}, organization = {AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; October 2-4, 2020}, abstract = {This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026}, keywords = {}, pubstate = {published}, tppubtype = {article} } This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026 |
Pro, George; Giano, Zach; Camplain, Ricky; Haberstroh, Shane; Camplain, Carly; Wheeler, Denna; Hubach, Randolph D; Baldwin, Julie A Community Mental Health Journal, 57 , pp. 1017–1022, 2020. @article{Pro2020g, title = {The Role of State Medicaid Expansions in Integrating Comprehensive Mental Health Services into Opioid Treatment Programs: Differences Across the Rural/Urban Continuum}, author = {George Pro and Zach Giano and Ricky Camplain and Shane Haberstroh and Carly Camplain and Denna Wheeler and Randolph D Hubach and Julie A Baldwin }, url = {https://doi.org/10.1007/s10597-020-00719-z}, doi = {10.1007/s10597-020-00719-z}, year = {2020}, date = {2020-10-08}, journal = {Community Mental Health Journal}, volume = {57}, pages = {1017–1022}, abstract = {opioid treatment programs (OTPs) do not provide MH services. We measured the association between state level characteristics (Medicaid expansion status and rurality) and MH/OUD services integration. We used a generalized linear model to estimate how the association between integration and Medicaid expansions varied across levels of rurality (National Survey on Substance Abuse Treatment Services; 2018; n = 1507 OTPs). The predicted probability of OTPs offering MH services decreased as rurality increased, and the strength of the negative association was greater in non-expansion states (𝛽=−0.038, SE = 0.005, p < 0.0001) than in expansion states (𝛽=−0.020, SE = 0.003, p < 0.0001). Access to integrated MH services was lowest in rural non-Medicaid expansion states, despite the high risk of opioid misuse and a high need for MAT and MH services in this population.}, keywords = {}, pubstate = {published}, tppubtype = {article} } opioid treatment programs (OTPs) do not provide MH services. We measured the association between state level characteristics (Medicaid expansion status and rurality) and MH/OUD services integration. We used a generalized linear model to estimate how the association between integration and Medicaid expansions varied across levels of rurality (National Survey on Substance Abuse Treatment Services; 2018; n = 1507 OTPs). The predicted probability of OTPs offering MH services decreased as rurality increased, and the strength of the negative association was greater in non-expansion states (𝛽=−0.038, SE = 0.005, p < 0.0001) than in expansion states (𝛽=−0.020, SE = 0.003, p < 0.0001). Access to integrated MH services was lowest in rural non-Medicaid expansion states, despite the high risk of opioid misuse and a high need for MAT and MH services in this population. |
Pro, George; Hubach, Randolph; Wheeler, Denna; Camplain, Ricky; Haberstroh, Shane; Giano, Zach; Camplain, Carolyn; Baldwin, Julie A Differences in US COVID-19 case rates and case fatality rates across the urban-rural continuum Journal Article Rural Remote Health, 20 (3), pp. 6074, 2020. @article{Pro2020h, title = {Differences in US COVID-19 case rates and case fatality rates across the urban-rural continuum}, author = {George Pro and Randolph Hubach and Denna Wheeler and Ricky Camplain and Shane Haberstroh and Zach Giano and Carolyn Camplain and Julie A Baldwin}, url = {https://www.rrh.org.au/journal/article/6074}, doi = {10.22605/RRH6074}, year = {2020}, date = {2020-08-19}, journal = {Rural Remote Health}, volume = {20}, number = {3}, pages = {6074}, abstract = {The majority of COVID-19 public health and media messaging in the USA has focused on major outbreaks in densely populated urban areas, including New York City, New Orleans and Seattle. This attention is indeed warranted, as the number of deaths is an important indicator of outbreak severity and informs public health, medical and government responses. In addition to case rates and the number of deaths, the case fatality rate is another epidemiologic tool used in disease surveillance and is helpful in illuminating disparities between urban and rural populations. Case fatality rates account for the number of deaths (numerator) and the number of reported cases (denominator), allowing for direct comparisons of the mortality burden of a disease between areas where the reported case rates may differ.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The majority of COVID-19 public health and media messaging in the USA has focused on major outbreaks in densely populated urban areas, including New York City, New Orleans and Seattle. This attention is indeed warranted, as the number of deaths is an important indicator of outbreak severity and informs public health, medical and government responses. In addition to case rates and the number of deaths, the case fatality rate is another epidemiologic tool used in disease surveillance and is helpful in illuminating disparities between urban and rural populations. Case fatality rates account for the number of deaths (numerator) and the number of reported cases (denominator), allowing for direct comparisons of the mortality burden of a disease between areas where the reported case rates may differ. |
Marhefka, Stephanie L; Lockhart, Elizabeth; Turner, DeAnne; Wang, Wei; Dolcini, Margaret M; Baldwin, Julie A; Roig-Romero, Regina Maria; Lescano, Celia M; Glueckauf, Robert L AIDS Behav, 24 (5), pp. 1463-1475, 2020. @article{Marhefka2020, title = {Social Determinants of Potential eHealth Engagement Among People Living with HIV Receiving Ryan White Case Management: Health Equity Implications from Project TECH}, author = {Stephanie L Marhefka and Elizabeth Lockhart and DeAnne Turner and Wei Wang and M Margaret Dolcini and Julie A Baldwin and Regina Maria Roig-Romero and Celia M Lescano and Robert L Glueckauf}, doi = {10.1007/s10461-019-02723-1}, year = {2020}, date = {2020-05-01}, journal = {AIDS Behav}, volume = {24}, number = {5}, pages = {1463-1475}, abstract = {Evaluate the relationships between social characteristics of Floridian persons living with HIV (PLWH) and both use of digital technologies and willingness to use eHealth for HIV-related information. Ryan White case managers (N = 155) from 55 agencies in 47 Florida counties administered a survey to PLWH (N = 1268) from June 2016-April 2017. Multilevel logistic regression models were used to identify correlates of technology use and willingness. Use of mobile phones with text messaging was high (89%). Older (vs. younger) adults and non-Hispanic blacks (vs. whites) were less likely to use most technologies. These groups, along with Hispanics (vs. whites) were less likely to express willingness to use technologies for HIV-related information in models adjusting for use. Among PLWH in Florida, eHealth-related inequities exist. Willingness to engage in HIV-related eHealth is affected by social determinants, even when considering technology access. Although eHealth may reduce some healthcare inequities, it may exacerbate others.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Evaluate the relationships between social characteristics of Floridian persons living with HIV (PLWH) and both use of digital technologies and willingness to use eHealth for HIV-related information. Ryan White case managers (N = 155) from 55 agencies in 47 Florida counties administered a survey to PLWH (N = 1268) from June 2016-April 2017. Multilevel logistic regression models were used to identify correlates of technology use and willingness. Use of mobile phones with text messaging was high (89%). Older (vs. younger) adults and non-Hispanic blacks (vs. whites) were less likely to use most technologies. These groups, along with Hispanics (vs. whites) were less likely to express willingness to use technologies for HIV-related information in models adjusting for use. Among PLWH in Florida, eHealth-related inequities exist. Willingness to engage in HIV-related eHealth is affected by social determinants, even when considering technology access. Although eHealth may reduce some healthcare inequities, it may exacerbate others. |
Pro, George; Utter, Jeff; Haberstroh, Shane; Baldwin, Julie A Drug and Alcohol Dependence, 209 (1), 2020. @article{Pro2020f, title = {Dual mental health diagnoses predict the receipt of medication-assisted opioid treatment: Associations moderated by state Medicaid expansion status, race/ethnicity and gender, and year}, author = {George Pro and Jeff Utter and Shane Haberstroh and Julie A Baldwin}, url = {https://pubmed.ncbi.nlm.nih.gov/32172130/}, doi = {10.1016/j.drugalcdep.2020.107952}, year = {2020}, date = {2020-03-07}, journal = {Drug and Alcohol Dependence}, volume = {209}, number = {1}, abstract = { Mental health diagnoses (MHD) are common among those with opioid use disorders (OUD). Methadone/buprenorphine are effective medication-assisted treatment (MAT) strategies; however, treatment receipt is low among those with dual MHDs. Medicaid expansions have broadly increased access to OUD and mental health services over time, but MAT uptake may vary depending on multiple factors, including MHD status, state Medicaid expansion decisions, and race/ethnicity and gender. Examining clinical and policy approaches to promoting MAT uptake may improve services among marginalized groups. }, keywords = {}, pubstate = {published}, tppubtype = {article} } Mental health diagnoses (MHD) are common among those with opioid use disorders (OUD). Methadone/buprenorphine are effective medication-assisted treatment (MAT) strategies; however, treatment receipt is low among those with dual MHDs. Medicaid expansions have broadly increased access to OUD and mental health services over time, but MAT uptake may vary depending on multiple factors, including MHD status, state Medicaid expansion decisions, and race/ethnicity and gender. Examining clinical and policy approaches to promoting MAT uptake may improve services among marginalized groups. |
Eaves, Emery R; Williamson, Heather J; Sanderson, Katharine C; Elwell, Kristan; II, Robert Trotter T; Baldwin, Julie A Integrating Behavioral and Primary Health Care in Rural Clinics: What Does Culture Have to Do with It? Journal Article Journal of Health Care for the Poor and Underserved, 31 (1), pp. 201-217, 2020. @article{Eaves2020, title = {Integrating Behavioral and Primary Health Care in Rural Clinics: What Does Culture Have to Do with It?}, author = {Emery R Eaves and Heather J Williamson and Katharine C Sanderson and Kristan Elwell and Robert T Trotter II and Julie A Baldwin }, url = {https://muse.jhu.edu/article/747784}, doi = {10.1353/hpu.2020.0018}, year = {2020}, date = {2020-02-07}, journal = {Journal of Health Care for the Poor and Underserved}, volume = {31}, number = {1}, pages = {201-217}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
Pro, George; Utter, Jeff; Cram, Jessica; Baldwin, Julie A Journal of Psychoactive Drugs, 2020. @article{Pro2020, title = {Racial/Ethnic and Gender Differences in Associations of Medication-Assisted Therapy and Reduced Opioid Use between Outpatient Treatment Admission and Discharge}, author = {George Pro and Jeff Utter and Jessica Cram and Julie A Baldwin}, doi = {10.1080/02791072.2020.1717685}, year = {2020}, date = {2020-01-31}, journal = {Journal of Psychoactive Drugs}, abstract = {Medication-assisted therapy (MAT) for opioid use disorders is an effective treatment strategy. Racial/ethnic and gender disparities in MAT utilization have been documented, but less is known about disparities in MAT outcomes. We used the Treatment Episodes Dataset–Discharges (TEDS-D; 2015– 2017) to identify outpatient treatment episodes with heroin or illicit opioids indicated at admission (n = 232,547). We used multivariate logistic regression to model the association between MAT and a reduction in opioid use between treatment admission and discharge. We explored moderation by race/ethnicity and gender by including an interaction term. We identified a strong moderating effect of race/ethnicity and gender. American Indian/Alaska Native (AI/AN) women demonstrated the strongest association between MAT (versus no MAT) and a reduction in opioid use (aOR = 6.05, 95% CI = 4.81– 7.61), while White men demonstrated the weakest association (aOR = 2.78, CI = 2.70– 2.87). Our findings could inform changes in clinical MAT settings that are based on harm reduction and the incremental transition from illicit opioids to medication-assistance among a diverse opioid use disorder population.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Medication-assisted therapy (MAT) for opioid use disorders is an effective treatment strategy. Racial/ethnic and gender disparities in MAT utilization have been documented, but less is known about disparities in MAT outcomes. We used the Treatment Episodes Dataset–Discharges (TEDS-D; 2015– 2017) to identify outpatient treatment episodes with heroin or illicit opioids indicated at admission (n = 232,547). We used multivariate logistic regression to model the association between MAT and a reduction in opioid use between treatment admission and discharge. We explored moderation by race/ethnicity and gender by including an interaction term. We identified a strong moderating effect of race/ethnicity and gender. American Indian/Alaska Native (AI/AN) women demonstrated the strongest association between MAT (versus no MAT) and a reduction in opioid use (aOR = 6.05, 95% CI = 4.81– 7.61), while White men demonstrated the weakest association (aOR = 2.78, CI = 2.70– 2.87). Our findings could inform changes in clinical MAT settings that are based on harm reduction and the incremental transition from illicit opioids to medication-assistance among a diverse opioid use disorder population. |
2023 |
Karmarkar, Amol M; Roy, Indrakshi; Lane, Taylor; Shaibi, Stefany; Baldwin, Julie A; Kumar, Amit Home health services for minorities in urban and rural areas with Alzheimer's and related dementia Journal Article Home Health Care Service Quarterly, pp. 1-17, 2023. @article{Karmarkar2023, title = {Home health services for minorities in urban and rural areas with Alzheimer's and related dementia}, author = {Amol M Karmarkar and Indrakshi Roy and Taylor Lane and Stefany Shaibi and Julie A Baldwin and Amit Kumar}, url = {https://www.tandfonline.com/doi/abs/10.1080/01621424.2023.2206368?journalCode=whhc20}, doi = {10.1080/01621424.2023.2206368}, year = {2023}, date = {2023-04-27}, journal = {Home Health Care Service Quarterly}, pages = {1-17}, abstract = {Timely access and continuum of care in older adults with Alzheimer's Disease and Related Dementia (ADRD) is critical. This is a retrospective study on Medicare fee-for-service beneficiaries with ADRD diagnosis discharged to home with home health care following an episode of acute hospitalization. Our sample included 262,525 patients. White patients in rural areas have significantly higher odds of delay (odds ratio [OR], 1.03; 95% CI, 1.01-1.06). Black patients in urban areas (OR, 1.15; 95% CI, 1.12-1.19) and Hispanic patients in urban areas also were more likely to have a delay (OR, 1.07; 95% CI, 1.03-1.11). Black and Hispanic patients residing in urban areas had a higher likelihood of delay in home healthcare initiation following hospitalization compared to Whites residing in urban areas.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Timely access and continuum of care in older adults with Alzheimer's Disease and Related Dementia (ADRD) is critical. This is a retrospective study on Medicare fee-for-service beneficiaries with ADRD diagnosis discharged to home with home health care following an episode of acute hospitalization. Our sample included 262,525 patients. White patients in rural areas have significantly higher odds of delay (odds ratio [OR], 1.03; 95% CI, 1.01-1.06). Black patients in urban areas (OR, 1.15; 95% CI, 1.12-1.19) and Hispanic patients in urban areas also were more likely to have a delay (OR, 1.07; 95% CI, 1.03-1.11). Black and Hispanic patients residing in urban areas had a higher likelihood of delay in home healthcare initiation following hospitalization compared to Whites residing in urban areas. |
Armin, Julie S; Williamson, Heather J; Rothers, Janet; Lee, Michele S; Baldwin, Julie A JMIR Research Protocols, 12 (e37801), 2023. @article{Armin2023, title = {An adapted cancer screening education program for Native American women with intellectual and developmental disabilities and their caregivers: Protocol for feasibility and acceptability testing}, author = {Julie S Armin and Heather J Williamson and Janet Rothers and Michele S Lee and Julie A Baldwin }, url = {https://www.researchprotocols.org/2023/1/e37801}, doi = {10.2196/37801}, year = {2023}, date = {2023-02-13}, journal = {JMIR Research Protocols}, volume = {12}, number = {e37801}, abstract = {Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC. |
2022 |
Camplain, Carolyn; Kirby, Christine; Barger, Steven D; Thomas, Heather; Tutt, Marissa; Elwell, Kristan; Young, Sara; Morrison, Gerlinda; Hyeoma, Stephanie; Baldwin, Julie A Community-based Participatory Research Approaches to Combat Oral Health Inequities Among American Indian and Alaska Native Populations Journal Article Journal of Public Health Dentistry, 82 (1), pp. 79-82, 2022. @article{Camplain2022d, title = {Community-based Participatory Research Approaches to Combat Oral Health Inequities Among American Indian and Alaska Native Populations}, author = {Carolyn Camplain and Christine Kirby and Steven D Barger and Heather Thomas and Marissa Tutt and Kristan Elwell and Sara Young and Gerlinda Morrison and Stephanie Hyeoma and Julie A Baldwin}, url = {https://onlinelibrary.wiley.com/doi/10.1111/jphd.12525}, doi = {10.1111/jphd.12525}, year = {2022}, date = {2022-06-21}, journal = {Journal of Public Health Dentistry}, volume = {82}, number = {1}, pages = {79-82}, abstract = {American Indian and Alaska Native (AI/AN) communities have experienced a history of systemic racism and still face significant oral health disparities. These disparities extend to the youngest community members in the form of early childhood caries (ECC). Although behavior and biology contribute to ECC, the conditions where people live, grow, and work, and the systems and political and economic forces that shape individual health outcomes, are thought to greatly impact ECC among AI/AN populations. To address ECC in AI/AN communities, we used a community based participatory approach that incorporated social determinants of health. We found that implementing culturally-tailored, culturally-centered, and AI/AN-created materials for ECC interventions is viewed favorably by community members and tribal leaders. Because of the complexity of ECC in AI/AN communities we adopted a bundled approach of best practices to reduce ECC including: (1) incorporating locally, contextually, and culturally relevant strategies to present recommended ECC prevention approaches; (2) employing AI/AN community members as educators; (3) utilizing motivational interviewing with expectant mothers; and (4) providing fluoride varnish. Our work underscores the importance of developing trusting partnerships with each other and with our communities, drawing upon the insights of community advisory board members, and eliciting formative assessment data from tribal members to gain a more holistic understanding of our participants' lived experience to design relevant intervention materials. Incorporating local knowledge and situating Western oral health prevention approaches within culturally aligned frameworks can enhance partnerships and create sustainable materials for community work.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian and Alaska Native (AI/AN) communities have experienced a history of systemic racism and still face significant oral health disparities. These disparities extend to the youngest community members in the form of early childhood caries (ECC). Although behavior and biology contribute to ECC, the conditions where people live, grow, and work, and the systems and political and economic forces that shape individual health outcomes, are thought to greatly impact ECC among AI/AN populations. To address ECC in AI/AN communities, we used a community based participatory approach that incorporated social determinants of health. We found that implementing culturally-tailored, culturally-centered, and AI/AN-created materials for ECC interventions is viewed favorably by community members and tribal leaders. Because of the complexity of ECC in AI/AN communities we adopted a bundled approach of best practices to reduce ECC including: (1) incorporating locally, contextually, and culturally relevant strategies to present recommended ECC prevention approaches; (2) employing AI/AN community members as educators; (3) utilizing motivational interviewing with expectant mothers; and (4) providing fluoride varnish. Our work underscores the importance of developing trusting partnerships with each other and with our communities, drawing upon the insights of community advisory board members, and eliciting formative assessment data from tribal members to gain a more holistic understanding of our participants' lived experience to design relevant intervention materials. Incorporating local knowledge and situating Western oral health prevention approaches within culturally aligned frameworks can enhance partnerships and create sustainable materials for community work. |
Camplain, Ricky; Lininger, Monica; Baldwin, Julie A; Trotter, Robert T Validity of the International Physical Activity Questionnaire among jail inmates. Medicine and Science in Sports and Exercise Journal Article Forthcoming Clearinghouse, Forthcoming. @article{Camplain2022, title = {Validity of the International Physical Activity Questionnaire among jail inmates. Medicine and Science in Sports and Exercise}, author = {Ricky Camplain and Monica Lininger and Julie A Baldwin and Robert T Trotter}, year = {2022}, date = {2022-02-01}, journal = {Clearinghouse}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } |
Camplain, Ricky; Chief, Carmenlita; Camplain, Carolyn; Teufel-shone, Nicolette; Baldwin, Julie A American Indian/Alaska Native Involvement in the US Justice System: Trends, Health Impacts and Health Disparities Journal Article Forthcoming Indigenous Justice Series: Indigenous Peoples, Health, Resilience and Justice, Forthcoming. @article{Camplain2022b, title = {American Indian/Alaska Native Involvement in the US Justice System: Trends, Health Impacts and Health Disparities}, author = {Ricky Camplain and Carmenlita Chief and Carolyn Camplain and Nicolette Teufel-shone and Julie A Baldwin}, year = {2022}, date = {2022-02-01}, journal = {Indigenous Justice Series: Indigenous Peoples, Health, Resilience and Justice}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } |
2021 |
Cox, Genevieve R; FireMoon, Paula; Anastario, Michael P; Ricker, Adriann; Thunder, Ramey Escarcega-Growing; Baldwin, Julie A; Rink, Elizabeth Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities Journal Article AlterNative: An International Journal of Indigenous Peoples, 2021. @article{Cox2021, title = {Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities}, author = {Genevieve R Cox and Paula FireMoon and Michael P Anastario and Adriann Ricker and Ramey Escarcega-Growing Thunder and Julie A Baldwin and Elizabeth Rink}, url = {https://doi.org/10.1177/11771801211042019}, doi = {10.1177/11771801211042019}, year = {2021}, date = {2021-08-26}, journal = {AlterNative: An International Journal of Indigenous Peoples}, abstract = {Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities. |
Ransdell, Lynda B; Wayment, Heidi A; Schwartz, Anna L; Lane, Taylor S; Baldwin, Julie A Precision mentoring (PM): a proposed framework for increasing research capacity in health-related disciplines Journal Article Medical Education Online, 26 (1), 2021. @article{Ransdell2021c, title = {Precision mentoring (PM): a proposed framework for increasing research capacity in health-related disciplines}, author = {Lynda B Ransdell and Heidi A Wayment and Anna L Schwartz and Taylor S Lane and Julie A Baldwin}, url = {https://www.tandfonline.com/doi/full/10.1080/10872981.2021.1964933}, doi = {10.1080/10872981.2021.1964933}, year = {2021}, date = {2021-08-24}, journal = {Medical Education Online}, volume = {26}, number = {1}, abstract = {Research productivity is expected of academic faculty, and mentoring can facilitate it. This paper presents a framework for using mentoring to develop researchers in health disciplines. We utilized recent literature reviews, and experience developing researchers at an emerging research institution within the Research Centers for Minority Institutions (RCMI) program, to propose a precision mentoring (PM) framework for research development. Although we cannot precisely determine how much improvement was due to the PM framework, over the 4 years of our program, the quality and quantity of pilot project proposals (PPP) has increased, the number of external proposals submitted and funded by PPP investigators has increased, and the number of faculty participating in our program has increased. Surveys distributed to our 2021–22 PPP applicants who did not receive funding (n = 5/6 or 86.7%) revealed that new investigators most frequently sought mentoring related to career guidance (e.g., institutional culture, pre-tenure survival strategies), grant proposal basics (e.g., working with funding agencies, reviewing aims, balancing priorities, and enhancing scientific rigor), and identifying funding opportunities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Research productivity is expected of academic faculty, and mentoring can facilitate it. This paper presents a framework for using mentoring to develop researchers in health disciplines. We utilized recent literature reviews, and experience developing researchers at an emerging research institution within the Research Centers for Minority Institutions (RCMI) program, to propose a precision mentoring (PM) framework for research development. Although we cannot precisely determine how much improvement was due to the PM framework, over the 4 years of our program, the quality and quantity of pilot project proposals (PPP) has increased, the number of external proposals submitted and funded by PPP investigators has increased, and the number of faculty participating in our program has increased. Surveys distributed to our 2021–22 PPP applicants who did not receive funding (n = 5/6 or 86.7%) revealed that new investigators most frequently sought mentoring related to career guidance (e.g., institutional culture, pre-tenure survival strategies), grant proposal basics (e.g., working with funding agencies, reviewing aims, balancing priorities, and enhancing scientific rigor), and identifying funding opportunities. |
Trotter, Robert; Baldwin, Julie A; Buck, Charles Loren; Remiker, Mark; Aguirre, Amanda; Milner, Trudie; Torres, Emma; von Hippel, Frank Arthur JMIR Research Protocol, 10 (8), 2021. @article{Trotter2021, title = {Health Impacts of Perchlorate and Pesticide Exposure: Protocol for Community-Engaged Research to Evaluate Environmental Toxicants in a US Border Community}, author = {Robert Trotter and Julie A Baldwin and Charles Loren Buck and Mark Remiker and Amanda Aguirre and Trudie Milner and Emma Torres and Frank Arthur von Hippel}, url = {https://pubmed.ncbi.nlm.nih.gov/34383679/}, doi = {10.2196/15864}, year = {2021}, date = {2021-08-11}, journal = {JMIR Research Protocol}, volume = {10}, number = {8}, abstract = {The Northern Arizona University (NAU) Center for Health Equity Research (CHER) is conducting community-engaged health research involving "environmental scans" in Yuma County in collaboration with community health stakeholders, including the Yuma Regional Medical Center (YRMC), Regional Center for Border Health, Inc. (RCBH), Campesinos Sin Fronteras (CSF), Yuma County Public Health District, and government agencies and nongovernmental organizations (NGOs) working on border health issues. The purpose of these efforts is to address community-generated environmental health hazards identified through ongoing coalitions among NAU, and local health care and research institutions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Northern Arizona University (NAU) Center for Health Equity Research (CHER) is conducting community-engaged health research involving "environmental scans" in Yuma County in collaboration with community health stakeholders, including the Yuma Regional Medical Center (YRMC), Regional Center for Border Health, Inc. (RCBH), Campesinos Sin Fronteras (CSF), Yuma County Public Health District, and government agencies and nongovernmental organizations (NGOs) working on border health issues. The purpose of these efforts is to address community-generated environmental health hazards identified through ongoing coalitions among NAU, and local health care and research institutions. |
Kumar, Amit; Roy, Indrakshi; Karmarkar, Amol M; Erler, Kimberly S; Rudolph, James L; Baldwin, Julie A Shifting US Patterns of COVID-19 Mortality by Race and Ethnicity From June-December 2020 Journal Article Journal of American Medical Direct Association, 22 (5), pp. 966-970, 2021. @article{Kumar2021b, title = {Shifting US Patterns of COVID-19 Mortality by Race and Ethnicity From June-December 2020}, author = {Amit Kumar and Indrakshi Roy and Amol M Karmarkar and Kimberly S Erler and James L Rudolph and Julie A Baldwin}, url = {https://www.sciencedirect.com/science/article/abs/pii/S1525861021002553?via%3Dihub}, doi = {10.1016/j.jamda.2021.02.034}, year = {2021}, date = {2021-05-05}, journal = {Journal of American Medical Direct Association}, volume = {22}, number = {5}, pages = {966-970}, abstract = {The COVID-19 pandemic has disproportionately affected racial and ethnic minorities in the United States and has been devastating for residents of nursing homes (NHs). However, evidence on racial and ethnic disparities in COVID-19-related mortality rates within NHs and how that has changed over time has been limited. This study examines the impact of a high proportion of minority residents in NHs on COVID-19-related mortality rates over a 30-week period.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The COVID-19 pandemic has disproportionately affected racial and ethnic minorities in the United States and has been devastating for residents of nursing homes (NHs). However, evidence on racial and ethnic disparities in COVID-19-related mortality rates within NHs and how that has changed over time has been limited. This study examines the impact of a high proportion of minority residents in NHs on COVID-19-related mortality rates over a 30-week period. |
Pro, George; Schumacher, Krista; Hubach, Randolph; Zaller, Nickolas; Giano, Zachary; Camplain, Ricky; Camplain, Carolyn; Haberstroh, Shane; Baldwin, Julie A; Wheeler, Denna L US trends in mask wearing during the COVID-19 pandemic depend on rurality Journal Article Rural and Remote Health, 21 , 2021. @article{Pro2021, title = {US trends in mask wearing during the COVID-19 pandemic depend on rurality}, author = {George Pro and Krista Schumacher and Randolph Hubach and Nickolas Zaller and Zachary Giano and Ricky Camplain and Carolyn Camplain and Shane Haberstroh and Julie A Baldwin and Denna L Wheeler}, url = {https://doi.org/10.22605/RRH6596}, doi = {10.22605/RRH6596}, year = {2021}, date = {2021-05-04}, journal = {Rural and Remote Health}, volume = {21}, abstract = {Face masks are widely recommended as a COVID-19 prevention strategy. State mask mandates have generally reduced the spread of the disease, but decisions to wear a mask depend on many factors. Recent increases in case rates in rural areas following initial outbreaks in more densely populated areas highlight the need to focus on prevention and education. Messaging about disease risk has faced challenges in rural areas in the past. While surges in cases within some communities are likely an impetus for behavior change, rising case rates likely explain only part of mask-wearing decisions. The current study examined the relationship between county-level indicators of rurality and mask wearing in the USA. National data from the New York Times’ COVID-19 cross-sectional mask survey was used to identify the percentage of a county’s residents who reported always/frequently wearing a mask (2–14 July 2020). The New York Times’ COVID-19 data repository was used to calculate county-level daily case rates for the 2 weeks preceding the mask survey (15 June – 1 July 2020), and defined county rurality using the Index of Relative Rurality (n=3103 counties). Multivariate linear regression was used to predict mask wearing across levels of rurality. The model was adjusted for daily case rates and other relevant county-level confounders, including county-level indicators of age, race/ethnicity, gender, political partisanship, income inequality, and whether each county was subject to a statewide mask mandate. Large clusters of counties with high rurality and low mask wearing were observed in the Midwest, upper Midwest, and mountainous West. Holding daily case rates and other county characteristics constant, the predicted probability of wearing a mask decreased significantly as counties became more rural (β=–0.560; p<0.0001). Conclusion: Upticks in COVID-19 cases and deaths in rural areas are expected to continue, and localized outbreaks will likely occur indefinitely. The present findings highlight the need to better understand the mechanisms underlying perceptions of COVID-19 risk in rural areas. Dissemination of scientifically correct and consistent information is critical during national emergencies.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Face masks are widely recommended as a COVID-19 prevention strategy. State mask mandates have generally reduced the spread of the disease, but decisions to wear a mask depend on many factors. Recent increases in case rates in rural areas following initial outbreaks in more densely populated areas highlight the need to focus on prevention and education. Messaging about disease risk has faced challenges in rural areas in the past. While surges in cases within some communities are likely an impetus for behavior change, rising case rates likely explain only part of mask-wearing decisions. The current study examined the relationship between county-level indicators of rurality and mask wearing in the USA. National data from the New York Times’ COVID-19 cross-sectional mask survey was used to identify the percentage of a county’s residents who reported always/frequently wearing a mask (2–14 July 2020). The New York Times’ COVID-19 data repository was used to calculate county-level daily case rates for the 2 weeks preceding the mask survey (15 June – 1 July 2020), and defined county rurality using the Index of Relative Rurality (n=3103 counties). Multivariate linear regression was used to predict mask wearing across levels of rurality. The model was adjusted for daily case rates and other relevant county-level confounders, including county-level indicators of age, race/ethnicity, gender, political partisanship, income inequality, and whether each county was subject to a statewide mask mandate. Large clusters of counties with high rurality and low mask wearing were observed in the Midwest, upper Midwest, and mountainous West. Holding daily case rates and other county characteristics constant, the predicted probability of wearing a mask decreased significantly as counties became more rural (β=–0.560; p<0.0001). Conclusion: Upticks in COVID-19 cases and deaths in rural areas are expected to continue, and localized outbreaks will likely occur indefinitely. The present findings highlight the need to better understand the mechanisms underlying perceptions of COVID-19 risk in rural areas. Dissemination of scientifically correct and consistent information is critical during national emergencies. |
Lockhart, Elizabeth; Turner, DeAnne; Martinez-Tyson, Dinorah; Baldwin, Julie A; Marhefka, Stephanie L Opportunities for and Perceptions of Integrating Community Health Workers Via the Affordable Care Act: Medicaid Health Homes Journal Article Journal of Public Health Management and Practice, 27 (01), pp. 193-200, 2021. @article{Lockhart2021, title = {Opportunities for and Perceptions of Integrating Community Health Workers Via the Affordable Care Act: Medicaid Health Homes}, author = {Elizabeth Lockhart and DeAnne Turner and Dinorah Martinez-Tyson and Julie A Baldwin and Stephanie L Marhefka}, url = {https://journals.lww.com/jphmp/Fulltext/2021/03000/Opportunities_for_and_Perceptions_of_Integrating.14.aspx}, doi = {10.1097/PHH.0000000000001118}, year = {2021}, date = {2021-03-01}, journal = {Journal of Public Health Management and Practice}, volume = {27}, number = {01}, pages = {193-200}, abstract = {The Affordable Care Act created opportunities for innovative, cost-saving measures to improve health care access. Community health workers (CHWs) are frontline public health workers who have a close understanding of the communities they serve. States that expanded Medicaid coverage could also create Medicaid Health Homes (MHHs)-virtual health care networks-to coordinate care for people with chronic conditions. New York was the second state to implement MHHs and gave the option to include CHWs as part of the health care team.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The Affordable Care Act created opportunities for innovative, cost-saving measures to improve health care access. Community health workers (CHWs) are frontline public health workers who have a close understanding of the communities they serve. States that expanded Medicaid coverage could also create Medicaid Health Homes (MHHs)-virtual health care networks-to coordinate care for people with chronic conditions. New York was the second state to implement MHHs and gave the option to include CHWs as part of the health care team. |
Giano, Zachary; Camplain, Ricky L; Camplain, Carolyn; Pro, George; Haberstroh, Shane; Baldwin, Julie A; Wheeler, Denna L; Hubach, Randolph D Adverse Childhood Events in American Indian/Alaska Native Populations Journal Article American Journal of Preventive Medicine, 60 (2), pp. 213-221, 2021. @article{Giano2021, title = {Adverse Childhood Events in American Indian/Alaska Native Populations}, author = {Zachary Giano and Ricky L Camplain and Carolyn Camplain and George Pro and Shane Haberstroh and Julie A Baldwin and Denna L Wheeler and Randolph D Hubach}, url = {https://doi.org/10.1016/j.amepre.2020.08.020}, doi = {10.1016/j.amepre.2020.08.020}, year = {2021}, date = {2021-02-01}, journal = {American Journal of Preventive Medicine}, volume = {60}, number = {2}, pages = {213-221}, abstract = {Adverse childhood experiences are linked to deleterious outcomes in adulthood. Certain populations have been shown to be more vulnerable to adversity in childhood than others. Despite these findings, research in this area lacks an empirical investigation that examines adverse childhood experiences among American Indian and Alaska Native populations using large, nationally representative data. As such, the authors have compiled what they believe is the largest empirical investigation of adverse childhood experiences among American Indian and Alaska Native individuals to date.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adverse childhood experiences are linked to deleterious outcomes in adulthood. Certain populations have been shown to be more vulnerable to adversity in childhood than others. Despite these findings, research in this area lacks an empirical investigation that examines adverse childhood experiences among American Indian and Alaska Native populations using large, nationally representative data. As such, the authors have compiled what they believe is the largest empirical investigation of adverse childhood experiences among American Indian and Alaska Native individuals to date. |
2020 |
McCarthy, Michael J; Sanchez, Angelica; Garcia, Yolanda Evie; Dunn, Dorothy; Williamson, Heather J; Baldwin, Julie A; Hustead, Morgan Lee-Regalado; Bakas, Tamilyn Systematic Review of Interventions for LatinX and American Indian Family Dyads Coping With Chronic Illness Journal Article Innovation in Aging, 4 (1), pp. 98–99, 2020. @article{McCarthy2020, title = {Systematic Review of Interventions for LatinX and American Indian Family Dyads Coping With Chronic Illness}, author = {Michael J McCarthy and Angelica Sanchez and Yolanda Evie Garcia and Dorothy Dunn and Heather J Williamson and Julie A Baldwin and Morgan Lee-Regalado Hustead and Tamilyn Bakas}, url = {https://doi.org/10.1093/geroni/igaa057.325}, doi = {10.1093/geroni/igaa057.325}, year = {2020}, date = {2020-12-16}, journal = {Innovation in Aging}, volume = {4}, number = {1}, pages = {98–99}, abstract = {The United States is experiencing growth in populations from culturally diverse backgrounds. Studies suggest that Latinx and American Indians experience chronic conditions such as cancer, heart disease, and diabetes in greater numbers than whites. Literature also suggests that Latinx and American Indian families play a significant role as informal caregivers for loved ones with chronic illness. However, little information is available about interventions to assist these patient-family caregiver dyads cope. The purpose of this systematic review is to synthesize published studies about psychosocial interventions developed or adapted for Latinx and American Indian care dyads in order to determine: (1) the benefits of these interventions; (2) their distinguishing features or adaptations, and; (3) recommendations for future intervention development. The protocol for this review was registered in advance with the International Prospective Register of Systematic Reviews (PROSPERO). We searched the databases CINAHL, PsycINFO, MEDLINE, and PubMeb using MeSH-derived keywords developed in consultation with a research librarian. Studies were included/excluded based upon pre-specified criteria. Three-hundred thirty-five records were identified, screened by the research team, and tracked according to PRISMA guidelines. After removing duplicates (n=9), studies that did not pertain to the conditions of interest (n=13), and studies that did not meet inclusion criteria (n=305), eight studies remained. Relevant information was abstracted from the final studies and synthesized by the research team. The majority of interventions for these populations are in cancer. Findings about benefits are largely inconclusive. Adaptations include a focus on cultural contexts, as well as culturally-based strengths, caregiving norms, and values.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The United States is experiencing growth in populations from culturally diverse backgrounds. Studies suggest that Latinx and American Indians experience chronic conditions such as cancer, heart disease, and diabetes in greater numbers than whites. Literature also suggests that Latinx and American Indian families play a significant role as informal caregivers for loved ones with chronic illness. However, little information is available about interventions to assist these patient-family caregiver dyads cope. The purpose of this systematic review is to synthesize published studies about psychosocial interventions developed or adapted for Latinx and American Indian care dyads in order to determine: (1) the benefits of these interventions; (2) their distinguishing features or adaptations, and; (3) recommendations for future intervention development. The protocol for this review was registered in advance with the International Prospective Register of Systematic Reviews (PROSPERO). We searched the databases CINAHL, PsycINFO, MEDLINE, and PubMeb using MeSH-derived keywords developed in consultation with a research librarian. Studies were included/excluded based upon pre-specified criteria. Three-hundred thirty-five records were identified, screened by the research team, and tracked according to PRISMA guidelines. After removing duplicates (n=9), studies that did not pertain to the conditions of interest (n=13), and studies that did not meet inclusion criteria (n=305), eight studies remained. Relevant information was abstracted from the final studies and synthesized by the research team. The majority of interventions for these populations are in cancer. Findings about benefits are largely inconclusive. Adaptations include a focus on cultural contexts, as well as culturally-based strengths, caregiving norms, and values. |
Armin, Julie S; Rothers, Janet; Baldwin, Julie A Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities Journal Article 2020. @article{Armin2020, title = {Abstract PO-026: Refining a breast and cervical cancer screening program for Native American women with disabilities}, author = {Julie S. Armin and Janet Rothers and Julie A Baldwin}, doi = {10.1158/1538-7755.DISP20-PO-026}, year = {2020}, date = {2020-12-01}, organization = {AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; October 2-4, 2020}, abstract = {This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026}, keywords = {}, pubstate = {published}, tppubtype = {article} } This community-engaged study aims to adapt and feasibility test a breast and cervical cancer education program for Native American (NA) women with disabilities. This presentation reports on the formative work leading to a program for feasibility testing. Intellectual and developmental disabilities (IDD) are disabilities that are diagnosed in childhood and involve limitations in intellectual functioning and/or adaptive behaviors. Women with IDD are less likely to receive breast and cervical cancer screenings than the general population of women in the U.S. Women with IDD who identify as racial/ethnic minorities are less likely to receive recommended preventive health screenings, like cancer screenings. Further, the general population of NA women in the U.S. are less likely to receive cancer screenings. The cancer education program aims to address inequities in cancer screenings for NA women with IDD. METHODS: The university teams worked with HOPI Cancer Support Services and Tucson Indian Center to adapt the cancer education program with input from NA women with IDD, caregivers, service providers, and community leaders. The program was refined in focus groups with health and disability services providers (n=12), partner site program staff (n=12), caregivers (n=12), and NA women with IDD (n=12). RESULTS: Focus groups offered input on program structure and content, including the program name. Participants contributed modifications to trauma-informed features, the program’s use of imagery and storytelling, and methods for hybrid virtual/telephonic and in- person program delivery. Key input included the need to incorporate: sites’ existing health education staff and resources into the program; culturally relevant imagery and language; engaging activities for the women to learn about their anatomy and about cancer screenings; and caregiver education. Participants noted the importance of engaging NA women with IDD and/or cancer survivors in delivering the educational program. They also encouraged the research team to emphasize the benefits of early detection of cancer in order to reduce long-term morbidity and mortality. CONCLUSIONS: Engaging community in the cultural adaptation of an evidence-based breast and cervical cancer curriculum generates a program that is responsive to and builds on community expectations, needs, and existing infrastructure. The team will test the feasibility of the program by assessing recruitment and retention, and exploring preliminary program outcomes. Citation Format: Julie S. Armin, Heather J. Williamson, Janet Rothers, Julie Baldwin, Marissa Adams, Myka Becenti, Andria Begay, Tara Chico- Jarillo, Jennifer Etcitty, Michele Lee, Leticia Lelli, Bailey Lockwood, Celeste Núñez, Samantha Sasse, Neida Rodriguez. Refining a breast and cervical cancer screening program for Native American women with disabilities [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-026 |
Pro, George; Giano, Zach; Camplain, Ricky; Haberstroh, Shane; Camplain, Carly; Wheeler, Denna; Hubach, Randolph D; Baldwin, Julie A Community Mental Health Journal, 57 , pp. 1017–1022, 2020. @article{Pro2020g, title = {The Role of State Medicaid Expansions in Integrating Comprehensive Mental Health Services into Opioid Treatment Programs: Differences Across the Rural/Urban Continuum}, author = {George Pro and Zach Giano and Ricky Camplain and Shane Haberstroh and Carly Camplain and Denna Wheeler and Randolph D Hubach and Julie A Baldwin }, url = {https://doi.org/10.1007/s10597-020-00719-z}, doi = {10.1007/s10597-020-00719-z}, year = {2020}, date = {2020-10-08}, journal = {Community Mental Health Journal}, volume = {57}, pages = {1017–1022}, abstract = {opioid treatment programs (OTPs) do not provide MH services. We measured the association between state level characteristics (Medicaid expansion status and rurality) and MH/OUD services integration. We used a generalized linear model to estimate how the association between integration and Medicaid expansions varied across levels of rurality (National Survey on Substance Abuse Treatment Services; 2018; n = 1507 OTPs). The predicted probability of OTPs offering MH services decreased as rurality increased, and the strength of the negative association was greater in non-expansion states (𝛽=−0.038, SE = 0.005, p < 0.0001) than in expansion states (𝛽=−0.020, SE = 0.003, p < 0.0001). Access to integrated MH services was lowest in rural non-Medicaid expansion states, despite the high risk of opioid misuse and a high need for MAT and MH services in this population.}, keywords = {}, pubstate = {published}, tppubtype = {article} } opioid treatment programs (OTPs) do not provide MH services. We measured the association between state level characteristics (Medicaid expansion status and rurality) and MH/OUD services integration. We used a generalized linear model to estimate how the association between integration and Medicaid expansions varied across levels of rurality (National Survey on Substance Abuse Treatment Services; 2018; n = 1507 OTPs). The predicted probability of OTPs offering MH services decreased as rurality increased, and the strength of the negative association was greater in non-expansion states (𝛽=−0.038, SE = 0.005, p < 0.0001) than in expansion states (𝛽=−0.020, SE = 0.003, p < 0.0001). Access to integrated MH services was lowest in rural non-Medicaid expansion states, despite the high risk of opioid misuse and a high need for MAT and MH services in this population. |
Pro, George; Hubach, Randolph; Wheeler, Denna; Camplain, Ricky; Haberstroh, Shane; Giano, Zach; Camplain, Carolyn; Baldwin, Julie A Differences in US COVID-19 case rates and case fatality rates across the urban-rural continuum Journal Article Rural Remote Health, 20 (3), pp. 6074, 2020. @article{Pro2020h, title = {Differences in US COVID-19 case rates and case fatality rates across the urban-rural continuum}, author = {George Pro and Randolph Hubach and Denna Wheeler and Ricky Camplain and Shane Haberstroh and Zach Giano and Carolyn Camplain and Julie A Baldwin}, url = {https://www.rrh.org.au/journal/article/6074}, doi = {10.22605/RRH6074}, year = {2020}, date = {2020-08-19}, journal = {Rural Remote Health}, volume = {20}, number = {3}, pages = {6074}, abstract = {The majority of COVID-19 public health and media messaging in the USA has focused on major outbreaks in densely populated urban areas, including New York City, New Orleans and Seattle. This attention is indeed warranted, as the number of deaths is an important indicator of outbreak severity and informs public health, medical and government responses. In addition to case rates and the number of deaths, the case fatality rate is another epidemiologic tool used in disease surveillance and is helpful in illuminating disparities between urban and rural populations. Case fatality rates account for the number of deaths (numerator) and the number of reported cases (denominator), allowing for direct comparisons of the mortality burden of a disease between areas where the reported case rates may differ.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The majority of COVID-19 public health and media messaging in the USA has focused on major outbreaks in densely populated urban areas, including New York City, New Orleans and Seattle. This attention is indeed warranted, as the number of deaths is an important indicator of outbreak severity and informs public health, medical and government responses. In addition to case rates and the number of deaths, the case fatality rate is another epidemiologic tool used in disease surveillance and is helpful in illuminating disparities between urban and rural populations. Case fatality rates account for the number of deaths (numerator) and the number of reported cases (denominator), allowing for direct comparisons of the mortality burden of a disease between areas where the reported case rates may differ. |
Marhefka, Stephanie L; Lockhart, Elizabeth; Turner, DeAnne; Wang, Wei; Dolcini, Margaret M; Baldwin, Julie A; Roig-Romero, Regina Maria; Lescano, Celia M; Glueckauf, Robert L AIDS Behav, 24 (5), pp. 1463-1475, 2020. @article{Marhefka2020, title = {Social Determinants of Potential eHealth Engagement Among People Living with HIV Receiving Ryan White Case Management: Health Equity Implications from Project TECH}, author = {Stephanie L Marhefka and Elizabeth Lockhart and DeAnne Turner and Wei Wang and M Margaret Dolcini and Julie A Baldwin and Regina Maria Roig-Romero and Celia M Lescano and Robert L Glueckauf}, doi = {10.1007/s10461-019-02723-1}, year = {2020}, date = {2020-05-01}, journal = {AIDS Behav}, volume = {24}, number = {5}, pages = {1463-1475}, abstract = {Evaluate the relationships between social characteristics of Floridian persons living with HIV (PLWH) and both use of digital technologies and willingness to use eHealth for HIV-related information. Ryan White case managers (N = 155) from 55 agencies in 47 Florida counties administered a survey to PLWH (N = 1268) from June 2016-April 2017. Multilevel logistic regression models were used to identify correlates of technology use and willingness. Use of mobile phones with text messaging was high (89%). Older (vs. younger) adults and non-Hispanic blacks (vs. whites) were less likely to use most technologies. These groups, along with Hispanics (vs. whites) were less likely to express willingness to use technologies for HIV-related information in models adjusting for use. Among PLWH in Florida, eHealth-related inequities exist. Willingness to engage in HIV-related eHealth is affected by social determinants, even when considering technology access. Although eHealth may reduce some healthcare inequities, it may exacerbate others.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Evaluate the relationships between social characteristics of Floridian persons living with HIV (PLWH) and both use of digital technologies and willingness to use eHealth for HIV-related information. Ryan White case managers (N = 155) from 55 agencies in 47 Florida counties administered a survey to PLWH (N = 1268) from June 2016-April 2017. Multilevel logistic regression models were used to identify correlates of technology use and willingness. Use of mobile phones with text messaging was high (89%). Older (vs. younger) adults and non-Hispanic blacks (vs. whites) were less likely to use most technologies. These groups, along with Hispanics (vs. whites) were less likely to express willingness to use technologies for HIV-related information in models adjusting for use. Among PLWH in Florida, eHealth-related inequities exist. Willingness to engage in HIV-related eHealth is affected by social determinants, even when considering technology access. Although eHealth may reduce some healthcare inequities, it may exacerbate others. |
Pro, George; Utter, Jeff; Haberstroh, Shane; Baldwin, Julie A Drug and Alcohol Dependence, 209 (1), 2020. @article{Pro2020f, title = {Dual mental health diagnoses predict the receipt of medication-assisted opioid treatment: Associations moderated by state Medicaid expansion status, race/ethnicity and gender, and year}, author = {George Pro and Jeff Utter and Shane Haberstroh and Julie A Baldwin}, url = {https://pubmed.ncbi.nlm.nih.gov/32172130/}, doi = {10.1016/j.drugalcdep.2020.107952}, year = {2020}, date = {2020-03-07}, journal = {Drug and Alcohol Dependence}, volume = {209}, number = {1}, abstract = { Mental health diagnoses (MHD) are common among those with opioid use disorders (OUD). Methadone/buprenorphine are effective medication-assisted treatment (MAT) strategies; however, treatment receipt is low among those with dual MHDs. Medicaid expansions have broadly increased access to OUD and mental health services over time, but MAT uptake may vary depending on multiple factors, including MHD status, state Medicaid expansion decisions, and race/ethnicity and gender. Examining clinical and policy approaches to promoting MAT uptake may improve services among marginalized groups. }, keywords = {}, pubstate = {published}, tppubtype = {article} } Mental health diagnoses (MHD) are common among those with opioid use disorders (OUD). Methadone/buprenorphine are effective medication-assisted treatment (MAT) strategies; however, treatment receipt is low among those with dual MHDs. Medicaid expansions have broadly increased access to OUD and mental health services over time, but MAT uptake may vary depending on multiple factors, including MHD status, state Medicaid expansion decisions, and race/ethnicity and gender. Examining clinical and policy approaches to promoting MAT uptake may improve services among marginalized groups. |
Eaves, Emery R; Williamson, Heather J; Sanderson, Katharine C; Elwell, Kristan; II, Robert Trotter T; Baldwin, Julie A Integrating Behavioral and Primary Health Care in Rural Clinics: What Does Culture Have to Do with It? Journal Article Journal of Health Care for the Poor and Underserved, 31 (1), pp. 201-217, 2020. @article{Eaves2020, title = {Integrating Behavioral and Primary Health Care in Rural Clinics: What Does Culture Have to Do with It?}, author = {Emery R Eaves and Heather J Williamson and Katharine C Sanderson and Kristan Elwell and Robert T Trotter II and Julie A Baldwin }, url = {https://muse.jhu.edu/article/747784}, doi = {10.1353/hpu.2020.0018}, year = {2020}, date = {2020-02-07}, journal = {Journal of Health Care for the Poor and Underserved}, volume = {31}, number = {1}, pages = {201-217}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
Pro, George; Utter, Jeff; Cram, Jessica; Baldwin, Julie A Journal of Psychoactive Drugs, 2020. @article{Pro2020, title = {Racial/Ethnic and Gender Differences in Associations of Medication-Assisted Therapy and Reduced Opioid Use between Outpatient Treatment Admission and Discharge}, author = {George Pro and Jeff Utter and Jessica Cram and Julie A Baldwin}, doi = {10.1080/02791072.2020.1717685}, year = {2020}, date = {2020-01-31}, journal = {Journal of Psychoactive Drugs}, abstract = {Medication-assisted therapy (MAT) for opioid use disorders is an effective treatment strategy. Racial/ethnic and gender disparities in MAT utilization have been documented, but less is known about disparities in MAT outcomes. We used the Treatment Episodes Dataset–Discharges (TEDS-D; 2015– 2017) to identify outpatient treatment episodes with heroin or illicit opioids indicated at admission (n = 232,547). We used multivariate logistic regression to model the association between MAT and a reduction in opioid use between treatment admission and discharge. We explored moderation by race/ethnicity and gender by including an interaction term. We identified a strong moderating effect of race/ethnicity and gender. American Indian/Alaska Native (AI/AN) women demonstrated the strongest association between MAT (versus no MAT) and a reduction in opioid use (aOR = 6.05, 95% CI = 4.81– 7.61), while White men demonstrated the weakest association (aOR = 2.78, CI = 2.70– 2.87). Our findings could inform changes in clinical MAT settings that are based on harm reduction and the incremental transition from illicit opioids to medication-assistance among a diverse opioid use disorder population.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Medication-assisted therapy (MAT) for opioid use disorders is an effective treatment strategy. Racial/ethnic and gender disparities in MAT utilization have been documented, but less is known about disparities in MAT outcomes. We used the Treatment Episodes Dataset–Discharges (TEDS-D; 2015– 2017) to identify outpatient treatment episodes with heroin or illicit opioids indicated at admission (n = 232,547). We used multivariate logistic regression to model the association between MAT and a reduction in opioid use between treatment admission and discharge. We explored moderation by race/ethnicity and gender by including an interaction term. We identified a strong moderating effect of race/ethnicity and gender. American Indian/Alaska Native (AI/AN) women demonstrated the strongest association between MAT (versus no MAT) and a reduction in opioid use (aOR = 6.05, 95% CI = 4.81– 7.61), while White men demonstrated the weakest association (aOR = 2.78, CI = 2.70– 2.87). Our findings could inform changes in clinical MAT settings that are based on harm reduction and the incremental transition from illicit opioids to medication-assistance among a diverse opioid use disorder population. |
Dickerson, Daniel; Baldwin, Julie A; Belcourt, Annie; Belone, Lorenda; Gittelsohn, Joel; Kaholokula, Joseph Keawe’aimoku; Lowe, John; Patten, Christi A; Wallerstein, Nina Encompassing Cultural Contexts Within Scientific Research Methodologies in the Development of Health Promotion Interventions Journal Article Prevention Science, 2020. @article{Dickerson2018b, title = {Encompassing Cultural Contexts Within Scientific Research Methodologies in the Development of Health Promotion Interventions}, author = {Daniel Dickerson and Julie A Baldwin and Annie Belcourt and Lorenda Belone and Joel Gittelsohn and Joseph Keawe’aimoku Kaholokula and John Lowe and Christi A Patten and Nina Wallerstein}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0926-1}, doi = {https://doi.org/10.1007/s11121-018-0926-1}, year = {2020}, date = {2020-01-01}, journal = {Prevention Science}, keywords = {}, pubstate = {published}, tppubtype = {article} } |
2019 |
Camplain, Ricky; Baldwin, Julie A; Warren, Meghan; Camplain, Carolyn Physical Activity in People Who Are Incarcerated: A Social Justice Issue Journal Article Journal of Physical Activity and Health, 16 (5), pp. 306-307, 2019. @article{Camplain2019, title = {Physical Activity in People Who Are Incarcerated: A Social Justice Issue}, author = {Ricky Camplain and Julie A Baldwin and Meghan Warren and Carolyn Camplain}, url = {https://journals.humankinetics.com/doi/full/10.1123/jpah.2019-0055}, year = {2019}, date = {2019-05-05}, journal = {Journal of Physical Activity and Health}, volume = {16}, number = {5}, pages = {306-307}, abstract = {Every year, approximately 12 million Americans cycle in and out of jail (ie, short-term facilities that hold individuals awaiting trial and/or sentenced to a term of less than 1 y).1 Although jails allow incarcerated individuals’ recreation time to engage in physical activity,2 it is not clear to what extent these opportunities are utilized. This potential lack of engagement in physical activity is concerning, especially as some of the benefits of physical activity are immediate and may improve the day-to-day life for those who are incarcerated. For example, a single bout of moderate to vigorous physical activity will reduce blood pressure, improve insulin sensitivity, improve sleep and cognition, and reduce symptoms of anxiety symptoms and anger.3 Unfortunately, use of recreation time in the jail setting has not been described previously, thereby precluding an important area for policy intervention.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Every year, approximately 12 million Americans cycle in and out of jail (ie, short-term facilities that hold individuals awaiting trial and/or sentenced to a term of less than 1 y).1 Although jails allow incarcerated individuals’ recreation time to engage in physical activity,2 it is not clear to what extent these opportunities are utilized. This potential lack of engagement in physical activity is concerning, especially as some of the benefits of physical activity are immediate and may improve the day-to-day life for those who are incarcerated. For example, a single bout of moderate to vigorous physical activity will reduce blood pressure, improve insulin sensitivity, improve sleep and cognition, and reduce symptoms of anxiety symptoms and anger.3 Unfortunately, use of recreation time in the jail setting has not been described previously, thereby precluding an important area for policy intervention. |
2018 |
Green, Shana M; Turner, DeAnne; Baldwin, Julie A; Walsh-Buhi, Eric R; Vamos, Cheryl A; Dagne, Getachew; Marhefka, Stephanie L AIDS and Behavior, 2018. @article{Green2018, title = {Towards an Information Motivation and Behavioral Skills Model for New Sex Partners: Results of a Study of Condom Use as an HIV Prevention Method for Emerging Adults Who Met Partners on Dating and Sex-Seeking Platforms or Offline}, author = {Shana M Green and DeAnne Turner and Julie A Baldwin and Eric R Walsh-Buhi and Cheryl A Vamos and Getachew Dagne and Stephanie L Marhefka}, url = {https://link.springer.com/article/10.1007/s10461-018-2349-1#citeas}, year = {2018}, date = {2018-12-01}, journal = {AIDS and Behavior}, abstract = {The information, motivation, behavioral Skills (IMB) model was used to identify factors that affect condom use with new sex partners that were met offline or online. Mixed methods data were collected from adults between the ages of 18 and 29 years who reported a new sex partner. A model was composed of participants’ IMB scale scores to determine the effect of these variables on condom use. A subset of 20 survey participants completed interviews exploring how IMB model elements may have influenced their condom use. Mixed methods results showed condom use skills were influential for condom use during the first sexual encounter between new partners. Qualitative findings suggest the information and motivation may also influence condom use with new sex partners. The IMB model for new partners may be relevant model for the development of interventions that encourage emerging adults to use condoms at first sex with new sex partners.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The information, motivation, behavioral Skills (IMB) model was used to identify factors that affect condom use with new sex partners that were met offline or online. Mixed methods data were collected from adults between the ages of 18 and 29 years who reported a new sex partner. A model was composed of participants’ IMB scale scores to determine the effect of these variables on condom use. A subset of 20 survey participants completed interviews exploring how IMB model elements may have influenced their condom use. Mixed methods results showed condom use skills were influential for condom use during the first sexual encounter between new partners. Qualitative findings suggest the information and motivation may also influence condom use with new sex partners. The IMB model for new partners may be relevant model for the development of interventions that encourage emerging adults to use condoms at first sex with new sex partners. |
II, Robert Trotter T; Lininger, Monica R; Camplain, Ricky; Fofanov, Viacheslav Y; Camplain, Carolyn; Baldwin, Julie A International Journal of Environmental Research and Public Health, 15 (11), 2018. @article{II2018b, title = {A Survey of Health Disparities, Social Determinants of Health, and Converging Morbidities in a County Jail: A Cultural-Ecological Assessment of Health Conditions in Jail Populations}, author = {Robert Trotter T II and Monica R Lininger and Ricky Camplain and Viacheslav Y Fofanov and Carolyn Camplain and Julie A Baldwin}, url = {https://www.mdpi.com/1660-4601/15/11/2500}, year = {2018}, date = {2018-11-08}, journal = {International Journal of Environmental Research and Public Health}, volume = {15}, number = {11}, abstract = {The environmental health status of jail populations in the United States constitutes a significant public health threat for prisoners and the general population. The ecology of jails creates a dynamic condition in relation to general population health due to the concentrated potential exposure to infectious diseases, difficult access to treatment for chronic health conditions, interruption in continuity of care for serious behavioral health conditions, as well as on-going issues for the prevention and treatment of substance abuse disorders. This paper reports on elements of a cross-sectional survey embedded in a parent project, “Health Disparities in Jail Populations.” The overall project includes a comprehensive secondary data analysis of the health status of county jail populations, along with primary data collection that includes a cross-sectional health and health care services survey of incarcerated individuals, coupled with collection of biological samples to investigate infectious disease characteristics of a county jail population. This paper reports on the primary results of the survey data collection that indicate that this is a population with complex and interacting co-morbidities, as well as significant health disparities compared to the general population.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The environmental health status of jail populations in the United States constitutes a significant public health threat for prisoners and the general population. The ecology of jails creates a dynamic condition in relation to general population health due to the concentrated potential exposure to infectious diseases, difficult access to treatment for chronic health conditions, interruption in continuity of care for serious behavioral health conditions, as well as on-going issues for the prevention and treatment of substance abuse disorders. This paper reports on elements of a cross-sectional survey embedded in a parent project, “Health Disparities in Jail Populations.” The overall project includes a comprehensive secondary data analysis of the health status of county jail populations, along with primary data collection that includes a cross-sectional health and health care services survey of incarcerated individuals, coupled with collection of biological samples to investigate infectious disease characteristics of a county jail population. This paper reports on the primary results of the survey data collection that indicate that this is a population with complex and interacting co-morbidities, as well as significant health disparities compared to the general population. |
Walters, Karina L; Johnson-Jennings, Michelle; Stroud, Sandra; Rasmus, Stacy; Charles, Billy; John, Simeon; Allen, James; Kaholokula, Joseph Keawe‘aimoku; Look, Mele A; de Silva, Māpuana; Lowe, John; Baldwin, Julie A; Lawrence, Gary; Brooks, Jada; Noonan, Curtis W; Belcourt, Annie; Quintana, Eugenia; Semmens, Erin O; Boulafentis, Johna Prevention Science, pp. 1-11, 2018. @article{Walters2018, title = {Growing from Our Roots: Strategies for Developing Culturally Grounded Health Promotion Interventions in American Indian, Alaska Native, and Native Hawaiian Communities}, author = {Karina L Walters and Michelle Johnson-Jennings and Sandra Stroud and Stacy Rasmus and Billy Charles and Simeon John and James Allen and Joseph Keawe‘aimoku Kaholokula and Mele A Look and Māpuana de Silva and John Lowe and Julie A Baldwin and Gary Lawrence and Jada Brooks and Curtis W Noonan and Annie Belcourt and Eugenia Quintana and Erin O Semmens and Johna Boulafentis}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0952-z}, year = {2018}, date = {2018-11-06}, journal = {Prevention Science}, pages = {1-11}, abstract = {Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Given the paucity of empirically based health promotion interventions designed by and for American Indian, Alaska Native, and Native Hawaiian (i.e., Native) communities, researchers and partnering communities have had to rely on the adaptation of evidence-based interventions (EBIs) designed for non-Native populations, a decidedly sub-optimal approach. Native communities have called for development of Indigenous health promotion programs in which their cultural worldviews and protocols are prioritized in the design, development, testing, and implementation. There is limited information regarding how Native communities and scholars have successfully collaborated to design and implement culturally based prevention efforts “from the ground up.” Drawing on five diverse community-based Native health intervention studies, we describe strategies for designing and implementing culturally grounded models of health promotion developed in partnership with Native communities. Additionally, we highlight indigenist worldviews and protocols that undergird Native health interventions with an emphasis on the incorporation of (1) original instructions, (2) relational restoration, (3) narrative-[em]bodied transformation, and (4) indigenist community-based participatory research (ICBPR) processes. Finally, we demonstrate how culturally grounded interventions can improve population health when they prioritize local Indigenous knowledge and health-positive messages for individual to multi-level community interventions. |
II, Robert Trotter T; Camplain, Ricky; Eaves, Emery R; Fofanov, Viacheslav Y; Dmitrieva, Natalia O; Hepp, Crystal M; Warren, Meghan; Barrios, Brianna A; Pagel, Nicole; Mayer, Alyssa; Baldwin, Julie A Health Disparities and Converging Epidemics in Jail Populations: Protocol for a Mixed-Methods Study Journal Article JMIR Res Protoc, 7 (10), 2018. @article{II2018b, title = {Health Disparities and Converging Epidemics in Jail Populations: Protocol for a Mixed-Methods Study}, author = {Robert Trotter T II and Ricky Camplain and Emery R Eaves and Viacheslav Y Fofanov and Natalia O Dmitrieva and Crystal M Hepp and Meghan Warren and Brianna A Barrios and Nicole Pagel and Alyssa Mayer and Julie A Baldwin}, editor = {Gunther Eysenbach and Nicola Kuter}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6231773/}, year = {2018}, date = {2018-10-24}, journal = {JMIR Res Protoc}, volume = {7}, number = {10}, abstract = {Background Incarcerated populations have increased in the last 20 years and >12 million individuals cycle in and out of jails each year. Previous research has predominately focused on the prison population. However, a substantial gap exists in understanding the health, well-being, and health care utilization patterns in jail populations. Objective This pilot study has 5 main objectives: (1) define recidivists of the jail system, individuals characterized by high incarceration rates; (2) describe and compare the demographic and clinical characteristics of incarcerated individuals; (3) identify jail-associated health disparities; (4) estimate associations between incarceration and health; and (5) describe model patterns in health care and jail utilization. Methods The project has two processes—a secondary data analysis and primary data collection—which includes a cross-sectional health survey and biological sample collection to investigate infectious disease characteristics of the jail population. This protocol contains pilot elements in four areas: (1) instrument validity and reliability; (2) individual item assessment; (3) proof of concept of content and database accessibility; and (4) pilot test of the “honest broker” system. Secondary data analysis includes the analysis of 6 distinct databases, each covered by a formal memorandum of agreement between Northern Arizona University and the designated institution: (1) the Superior Court of Arizona Public Case Finder database; (2) North Country Health Care; (3) Health Choice Integrated Care; (4) Criminal Justice Information Services; (5) Correctional Electronic Medical Records; and (6) iLEADS. We will perform data integration processes using an automated honest broker design. We will administer a cross-sectional health survey, which includes questions about health status, health history, health care utilization, substance use practices, physical activity, adverse childhood events, and behavioral health, among 200 Coconino County Detention Facility inmates. Concurrent with the survey administration, we will collect Methicillin-resistant and Methicillin-sensitive Staphylococcus aureus (samples from the nose) and dental microbiome (Streptococcus sobrinus and Streptococcus mutans samples from the mouth) from consenting participants. Results To date, we have permission to link data across acquired databases. We have initiated data transfer, protection, and initial assessment of the 6 secondary databases. Of 199 inmates consented and enrolled, we have permission from 97.0% (193/199) to access and link electronic medical and incarceration records to their survey responses, and 95.0% (189/199) of interviewed inmates have given nasal and buccal swabs for analysis of S. aureus and the dental microbiome. Conclusions This study is designed to increase the understanding of health needs and health care utilization patterns among jail populations, with a special emphasis on frequently incarcerated individuals. Our findings will help identify intervention points throughout the criminal justice and health care systems to improve health and reduce health disparities among jail inmates. International Registered Report Identifier (IRRID) RR1-10.2196/10337}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background Incarcerated populations have increased in the last 20 years and >12 million individuals cycle in and out of jails each year. Previous research has predominately focused on the prison population. However, a substantial gap exists in understanding the health, well-being, and health care utilization patterns in jail populations. Objective This pilot study has 5 main objectives: (1) define recidivists of the jail system, individuals characterized by high incarceration rates; (2) describe and compare the demographic and clinical characteristics of incarcerated individuals; (3) identify jail-associated health disparities; (4) estimate associations between incarceration and health; and (5) describe model patterns in health care and jail utilization. Methods The project has two processes—a secondary data analysis and primary data collection—which includes a cross-sectional health survey and biological sample collection to investigate infectious disease characteristics of the jail population. This protocol contains pilot elements in four areas: (1) instrument validity and reliability; (2) individual item assessment; (3) proof of concept of content and database accessibility; and (4) pilot test of the “honest broker” system. Secondary data analysis includes the analysis of 6 distinct databases, each covered by a formal memorandum of agreement between Northern Arizona University and the designated institution: (1) the Superior Court of Arizona Public Case Finder database; (2) North Country Health Care; (3) Health Choice Integrated Care; (4) Criminal Justice Information Services; (5) Correctional Electronic Medical Records; and (6) iLEADS. We will perform data integration processes using an automated honest broker design. We will administer a cross-sectional health survey, which includes questions about health status, health history, health care utilization, substance use practices, physical activity, adverse childhood events, and behavioral health, among 200 Coconino County Detention Facility inmates. Concurrent with the survey administration, we will collect Methicillin-resistant and Methicillin-sensitive Staphylococcus aureus (samples from the nose) and dental microbiome (Streptococcus sobrinus and Streptococcus mutans samples from the mouth) from consenting participants. Results To date, we have permission to link data across acquired databases. We have initiated data transfer, protection, and initial assessment of the 6 secondary databases. Of 199 inmates consented and enrolled, we have permission from 97.0% (193/199) to access and link electronic medical and incarceration records to their survey responses, and 95.0% (189/199) of interviewed inmates have given nasal and buccal swabs for analysis of S. aureus and the dental microbiome. Conclusions This study is designed to increase the understanding of health needs and health care utilization patterns among jail populations, with a special emphasis on frequently incarcerated individuals. Our findings will help identify intervention points throughout the criminal justice and health care systems to improve health and reduce health disparities among jail inmates. International Registered Report Identifier (IRRID) RR1-10.2196/10337 |
Williamson, Heather J; Perkins, Elizabeth A; Massey, Oliver T; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Levins, Bruce L Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports Journal Article Journal of Policy and Practice in Intellectual Disabilities, 15 (3), pp. 214-225, 2018. @article{Williamson2018, title = {Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports}, author = {Heather J Williamson and Elizabeth A Perkins and Oliver T Massey and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Bruce L Levins}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12258}, year = {2018}, date = {2018-08-24}, journal = {Journal of Policy and Practice in Intellectual Disabilities}, volume = {15}, number = {3}, pages = {214-225}, abstract = {Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS. |
Tyson, Dinorah Martinez; Teran, Enrique; Dao, Lillie Uyen-Loan; Chee, Vanessa; Hernandez, Isabel; Flores, Mercedes; Ortiz, Miguel Reina; Izurieta, Ricardo; Baldwin, Julie A Cancer is in Style: Lifestyle change and the perceived impact of globalization on Andean indigenous communities in Ecuador Journal Article Ethnicity and Health, 2018. @article{Tyson2018, title = {Cancer is in Style: Lifestyle change and the perceived impact of globalization on Andean indigenous communities in Ecuador}, author = {Dinorah Martinez Tyson and Enrique Teran and Lillie Uyen-Loan Dao and Vanessa Chee and Isabel Hernandez and Mercedes Flores and Miguel Reina Ortiz and Ricardo Izurieta and Julie A Baldwin}, url = {https://www.tandfonline.com/doi/abs/10.1080/13557858.2018.1493437?journalCode=ceth20}, doi = {10.1080/13557858.2018.1493437}, year = {2018}, date = {2018-07-04}, journal = {Ethnicity and Health}, abstract = {Introduction: There is a paucity of information on cancer among Indigenous populations in Latin America. Methods: Guided by tenets of community engaged research and syndemic theory, we conducted eight focus groups (n = 59) with Kichwa men and women in the province of Imbabura, Ecuador. Data were analyzed using applied thematic analysis techniques. Results: Cancer emerged as an important health problem and was reported as a growing concern. Kichwa participants in this study attributed the rise in cancer to (1) exposure to chemicals and pesticides, (2) urbanization and development, and (3) the rise of innutritious, westernized diets. Conclusion: Our findings suggest that the Kichwa are attuned to the global phenomena in which traditional diet has been replaced by western, processed foods and fast food, which result in higher levels of chronic diseases such as cancer. More research is needed to understand the cancer burden among Indigenous peoples in Latin America.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Introduction: There is a paucity of information on cancer among Indigenous populations in Latin America. Methods: Guided by tenets of community engaged research and syndemic theory, we conducted eight focus groups (n = 59) with Kichwa men and women in the province of Imbabura, Ecuador. Data were analyzed using applied thematic analysis techniques. Results: Cancer emerged as an important health problem and was reported as a growing concern. Kichwa participants in this study attributed the rise in cancer to (1) exposure to chemicals and pesticides, (2) urbanization and development, and (3) the rise of innutritious, westernized diets. Conclusion: Our findings suggest that the Kichwa are attuned to the global phenomena in which traditional diet has been replaced by western, processed foods and fast food, which result in higher levels of chronic diseases such as cancer. More research is needed to understand the cancer burden among Indigenous peoples in Latin America. |
Siwon, Jang; Liller, Karen; Baldwin, Julie A; Zhu, Yiliang; VandeWeerd, Carla The relationship between high school coaches' injury beliefs and practices Journal Article Health Behavior and Policy Review, 5 (4), pp. 39-49, 2018. @article{Siwon2018, title = {The relationship between high school coaches' injury beliefs and practices}, author = {Jang Siwon and Karen Liller and Julie A Baldwin and Yiliang Zhu and Carla VandeWeerd }, url = {https://www.ingentaconnect.com/contentone/psp/hbpr/2018/00000005/00000004/art00005}, doi = {10.14485/HBPR.5.4.5}, year = {2018}, date = {2018-07-01}, journal = {Health Behavior and Policy Review}, volume = {5}, number = {4}, pages = {39-49}, abstract = {Objective In this paper, we describe high school coaches’ beliefs and knowledge pertaining to sports injury and their readiness for the practice of high school injury prevention. Methods A mixed-methods approach was used to assess 111 Florida high school coaches’ beliefs and knowledge related to sports injury, readiness for injury prevention practice, and the relationship between coaches’ beliefs, knowledge and readiness. Results Whereas only 22% of respondents exhibited high injury susceptibility beliefs, levels of self-efficacy were strongly related to particular injury prevention behaviors. Coaches who employed medical staff were 4 times more likely to implement prevention programs and have emergency plans. Conclusion This research supports coaches having access to evidence-based injury prevention programs and policies should be developed on the need for coaches to execute prevention programs.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective In this paper, we describe high school coaches’ beliefs and knowledge pertaining to sports injury and their readiness for the practice of high school injury prevention. Methods A mixed-methods approach was used to assess 111 Florida high school coaches’ beliefs and knowledge related to sports injury, readiness for injury prevention practice, and the relationship between coaches’ beliefs, knowledge and readiness. Results Whereas only 22% of respondents exhibited high injury susceptibility beliefs, levels of self-efficacy were strongly related to particular injury prevention behaviors. Coaches who employed medical staff were 4 times more likely to implement prevention programs and have emergency plans. Conclusion This research supports coaches having access to evidence-based injury prevention programs and policies should be developed on the need for coaches to execute prevention programs. |
Dickerson, Daniel; Baldwin, Julie A; Belcourt, Annie; Belone, Lorenda; Gittelsohn, Joel; Kaholokula, Joseph Keawe'aimoku; Lowe, John; Patten, Christi A; Wallerstein, Nina Encompassing cultural contexts within scientific research methodologies in the development of health promotion interventions Journal Article Prevention Science, 2018. @article{Dickerson2018, title = {Encompassing cultural contexts within scientific research methodologies in the development of health promotion interventions}, author = {Daniel Dickerson and Julie A Baldwin and Annie Belcourt and Lorenda Belone and Joel Gittelsohn and Joseph Keawe'aimoku Kaholokula and John Lowe and Christi A Patten and Nina Wallerstein}, url = {https://link.springer.com/article/10.1007%2Fs11121-018-0926-1}, doi = {10.1007/s11121-018-0926-1}, year = {2018}, date = {2018-06-29}, journal = {Prevention Science}, abstract = {American Indians/Alaska Natives/Native Hawaiians (AI/AN/NHs) disproportionately experience higher rates of various health conditions. Developing culturally centered interventions targeting health conditions is a strategy to decrease the burden of health conditions among this population. This study analyzes characteristics from 21 studies currently funded under the Interventions for Health Promotion and Disease Prevention in Native American (NA) Populations program among investigators currently funded under this grant mechanism. Four broad challenges were revealed as critical to address when scientifically establishing culturally centered interventions for Native populations. These challenges were (a) their ability to harness culture-centered knowledge and perspectives from communities; (b) their utilization of Indigenous-based theories and knowledge systems with Western-based intervention paradigms and theories; (c) their use of Western-based methodologies; and (d) their cultural adaptation, if based on an evidence-based treatment. Findings revealed that qualitative methodologies and community-based participatory research (CBPR) approaches were very commonly used to finalize the development of interventions. Various Indigenous-based theories and knowledge systems and Western-based theories were used in the methodologies employed. Cultural adaptations were made that often used formative mixed qualitative and quantitative methods. Illustrative examples of strategies used and suggestions for future research are provided. Findings underscored the importance of CBPR methods to improve the efficacy of interventions for AI/AN/NH communities by integrating Indigenous-based theories and knowledge systems with Western science approaches to improve health.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indians/Alaska Natives/Native Hawaiians (AI/AN/NHs) disproportionately experience higher rates of various health conditions. Developing culturally centered interventions targeting health conditions is a strategy to decrease the burden of health conditions among this population. This study analyzes characteristics from 21 studies currently funded under the Interventions for Health Promotion and Disease Prevention in Native American (NA) Populations program among investigators currently funded under this grant mechanism. Four broad challenges were revealed as critical to address when scientifically establishing culturally centered interventions for Native populations. These challenges were (a) their ability to harness culture-centered knowledge and perspectives from communities; (b) their utilization of Indigenous-based theories and knowledge systems with Western-based intervention paradigms and theories; (c) their use of Western-based methodologies; and (d) their cultural adaptation, if based on an evidence-based treatment. Findings revealed that qualitative methodologies and community-based participatory research (CBPR) approaches were very commonly used to finalize the development of interventions. Various Indigenous-based theories and knowledge systems and Western-based theories were used in the methodologies employed. Cultural adaptations were made that often used formative mixed qualitative and quantitative methods. Illustrative examples of strategies used and suggestions for future research are provided. Findings underscored the importance of CBPR methods to improve the efficacy of interventions for AI/AN/NH communities by integrating Indigenous-based theories and knowledge systems with Western science approaches to improve health. |
2017 |
Mayer, Alyssa B; McDermott, Robert J; Bryant, Carol A; Baldwin, Julie A; Kromrey, Jeffrey Sustainability of community-based health promotion coalitions: Putting theory into practice Journal Article Health Behavior and Policy Review, 4 (6), pp. 511-520, 2017. @article{Mayer2017, title = {Sustainability of community-based health promotion coalitions: Putting theory into practice}, author = {Alyssa B Mayer and Robert J McDermott and Carol A Bryant and Julie A Baldwin and Jeffrey Kromrey}, url = {http://ingentaconnect.com/contentone/psp/hbpr/2017/00000004/00000006/art00001;jsessionid=22whnsckp4hwq.x-ic-live-03}, year = {2017}, date = {2017-11-01}, journal = {Health Behavior and Policy Review}, volume = {4}, number = {6}, pages = {511-520}, abstract = {Objective: Despite their rich potential, community coalitions enjoy mixed success in effecting long-term population health improvement. A need exists for strategies that augment and sustain their functional success. We undertook a study to enhance definition of the elements of coalition success and sustainability that, in turn, may foster better achievement in community-based participatory research (CBPR) and concomitant health-related outcomes. Methods: We conducted in-depth, semi-structured interviews (N = 42) with academic researchers and their community coalition partners about the effectiveness of their collaborative endeavors. A grounded theory analysis of interview data informed the identification of domains and thematic elements influencing coalition effectiveness. Results: Seven domains emerged: (1) Characteristics related to coalition structure and processes; (2) Partner characteristics, eg, diversity, patience, flexibility, expertise; (3) Community characteristics, eg, capacity, ownership; (4) Partnership dynamics and synergy; (5) Tangible benefits; (6) Available resources, and; (7) Project characteristics. In all, 70 elements representing these domains influenced coalition effectiveness over time. Conclusions: These results extend our knowledge of factors contributing to coalition effectiveness and the sustainability of academic-community partnerships. Attention to these domains during key operational stages of CBPR initiatives is likely to have broad stakeholder benefits.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective: Despite their rich potential, community coalitions enjoy mixed success in effecting long-term population health improvement. A need exists for strategies that augment and sustain their functional success. We undertook a study to enhance definition of the elements of coalition success and sustainability that, in turn, may foster better achievement in community-based participatory research (CBPR) and concomitant health-related outcomes. Methods: We conducted in-depth, semi-structured interviews (N = 42) with academic researchers and their community coalition partners about the effectiveness of their collaborative endeavors. A grounded theory analysis of interview data informed the identification of domains and thematic elements influencing coalition effectiveness. Results: Seven domains emerged: (1) Characteristics related to coalition structure and processes; (2) Partner characteristics, eg, diversity, patience, flexibility, expertise; (3) Community characteristics, eg, capacity, ownership; (4) Partnership dynamics and synergy; (5) Tangible benefits; (6) Available resources, and; (7) Project characteristics. In all, 70 elements representing these domains influenced coalition effectiveness over time. Conclusions: These results extend our knowledge of factors contributing to coalition effectiveness and the sustainability of academic-community partnerships. Attention to these domains during key operational stages of CBPR initiatives is likely to have broad stakeholder benefits. |
Baldwin, Julie A; Williamson, Heather J; Eaves, Emery R; Levin, Bruce L; Burton, Donna L; Massey, Oliver T Broadening measures of success: Results of a behavioral health translational research training program Journal Article Implementation Science, 12 (92), 2017. @article{Baldwin2017b, title = {Broadening measures of success: Results of a behavioral health translational research training program}, author = {Julie A Baldwin and Heather J Williamson and Emery R Eaves and Bruce L Levin and Donna L Burton and Oliver T Massey}, url = {https://implementationscience.biomedcentral.com/articles/10.1186/s13012-017-0621-9}, year = {2017}, date = {2017-07-24}, journal = {Implementation Science}, volume = {12}, number = {92}, abstract = {Background While some research training programs have considered the importance of mentoring in inspiring professionals to engage in translational research, most evaluations emphasize outcomes specific to academic productivity as primary measures of training program success. The impact of such training or mentoring programs on stakeholders and local community organizations engaged in translational research efforts has received little attention. The purpose of this evaluation is to explore outcomes other than traditional academic productivity in a translational research graduate certificate program designed to pair graduate students and behavioral health professionals in collaborative service-learning projects. Methods Semi-structured qualitative interviews with scholars, community mentors, and academic mentors were conducted regarding a translational research program to identify programmatic impacts. Interviews were transcribed and coded by the research team to identify salient themes related to programmatic outcomes. Results Results are framed using the Translational Research Impact Scale which is organized into three overarching domains of potential impact: (1) research-related impacts, (2) translational impacts, and (3) societal impacts. This evaluation demonstrates the program’s impact in all three domains of the TRIS evaluation framework. Graduate certificate participants (scholars) reported that gaining experience in applied behavioral health settings added useful skills and expertise to their present careers and increased their interest in pursuing translational research. Scholars also described benefits resulting from networks gained through participation in the program, including valuable ties between the university and community behavioral health organizations. Conclusions This evaluation of the outcomes of a graduate certificate program providing training in translational research highlights the need for more community-oriented and practice-based measures of success. Encouraging practitioner involvement in translational research is vital to translate knowledge into practice and to enable practice-based needs to inform research and policy. A more flexible approach to measuring programmatic success in research training programs can help bridge the knowledge translation gap.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background While some research training programs have considered the importance of mentoring in inspiring professionals to engage in translational research, most evaluations emphasize outcomes specific to academic productivity as primary measures of training program success. The impact of such training or mentoring programs on stakeholders and local community organizations engaged in translational research efforts has received little attention. The purpose of this evaluation is to explore outcomes other than traditional academic productivity in a translational research graduate certificate program designed to pair graduate students and behavioral health professionals in collaborative service-learning projects. Methods Semi-structured qualitative interviews with scholars, community mentors, and academic mentors were conducted regarding a translational research program to identify programmatic impacts. Interviews were transcribed and coded by the research team to identify salient themes related to programmatic outcomes. Results Results are framed using the Translational Research Impact Scale which is organized into three overarching domains of potential impact: (1) research-related impacts, (2) translational impacts, and (3) societal impacts. This evaluation demonstrates the program’s impact in all three domains of the TRIS evaluation framework. Graduate certificate participants (scholars) reported that gaining experience in applied behavioral health settings added useful skills and expertise to their present careers and increased their interest in pursuing translational research. Scholars also described benefits resulting from networks gained through participation in the program, including valuable ties between the university and community behavioral health organizations. Conclusions This evaluation of the outcomes of a graduate certificate program providing training in translational research highlights the need for more community-oriented and practice-based measures of success. Encouraging practitioner involvement in translational research is vital to translate knowledge into practice and to enable practice-based needs to inform research and policy. A more flexible approach to measuring programmatic success in research training programs can help bridge the knowledge translation gap. |
Baldwin, Julie A; Williamson, Heather J; Eaves, Emery R; Levin, Bruce L; Burton, Donna L; Massey, Oliver T Broadening measures of success: results of a behavioral health translational research training program Journal Article Implementation Science, 12 (92), 2017. @article{Baldwin2017b, title = {Broadening measures of success: results of a behavioral health translational research training program}, author = {Julie A Baldwin and Heather J Williamson and Emery R Eaves and Bruce L Levin and Donna L Burton and Oliver T Massey}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5525239/}, year = {2017}, date = {2017-07-04}, journal = {Implementation Science}, volume = {12}, number = {92}, abstract = {Background: While some research training programs have considered the importance of mentoring in inspiring professionals to engage in translational research, most evaluations emphasize outcomes specific to academic productivity as primary measures of training program success. The impact of such training or mentoring programs on stakeholders and local community organizations engaged in translational research efforts has received little attention. The purpose of this evaluation is to explore outcomes other than traditional academic productivity in a translational research graduate certificate program designed to pair graduate students and behavioral health professionals in collaborative service-learning projects. Methods: Semi-structured qualitative interviews with scholars, community mentors, and academic mentors were conducted regarding a translational research program to identify programmatic impacts. Interviews were transcribed and coded by the research team to identify salient themes related to programmatic outcomes. Results: Results are framed using the Translational Research Impact Scale which is organized into three overarching domains of potential impact: (1) research-related impacts, (2) translational impacts, and (3) societal impacts. This evaluation demonstrates the program’s impact in all three domains of the TRIS evaluation framework. Graduate certificate participants (scholars) reported that gaining experience in applied behavioral health settings added useful skills and expertise to their present careers and increased their interest in pursuing translational research. Scholars also described benefits resulting from networks gained through participation in the program, including valuable ties between the university and community behavioral health organizations. Conclusions: This evaluation of the outcomes of a graduate certificate program providing training in translational research highlights the need for more community-oriented and practice-based measures of success. Encouraging practitioner involvement in translational research is vital to translate knowledge into practice and to enable practice-based needs to inform research and policy. A more flexible approach to measuring programmatic success in research training programs can help bridge the knowledge translation gap}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background: While some research training programs have considered the importance of mentoring in inspiring professionals to engage in translational research, most evaluations emphasize outcomes specific to academic productivity as primary measures of training program success. The impact of such training or mentoring programs on stakeholders and local community organizations engaged in translational research efforts has received little attention. The purpose of this evaluation is to explore outcomes other than traditional academic productivity in a translational research graduate certificate program designed to pair graduate students and behavioral health professionals in collaborative service-learning projects. Methods: Semi-structured qualitative interviews with scholars, community mentors, and academic mentors were conducted regarding a translational research program to identify programmatic impacts. Interviews were transcribed and coded by the research team to identify salient themes related to programmatic outcomes. Results: Results are framed using the Translational Research Impact Scale which is organized into three overarching domains of potential impact: (1) research-related impacts, (2) translational impacts, and (3) societal impacts. This evaluation demonstrates the program’s impact in all three domains of the TRIS evaluation framework. Graduate certificate participants (scholars) reported that gaining experience in applied behavioral health settings added useful skills and expertise to their present careers and increased their interest in pursuing translational research. Scholars also described benefits resulting from networks gained through participation in the program, including valuable ties between the university and community behavioral health organizations. Conclusions: This evaluation of the outcomes of a graduate certificate program providing training in translational research highlights the need for more community-oriented and practice-based measures of success. Encouraging practitioner involvement in translational research is vital to translate knowledge into practice and to enable practice-based needs to inform research and policy. A more flexible approach to measuring programmatic success in research training programs can help bridge the knowledge translation gap |
Salinas-Miranda, Abraham; King, Lindsey M; Salihu, Hamisu M; Berry, Estrellita; Austin, Deborah; Nash, Susan; Scarborough, Kenneth; Best, Evangeline; Cox, Lillian; King, Georgette; Hepburn, Carrie; Burpee, Conchita; Richardson, Eugene; Ducket, Marlo; Briscoe, Richard; Baldwin, Julie A Exploring the life course perspective in maternal and child health through community-based participatory focus groups: Social risk assessment Journal Article Journal of Health Disparities Research and Practice, 10 (1), pp. 143-166, 2017. @article{Salinas-Miranda2017, title = {Exploring the life course perspective in maternal and child health through community-based participatory focus groups: Social risk assessment}, author = {Abraham Salinas-Miranda and Lindsey M King and Hamisu M Salihu and Estrellita Berry and Deborah Austin and Susan Nash and Kenneth Scarborough and Evangeline Best and Lillian Cox and Georgette King and Carrie Hepburn and Conchita Burpee and Eugene Richardson and Marlo Ducket and Richard Briscoe and Julie A Baldwin}, url = {https://digitalscholarship.unlv.edu/jhdrp/vol10/iss1/9/}, year = {2017}, date = {2017-04-20}, journal = {Journal of Health Disparities Research and Practice}, volume = {10}, number = {1}, pages = {143-166}, abstract = {Little is known about the patterns of risk factors experienced by communities of color and how diverse community contexts shape the health trajectory of women from the early childhood period to the time of their pregnancies. Thus, we conducted a focus group study to identify social risks over the life course that contribute to maternal and child health from the perspective of community members residing in low income urban areas. Ten community-based participatory focus groups were conducted with residents from selected communities in Tampa, Florida, from September to November 2013. We used the life course perspective to illuminate and explain the experiences reported by the interviewees. A total of 78 residents participated in the focus groups. Children and adolescents’ health risks were childhood obesity, lack of physical activity, and low self-esteem. Women’s health risks were low self-esteem, low educational level, low health literacy, inadequate parenting skills, and financial problems. Risks during pregnancy included stress, low self-esteem, inadequate eating patterns, lack of physical activity, healthcare issues, lack of social support, and lack of father involvement during pregnancy. Multiple risk factors contribute to maternal and child health in low income communities in Tampa Bay. The intersection of risk factors in different life periods suggest possible pathways, cumulative, and latent effects, which must be considered in future longitudinal studies and when developing effective maternal and child health programs and policies.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Little is known about the patterns of risk factors experienced by communities of color and how diverse community contexts shape the health trajectory of women from the early childhood period to the time of their pregnancies. Thus, we conducted a focus group study to identify social risks over the life course that contribute to maternal and child health from the perspective of community members residing in low income urban areas. Ten community-based participatory focus groups were conducted with residents from selected communities in Tampa, Florida, from September to November 2013. We used the life course perspective to illuminate and explain the experiences reported by the interviewees. A total of 78 residents participated in the focus groups. Children and adolescents’ health risks were childhood obesity, lack of physical activity, and low self-esteem. Women’s health risks were low self-esteem, low educational level, low health literacy, inadequate parenting skills, and financial problems. Risks during pregnancy included stress, low self-esteem, inadequate eating patterns, lack of physical activity, healthcare issues, lack of social support, and lack of father involvement during pregnancy. Multiple risk factors contribute to maternal and child health in low income communities in Tampa Bay. The intersection of risk factors in different life periods suggest possible pathways, cumulative, and latent effects, which must be considered in future longitudinal studies and when developing effective maternal and child health programs and policies. |
Williamson, Heather J; Perkins, Elizabeth A; Levin, Bruce L; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Massey, Oliver T Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas Journal Article Intellectual and Developmental Disabilities, 55 (2), pp. 84-96, 2017. @article{Williamson2017b, title = {Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas}, author = {Heather J Williamson and Elizabeth A Perkins and Bruce L Levin and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Oliver T Massey}, url = {http://www.aaiddjournals.org/doi/10.1352/1934-9556-55.2.84}, year = {2017}, date = {2017-04-01}, journal = {Intellectual and Developmental Disabilities}, volume = {55}, number = {2}, pages = {84-96}, abstract = {Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is limited evidence of MLTSS effectiveness. This study's objective was to contribute to the growing MLTSS research literature by describing MLTSS implementation in Kansas for adults with IDD. Thirty-one stakeholders completed in-depth semi-structured interviews, representing state or regional groups, service coordination providers, and family caregivers. Findings identify key aspects of the Centers for Medicare and Medicaid Services' new MLTSS regulations in the design and implementation of MLTSS programs.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Many adults with intellectual and/or developmental disabilities (IDD) can access health and long-term services and supports (LTSS) through Medicaid. States are reforming their Medicaid LTSS programs from a fee-for-service model to a Medicaid managed LTSS (MLTSS) approach, anticipating improved quality of care and reduced costs, although there is limited evidence of MLTSS effectiveness. This study's objective was to contribute to the growing MLTSS research literature by describing MLTSS implementation in Kansas for adults with IDD. Thirty-one stakeholders completed in-depth semi-structured interviews, representing state or regional groups, service coordination providers, and family caregivers. Findings identify key aspects of the Centers for Medicare and Medicaid Services' new MLTSS regulations in the design and implementation of MLTSS programs. |
Panzera, Anthony D; Bryant, Carol A; Hawkins, Fran; Goff, Rhonda; Napier, Ashley; Schneider, Tali; Kirby, Russell S; Coulter, Martha L; Sappenfield, William M; Baldwin, Julie A; O'Rourke, Kathleen Mapping a WIC Mother's Journey: A preliminary analysis Journal Article Social Marketing Quarterly, 23 (2), pp. 1-17, 2017. @article{Panzera2017, title = {Mapping a WIC Mother's Journey: A preliminary analysis}, author = {Anthony D Panzera and Carol A Bryant and Fran Hawkins and Rhonda Goff and Ashley Napier and Tali Schneider and Russell S Kirby and Martha L Coulter and William M Sappenfield and Julie A Baldwin and Kathleen O'Rourke}, url = {http://journals.sagepub.com/doi/full/10.1177/1524500417692526}, year = {2017}, date = {2017-02-21}, journal = {Social Marketing Quarterly}, volume = {23}, number = {2}, pages = {1-17}, abstract = {While the Special Supplemental Nutrition Program for Women, Infants, and Children (WIC) provides numerous benefits to many enrolled families across the United States, including access to nutritious foods, some recent drops in maternal participation in Kentucky resulted from failures to retrieve those benefits. We explored perceived benefits of and encountered barriers to food benefit retrieval. Journey mapping included direct observations of client appointments, clinic lobby areas, and a shopping experience and was augmented with focus groups conducted in two urban and two rural areas. Major touchpoints before WIC appointments, during those appointments at clinics, and after appointments when redeeming food benefits were identified. Across touchpoints, mothers identified childcare, transportation issues, long waits, confusion regarding eligibility, problems scheduling appointments, and stigma as barriers to their ability to retrieve food instruments. Despite these barriers mothers value the benefits of WIC, especially access to healthy foods, infant formula, and nutrition education. This work demonstrates a method by which WIC mothers’ experiences shed light on client service shortfalls and possible opportunities to improve client services.}, keywords = {}, pubstate = {published}, tppubtype = {article} } While the Special Supplemental Nutrition Program for Women, Infants, and Children (WIC) provides numerous benefits to many enrolled families across the United States, including access to nutritious foods, some recent drops in maternal participation in Kentucky resulted from failures to retrieve those benefits. We explored perceived benefits of and encountered barriers to food benefit retrieval. Journey mapping included direct observations of client appointments, clinic lobby areas, and a shopping experience and was augmented with focus groups conducted in two urban and two rural areas. Major touchpoints before WIC appointments, during those appointments at clinics, and after appointments when redeeming food benefits were identified. Across touchpoints, mothers identified childcare, transportation issues, long waits, confusion regarding eligibility, problems scheduling appointments, and stigma as barriers to their ability to retrieve food instruments. Despite these barriers mothers value the benefits of WIC, especially access to healthy foods, infant formula, and nutrition education. This work demonstrates a method by which WIC mothers’ experiences shed light on client service shortfalls and possible opportunities to improve client services. |
Davis, Jenna L; McGinnis, Kara E; Walsh, Margaret L; Williams, Coni; Sneed, Kevin B; Baldwin, Julie A; Green, Lee B An Innovative Approach for Community Engagement: Using an Audience Response System Journal Article Journal of Health Disparities Research and Practice, 5 (2), pp. 1, 2017. @article{Davis2017, title = {An Innovative Approach for Community Engagement: Using an Audience Response System}, author = {Jenna L Davis and Kara E McGinnis and Margaret L Walsh and Coni Williams and Kevin B Sneed and Julie A Baldwin and Lee B Green}, url = {https://www.ncbi.nlm.nih.gov/pubmed/23302776}, year = {2017}, date = {2017-01-01}, journal = {Journal of Health Disparities Research and Practice}, volume = {5}, number = {2}, pages = {1}, abstract = {Community-based participatory research methods allow for community engagement in the effort to reduce cancer health disparities. Community engagement involves health professionals becoming a part of the community in order to build trust, learn from the community and empower them to reduce disparities through their own initiatives and ideas. Audience Response Systems (ARS) are an innovative and engaging way to involve the community and obtain data for research purposes using keypads to report results via power point. The use of ARS within communities is very limited and serves to widen the disparity gap by not delivering new advances in medical knowledge and technology among all population groups. ARS was implemented at a community town hall event sponsored by a National Institute on Minority Health and Health Disparities Exploratory Center of Excellence, the Center for Equal Health. Participants appreciated being able to see how everyone else answered and felt included in the research process. ARS is beneficial because the community can answer truthfully and provides instant research results. Additionally, researchers can collect large amounts of data quickly, in a non-threatening way while tracking individual responses anonymously. Audience Response Systems proved to be an effective tool for successfully accomplishing community-based participatory research.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Community-based participatory research methods allow for community engagement in the effort to reduce cancer health disparities. Community engagement involves health professionals becoming a part of the community in order to build trust, learn from the community and empower them to reduce disparities through their own initiatives and ideas. Audience Response Systems (ARS) are an innovative and engaging way to involve the community and obtain data for research purposes using keypads to report results via power point. The use of ARS within communities is very limited and serves to widen the disparity gap by not delivering new advances in medical knowledge and technology among all population groups. ARS was implemented at a community town hall event sponsored by a National Institute on Minority Health and Health Disparities Exploratory Center of Excellence, the Center for Equal Health. Participants appreciated being able to see how everyone else answered and felt included in the research process. ARS is beneficial because the community can answer truthfully and provides instant research results. Additionally, researchers can collect large amounts of data quickly, in a non-threatening way while tracking individual responses anonymously. Audience Response Systems proved to be an effective tool for successfully accomplishing community-based participatory research. |
2016 |
Bleck, Jennifer; DeBate, Rita; Levin, Bruce Lubotsky; Baldwin, Julie A Underlying mechanisms and trajectory of comorbid ADHD and eating disorders: Proposing an integrative systems framework for informing research Journal Article International Journal of Mental Health and Addiction, 14 (4), pp. 449-458, 2016. @article{Bleck2016, title = {Underlying mechanisms and trajectory of comorbid ADHD and eating disorders: Proposing an integrative systems framework for informing research}, author = {Jennifer Bleck and Rita DeBate and Bruce Lubotsky Levin and Julie A Baldwin}, url = {https://link.springer.com/article/10.1007/s11469-015-9593-7}, doi = {10.1007/s11469-015-9593-7}, year = {2016}, date = {2016-08-01}, journal = {International Journal of Mental Health and Addiction}, volume = {14}, number = {4}, pages = {449-458}, abstract = {ADHD and eating disorders are both significant public health issues. Emerging evidence suggests that ADHD and eating disorders may be comorbid resulting in increased severity of associated health issues. Although several hypotheses have been proposed with respect to the underlying mechanisms of the comorbidity, there is a need for a conceptual model, which presents the simultaneous investigation of the trajectory of onset and multiple hypotheses. The current paper proposes an innovative conceptual model that can be used to simultaneously explore hypothesized underlying mechanisms by triangulating current literature with aspects of the biopsychosocial model, life course approach, Risk Regulator Framework, research domain criteria matrix, and the person-environment transaction theory. Designated within the model are proposed pathways that serve to describe how various psychosocial and psychiatric risk regulators and genetic risk factors combine to influence the comorbidity across the lifespan. The proposed conceptual model can provide the foundation for further research regarding comorbid ADHD and eating disorders in addition to translation for use among other comorbid conditions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } ADHD and eating disorders are both significant public health issues. Emerging evidence suggests that ADHD and eating disorders may be comorbid resulting in increased severity of associated health issues. Although several hypotheses have been proposed with respect to the underlying mechanisms of the comorbidity, there is a need for a conceptual model, which presents the simultaneous investigation of the trajectory of onset and multiple hypotheses. The current paper proposes an innovative conceptual model that can be used to simultaneously explore hypothesized underlying mechanisms by triangulating current literature with aspects of the biopsychosocial model, life course approach, Risk Regulator Framework, research domain criteria matrix, and the person-environment transaction theory. Designated within the model are proposed pathways that serve to describe how various psychosocial and psychiatric risk regulators and genetic risk factors combine to influence the comorbidity across the lifespan. The proposed conceptual model can provide the foundation for further research regarding comorbid ADHD and eating disorders in addition to translation for use among other comorbid conditions. |
Cragun, Deborah; Pal, Tuya; Vadaparampil, Susan T; Baldwin, Julie A; Hampel, Heather; DeBate, Rita D Qualitative Comparative Analysis: A Hybrid Method for Identifying Factors Associated with Program Effectiveness Journal Article Journal of Mixed Methods Research, 10 (3), pp. 251-272, 2016, ISBN: 1558-6898. @article{Cragun2016, title = {Qualitative Comparative Analysis: A Hybrid Method for Identifying Factors Associated with Program Effectiveness}, author = {Deborah Cragun and Tuya Pal and Susan T Vadaparampil and Julie A Baldwin and Heather Hampel and Rita D DeBate}, url = {http://journals.sagepub.com/doi/abs/10.1177/1558689815572023}, isbn = {1558-6898}, year = {2016}, date = {2016-07-01}, journal = {Journal of Mixed Methods Research}, volume = {10}, number = {3}, pages = {251-272}, abstract = {Qualitative comparative analysis (QCA) was developed over 25 years ago to bridge the qualitative and quantitative research gap. On searching PubMed and the Journal of Mixed Methods Research, this review identified 30 original research studies that used QCA. Perceptions that QCA is complex and provides few relative advantages over other methods may be limiting QCA adoption. Thus, to overcome these perceptions, this article demonstrates how to perform QCA using data from 15 institutions that implemented universal tumor screening programs to identify patients at high risk for hereditary colorectal cancer. In this example, QCA revealed a combination of conditions unique to effective universal tumor screening programs. Results informed additional research and provided a model for improving patient follow-through after a positive screen.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Qualitative comparative analysis (QCA) was developed over 25 years ago to bridge the qualitative and quantitative research gap. On searching PubMed and the Journal of Mixed Methods Research, this review identified 30 original research studies that used QCA. Perceptions that QCA is complex and provides few relative advantages over other methods may be limiting QCA adoption. Thus, to overcome these perceptions, this article demonstrates how to perform QCA using data from 15 institutions that implemented universal tumor screening programs to identify patients at high risk for hereditary colorectal cancer. In this example, QCA revealed a combination of conditions unique to effective universal tumor screening programs. Results informed additional research and provided a model for improving patient follow-through after a positive screen. |
Wheldon, Christopher W; Daley, Ellen M; Walsh-Buhi, Eric R; Baldwin, Julie A; Nyitray, Alan G; Giuliano, Anna R An Integrative Theoretical Framework for HPV Vaccine Promotion Among Male Sexual Minorities Journal Article American Journal of Men's Health, pp. 1-12, 2016. @article{Wheldon2016, title = {An Integrative Theoretical Framework for HPV Vaccine Promotion Among Male Sexual Minorities}, author = {Christopher W Wheldon and Ellen M Daley and Eric R Walsh-Buhi and Julie A Baldwin and Alan G Nyitray and Anna R Giuliano}, url = {https://www.ncbi.nlm.nih.gov/pubmed/27272241}, doi = {10.1177/1557988316652937}, year = {2016}, date = {2016-06-06}, journal = {American Journal of Men's Health}, pages = {1-12}, abstract = {The objective of the current study was to quantify the behavioral intentions of young adult male sexual minorities (MSM) to initiate human papillomavirus (HPV) vaccination and test an integrative model of HPV vaccine decision making. Participants were 575 MSM who were residing in the United States and were between ages 18 and 26 years. Standard direct and indirect measures of attitudes, perceived norms, and perceived behavioral control were employed to explain variation in behavioral intention. Additional background factors-such as concealment of one's sexual identity, suspicion of health care provider competence in LGBT health issues, perceived threat, and information orientation-were also included in the model. The final model fit the data well and identified a set of salient attitudinal and control beliefs as the strongest determinants of intention (R2 = .38). Perceived threat and information orientation were positively correlated with HPV-related beliefs. Perceived threat was higher among men infected with HIV and lower among men in monogamous relationships. Self-efficacy, as an indirect measure of perceived behavioral control, was inversely related to the general tendency to conceal aspects of one's sexual orientation and a suspicion of health care providers. Bisexual identified men were more likely to conceal their sexual orientation and be more suspicious of health care providers. In this study, a number of modifiable determinants of HPV vaccine intentions-both psychosocial and environmental-were identified and have implications for targeted and tailored behavioral interventions to promote HPV vaccination among MSM.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The objective of the current study was to quantify the behavioral intentions of young adult male sexual minorities (MSM) to initiate human papillomavirus (HPV) vaccination and test an integrative model of HPV vaccine decision making. Participants were 575 MSM who were residing in the United States and were between ages 18 and 26 years. Standard direct and indirect measures of attitudes, perceived norms, and perceived behavioral control were employed to explain variation in behavioral intention. Additional background factors-such as concealment of one's sexual identity, suspicion of health care provider competence in LGBT health issues, perceived threat, and information orientation-were also included in the model. The final model fit the data well and identified a set of salient attitudinal and control beliefs as the strongest determinants of intention (R2 = .38). Perceived threat and information orientation were positively correlated with HPV-related beliefs. Perceived threat was higher among men infected with HIV and lower among men in monogamous relationships. Self-efficacy, as an indirect measure of perceived behavioral control, was inversely related to the general tendency to conceal aspects of one's sexual orientation and a suspicion of health care providers. Bisexual identified men were more likely to conceal their sexual orientation and be more suspicious of health care providers. In this study, a number of modifiable determinants of HPV vaccine intentions-both psychosocial and environmental-were identified and have implications for targeted and tailored behavioral interventions to promote HPV vaccination among MSM. |
Maness, Sarah B; Buhi, Eric R; Daley, Ellen M; Baldwin, Julie A; Kromrey, Jeffrey D Social Determinants of Health and Adolescent Pregnancy: An Analysis From the National Longitudinal Study of Adolescent to Adult Health Journal Article Journal of Adolescent Health, 58 (6), pp. 636-643, 2016. @article{Maness2016, title = {Social Determinants of Health and Adolescent Pregnancy: An Analysis From the National Longitudinal Study of Adolescent to Adult Health}, author = {Sarah B Maness and Eric R Buhi and Ellen M Daley and Julie A Baldwin and Jeffrey D Kromrey}, url = {https://www.ncbi.nlm.nih.gov/pubmed/27020277}, doi = {10.1016/j.jadohealth.2016.02.006}, year = {2016}, date = {2016-06-01}, journal = {Journal of Adolescent Health}, volume = {58}, number = {6}, pages = {636-643}, abstract = {PURPOSE: Although rates of adolescent pregnancy are at an all-time low in the United States, racial/ethnic and geographic disparities persist. This research used National Longitudinal Study of Adolescent to Adult Health (Add Health) data to analyze empirical relationships between social determinants of health (SDoH) and adolescent pregnancy. Examining relationships between the SDoH and adolescent pregnancy provides support for funding priorities and interventions that expand on the current focus on individual and interpersonal-level factors. METHODS: On the basis of the Healthy People 2020 Social Determinants of Health Framework, the identification of proxy measures for SDoH within the Add Health study allowed for an analysis of relationships to adolescent pregnancy (N = 9,204). Logistic regression examined associations between adolescent pregnancy and each measure of SDoH. RESULTS: Results indicated that 6 of 17 measures of SDoH had an empirical relationship with adolescent pregnancy. Measures negatively associated with adolescent pregnancy included the following: feeling close to others at school, receipt of high school diploma, enrollment in higher education, participation in volunteering or community service, reporting litter or trash in the neighborhood environment as a big problem, and living in a two-parent home. CONCLUSIONS: Findings from this study support the need for increased research and intervention focus in SDoH related to areas of education and social and community context. Results of this study provide information for the allocation of resources to best address SDoH that show a link with adolescent pregnancy. Areas of future research can further explore the areas in which SDoH show a relationship with adolescent pregnancy.}, keywords = {}, pubstate = {published}, tppubtype = {article} } PURPOSE: Although rates of adolescent pregnancy are at an all-time low in the United States, racial/ethnic and geographic disparities persist. This research used National Longitudinal Study of Adolescent to Adult Health (Add Health) data to analyze empirical relationships between social determinants of health (SDoH) and adolescent pregnancy. Examining relationships between the SDoH and adolescent pregnancy provides support for funding priorities and interventions that expand on the current focus on individual and interpersonal-level factors. METHODS: On the basis of the Healthy People 2020 Social Determinants of Health Framework, the identification of proxy measures for SDoH within the Add Health study allowed for an analysis of relationships to adolescent pregnancy (N = 9,204). Logistic regression examined associations between adolescent pregnancy and each measure of SDoH. RESULTS: Results indicated that 6 of 17 measures of SDoH had an empirical relationship with adolescent pregnancy. Measures negatively associated with adolescent pregnancy included the following: feeling close to others at school, receipt of high school diploma, enrollment in higher education, participation in volunteering or community service, reporting litter or trash in the neighborhood environment as a big problem, and living in a two-parent home. CONCLUSIONS: Findings from this study support the need for increased research and intervention focus in SDoH related to areas of education and social and community context. Results of this study provide information for the allocation of resources to best address SDoH that show a link with adolescent pregnancy. Areas of future research can further explore the areas in which SDoH show a relationship with adolescent pregnancy. |
Wheldon, Christopher W; Daley, Ellen M; Buhi, Eric R; Baldwin, Julie A; Nyitray, Alan G; Giuliano, Anna R HPV vaccine decision-making among young men who have sex with men. Health Education Journal Journal Article Health Education Journal, 76 (1), pp. 52-65, 2016. @article{Wheldon2016b, title = {HPV vaccine decision-making among young men who have sex with men. Health Education Journal}, author = {Christopher W Wheldon and Ellen M Daley and Eric R Buhi and Julie A Baldwin and Alan G Nyitray and Anna R Giuliano}, url = {http://journals.sagepub.com/doi/full/10.1177/0017896916647988}, doi = {10.1177/0017896916647988}, year = {2016}, date = {2016-05-31}, journal = {Health Education Journal}, volume = {76}, number = {1}, pages = {52-65}, abstract = {Objective: Human papilloma virus (HPV) vaccination is recommended for all men who have sex with men (MSM) in the USA until the age of 26 years. Despite this recommendation, vaccine uptake remains low. The purpose of this study was to (1) describe salient beliefs related to HPV vaccination among young MSM; (2) determine factors that underlie these beliefs; and (3) describe a model for HPV vaccine decision-making. Design: Qualitative descriptive study. Setting: Central Florida, USA. Methods: Semi-structured interviews (N = 22). Results: The majority of respondents had heard of the HPV vaccine, but generally perceived HPV as a women’s health issue. Salient behavioural beliefs about HPV vaccination described physical (such as lowering risk and promoting overall health) and psychological benefits (such as protecting sex partners and providing peace of mind). There was some concern regarding the risks of vaccination including contracting HPV from the vaccine, not knowing if it would be effective, and side effects. Normative influences on decision-making were minimal. Availability, cost and convenience were among the most salient external control factors discussed. Issues surrounding disclosure of sexual orientation, as well as the competence and sensitivity of healthcare providers in dealing with issues of sexuality, were key factors in HPV-related beliefs. Conclusion: Addressing the specific beliefs and concerns expressed by MSM can help to improve the effectiveness of health education interventions promoting vaccination.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Objective: Human papilloma virus (HPV) vaccination is recommended for all men who have sex with men (MSM) in the USA until the age of 26 years. Despite this recommendation, vaccine uptake remains low. The purpose of this study was to (1) describe salient beliefs related to HPV vaccination among young MSM; (2) determine factors that underlie these beliefs; and (3) describe a model for HPV vaccine decision-making. Design: Qualitative descriptive study. Setting: Central Florida, USA. Methods: Semi-structured interviews (N = 22). Results: The majority of respondents had heard of the HPV vaccine, but generally perceived HPV as a women’s health issue. Salient behavioural beliefs about HPV vaccination described physical (such as lowering risk and promoting overall health) and psychological benefits (such as protecting sex partners and providing peace of mind). There was some concern regarding the risks of vaccination including contracting HPV from the vaccine, not knowing if it would be effective, and side effects. Normative influences on decision-making were minimal. Availability, cost and convenience were among the most salient external control factors discussed. Issues surrounding disclosure of sexual orientation, as well as the competence and sensitivity of healthcare providers in dealing with issues of sexuality, were key factors in HPV-related beliefs. Conclusion: Addressing the specific beliefs and concerns expressed by MSM can help to improve the effectiveness of health education interventions promoting vaccination. |
Young, Belinda-Rose; Desmarais, Sarah L; Baldwin, Julie A; Chandler, Rasheeta Sexual Coercion Practices Among Undergraduate Male Recreational Athletes, Intercollegiate Athletes, and Non-Athletes Journal Article Violence Against Women, 23 (7), pp. 795-812, 2016. @article{Young2016, title = {Sexual Coercion Practices Among Undergraduate Male Recreational Athletes, Intercollegiate Athletes, and Non-Athletes}, author = {Belinda-Rose Young and Sarah L Desmarais and Julie A Baldwin and Rasheeta Chandler}, url = {https://www.ncbi.nlm.nih.gov/pubmed/27247201}, doi = {10.1177/1077801216651339}, year = {2016}, date = {2016-05-30}, journal = {Violence Against Women}, volume = {23}, number = {7}, pages = {795-812}, abstract = {Prior research shows that male intercollegiate athletes are at risk for perpetrating sexual violence. Whether this risk extends to male recreational athletes has not been explored. This study assessed associations between attitudes toward women, rape myth acceptance, and prevalence of sexual coercion among 379 male, undergraduate recreational and intercollegiate athletes and non-athletes. Our analyses showed significant differences between the responses of athletes and non-athletes for all dependent variables, and intercollegiate and recreational athletes on attitudes toward women and the prevalence of sexual coercion. Controlling for rape myth acceptance and traditional gender role attitudes eliminated differences between athletes and non-athletes in prevalence of sexual coercion.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Prior research shows that male intercollegiate athletes are at risk for perpetrating sexual violence. Whether this risk extends to male recreational athletes has not been explored. This study assessed associations between attitudes toward women, rape myth acceptance, and prevalence of sexual coercion among 379 male, undergraduate recreational and intercollegiate athletes and non-athletes. Our analyses showed significant differences between the responses of athletes and non-athletes for all dependent variables, and intercollegiate and recreational athletes on attitudes toward women and the prevalence of sexual coercion. Controlling for rape myth acceptance and traditional gender role attitudes eliminated differences between athletes and non-athletes in prevalence of sexual coercion. |
Burton, Donna L; Lubotsky, Bruce; Massey, LevinTom; Baldwin, Julie A; Williamson, Heather J Innovative Graduate Research Education for Advancement of Implementation Science in Adolescent Behavioral Health Journal Article Journal of Behavioral Health Services and Research, 43 (2), pp. 172-186, 2016. @article{Burton2016, title = {Innovative Graduate Research Education for Advancement of Implementation Science in Adolescent Behavioral Health}, author = {Donna L Burton and Bruce Lubotsky and LevinTom Massey and Julie A Baldwin and Heather J Williamson}, url = {https://www.ncbi.nlm.nih.gov/pubmed/26746638}, doi = {10.1007/s11414-015-9494-3}, year = {2016}, date = {2016-04-01}, journal = {Journal of Behavioral Health Services and Research}, volume = {43}, number = {2}, pages = {172-186}, abstract = {An innovative approach to research education that integrates the theory and principles of implementation science, participatory research, and service learning in the area of adolescent behavioral health is presented. Qualitative interviews and surveys of program participants have been conducted to assess the program's curricula, service-learning partnerships, student (scholar) satisfaction, and views of community partnerships and academic mentors. The Institute has experienced the successful completion of its first and second cohorts and enrollment of a third cohort of scholars. Community partners are utilizing results of service-learning projects to influence agency operations. Institute scholars have identified research and service learning experiences as key factors in the decision to apply to the Institute graduate certificate program. The availability of tuition support is identified as valuable but not ranked as the most important reason for scholar interest in the program. Academic mentors report positive relationships with community agencies. Future iterations of the program will expand options for distance learning and alternatives to traditional graduate education for community-based scholars. Community partner agency capacity for participation is expected to change over time. Methods are being identified to both sustain existing partnerships and develop new community partnership relationships.}, keywords = {}, pubstate = {published}, tppubtype = {article} } An innovative approach to research education that integrates the theory and principles of implementation science, participatory research, and service learning in the area of adolescent behavioral health is presented. Qualitative interviews and surveys of program participants have been conducted to assess the program's curricula, service-learning partnerships, student (scholar) satisfaction, and views of community partnerships and academic mentors. The Institute has experienced the successful completion of its first and second cohorts and enrollment of a third cohort of scholars. Community partners are utilizing results of service-learning projects to influence agency operations. Institute scholars have identified research and service learning experiences as key factors in the decision to apply to the Institute graduate certificate program. The availability of tuition support is identified as valuable but not ranked as the most important reason for scholar interest in the program. Academic mentors report positive relationships with community agencies. Future iterations of the program will expand options for distance learning and alternatives to traditional graduate education for community-based scholars. Community partner agency capacity for participation is expected to change over time. Methods are being identified to both sustain existing partnerships and develop new community partnership relationships. |
Williamson, Heather J; Young, Belinda-Rose; Murray, Nichole; Burton, Donna L; Levin, Bruce Lubotsky; Massey, Oliver Tom; Baldwin, Julie A Community-university partnerships for research and practice: Application of an interactive and contextual model of collaboration Journal Article Journal of Higher Education Outreach and Engagement, 20 (2), pp. 55-84, 2016, ISSN: 1534-6104. @article{Williamson2016b, title = {Community-university partnerships for research and practice: Application of an interactive and contextual model of collaboration}, author = {Heather J Williamson and Belinda-Rose Young and Nichole Murray and Donna L Burton and Bruce Lubotsky Levin and Oliver Tom Massey and Julie A Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5295659/}, issn = {1534-6104}, year = {2016}, date = {2016-01-01}, journal = {Journal of Higher Education Outreach and Engagement}, volume = {20}, number = {2}, pages = {55-84}, abstract = {Community–university partnerships are frequently used to enhance translational research efforts while benefiting the community. However, challenges remain in evaluating such efforts. This article discusses the utility of applying the contextual and interactive model of community–university collaboration to a translational research education program, the Institute for Translational Research in adolescent Behavioral Health, to guide programmatic efforts and future evaluations. Institute stakeholders from academia and the community completed in-depth interviews querying their expectations and experiences in this collaboration. Key quotes and themes were extracted and analyzed based on the constructs within the 3 phases of the model. The findings note specific themes for future valuations. Overall, the contextual and interactive model of community–university collaboration proved a useful framework to guide the process evaluation of the Institute. Findings suggest possible strategies for the successful development, evaluation, and sustainability of community–university partnerships.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Community–university partnerships are frequently used to enhance translational research efforts while benefiting the community. However, challenges remain in evaluating such efforts. This article discusses the utility of applying the contextual and interactive model of community–university collaboration to a translational research education program, the Institute for Translational Research in adolescent Behavioral Health, to guide programmatic efforts and future evaluations. Institute stakeholders from academia and the community completed in-depth interviews querying their expectations and experiences in this collaboration. Key quotes and themes were extracted and analyzed based on the constructs within the 3 phases of the model. The findings note specific themes for future valuations. Overall, the contextual and interactive model of community–university collaboration proved a useful framework to guide the process evaluation of the Institute. Findings suggest possible strategies for the successful development, evaluation, and sustainability of community–university partnerships. |
2015 |
Young, Belinda-Rose; Williamson, Heather J; Burton, Donna L; Massey, Oliver Thomas; Levin, Bruce Lubotsky; Baldwin, Julie A Challenges and Benefits in Designing and Implementing a Team-Based Research Mentorship Experience in Translational Research Journal Article Pedagogy in Health Promotion, 1 (4), pp. 233-246, 2015. @article{Young2015, title = {Challenges and Benefits in Designing and Implementing a Team-Based Research Mentorship Experience in Translational Research}, author = {Belinda-Rose Young and Heather J Williamson and Donna L Burton and Oliver Thomas Massey and Bruce Lubotsky Levin and Julie A Baldwin}, url = {http://journals.sagepub.com/doi/10.1177/2373379915600174}, doi = {10.1177/2373379915600174}, year = {2015}, date = {2015-12-01}, journal = {Pedagogy in Health Promotion}, volume = {1}, number = {4}, pages = {233-246}, abstract = {BACKGROUND: Translational research seeks to build bridges between research and practice to address public health issues efficiently and effectively. The purpose of this paper was to evaluate a newly formed Institute that provided graduate students and adolescent behavioral health community professionals with a translational research service-learning opportunity through the creation of a community-university mentoring partnership. Goals of the team-based research mentorship approach included: 1) providing students the skills for implementing translational research; 2) providing research opportunities for community agencies to enhance operations and to encourage ongoing research involvement; and 3) developing relationships between university faculty and community agency professionals for further research collaborations. METHODS: The Institute used the National Institute on Drug Abuse's Mentoring Mosaic to select a diverse group of Community and Academic Mentors. The research mentorship experience of the initial cohort was evaluated based upon the Research Mentorship Conceptual Framework and Self-Assessment Tool. RESULTS: As a direct result of the research mentorship, outcomes for the Academic and Community Mentors and Scholars (i.e., those seeking a graduate certificate) included improved working relationships/networking and research experience. Through experiential learning, Scholars also discovered career trajectory clarity, the need for community collaboration in research, opportunities for continuing professional development, a greater understanding of public health competencies and how they align with community-based research, and skill development in best practices for translational research. CONCLUSION: The team mentoring approach is a form of pedagogy that holds promise to enhance translational research and community-based research efforts while developing public health competencies.}, keywords = {}, pubstate = {published}, tppubtype = {article} } BACKGROUND: Translational research seeks to build bridges between research and practice to address public health issues efficiently and effectively. The purpose of this paper was to evaluate a newly formed Institute that provided graduate students and adolescent behavioral health community professionals with a translational research service-learning opportunity through the creation of a community-university mentoring partnership. Goals of the team-based research mentorship approach included: 1) providing students the skills for implementing translational research; 2) providing research opportunities for community agencies to enhance operations and to encourage ongoing research involvement; and 3) developing relationships between university faculty and community agency professionals for further research collaborations. METHODS: The Institute used the National Institute on Drug Abuse's Mentoring Mosaic to select a diverse group of Community and Academic Mentors. The research mentorship experience of the initial cohort was evaluated based upon the Research Mentorship Conceptual Framework and Self-Assessment Tool. RESULTS: As a direct result of the research mentorship, outcomes for the Academic and Community Mentors and Scholars (i.e., those seeking a graduate certificate) included improved working relationships/networking and research experience. Through experiential learning, Scholars also discovered career trajectory clarity, the need for community collaboration in research, opportunities for continuing professional development, a greater understanding of public health competencies and how they align with community-based research, and skill development in best practices for translational research. CONCLUSION: The team mentoring approach is a form of pedagogy that holds promise to enhance translational research and community-based research efforts while developing public health competencies. |
Walsh, Margaret L; Baldwin, Julie A AMERICAN INDIAN SUBSTANCE ABUSE PREVENTION EFFORTS: A REVIEW OF PROGRAMS, 2003-2013 Journal Article American Indian and Alaska Native Mental Health Research, 22 (2), pp. 41-68, 2015. @article{Walsh2015, title = {AMERICAN INDIAN SUBSTANCE ABUSE PREVENTION EFFORTS: A REVIEW OF PROGRAMS, 2003-2013}, author = {Margaret L Walsh and Julie A Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pubmed/26053884}, doi = {10.5820/aian.2202.2015.41}, year = {2015}, date = {2015-11-02}, journal = {American Indian and Alaska Native Mental Health Research}, volume = {22}, number = {2}, pages = {41-68}, abstract = {The purpose of the review was to assess substance abuse prevention (SAP) efforts in American Indian and Alaska Native (AI/AN) communities from 2003-2013. In the past, many SAP programs were unable to meet the unique cultural needs of AI/AN communities adequately. It has been suggested that a disconnect may exist between the theories that are used to guide development of prevention programs in AI/AN communities and culturally appropriate theoretical constructs of AI/AN worldviews. To explore this possible disconnect further, Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to assess a total of 18 articles (N = 31 programs) on program location and method, participant characteristics, described program cultural elements, use of theory, program outcomes, program measures, and future recommendations. Results indicated that SAP programs in AI/AN communities vary widely in their use of theory, implementation strategies, view and definition of cultural constructs, overall evaluational rigor, and reporting methods. Future research is needed to integrate appropriate theory and cultural elements into SAP programs to tie them to measurable outcomes for AI/AN communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The purpose of the review was to assess substance abuse prevention (SAP) efforts in American Indian and Alaska Native (AI/AN) communities from 2003-2013. In the past, many SAP programs were unable to meet the unique cultural needs of AI/AN communities adequately. It has been suggested that a disconnect may exist between the theories that are used to guide development of prevention programs in AI/AN communities and culturally appropriate theoretical constructs of AI/AN worldviews. To explore this possible disconnect further, Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to assess a total of 18 articles (N = 31 programs) on program location and method, participant characteristics, described program cultural elements, use of theory, program outcomes, program measures, and future recommendations. Results indicated that SAP programs in AI/AN communities vary widely in their use of theory, implementation strategies, view and definition of cultural constructs, overall evaluational rigor, and reporting methods. Future research is needed to integrate appropriate theory and cultural elements into SAP programs to tie them to measurable outcomes for AI/AN communities. |
Salinas-Miranda, Abraham A; Salemi, Jason L; King, Lindsey M; Baldwin, Julie A; Berry, Estrellita “Lo”; Austin, Deborah A; Scarborough, Kenneth; Spooner, Kiara K; Zoorob, Roger J; Salihu, Hamisu M Adverse childhood experiences and health-related quality of life in adulthood: revelations from a community needs assessment Journal Article Health and Quality of Life Outcomes, 13 (123), pp. 1-12, 2015. @article{Salinas-Miranda2015, title = {Adverse childhood experiences and health-related quality of life in adulthood: revelations from a community needs assessment}, author = {Abraham A Salinas-Miranda and Jason L Salemi and Lindsey M King and Julie A Baldwin and Estrellita “Lo” Berry and Deborah A Austin and Kenneth Scarborough and Kiara K Spooner and Roger J Zoorob and Hamisu M Salihu}, url = {https://hqlo.biomedcentral.com/articles/10.1186/s12955-015-0323-4}, doi = {10.1186/s12955-015-0323-4}, year = {2015}, date = {2015-08-11}, journal = {Health and Quality of Life Outcomes}, volume = {13}, number = {123}, pages = {1-12}, abstract = {Adverse childhood experiences (ACE) have been previously linked to quality of life, health conditions, and life expectancy in adulthood. Less is known about the potential mechanisms which mediate these associations. This study examined how ACE influences adult health-related quality of life (HRQoL) in a low-income community in Florida. METHODS: A community-based participatory needs assessment was conducted from November 2013 to March 2014 with 201 residents of Tampa, Florida, USA. HRQoL was measured by an excessive number of unhealthy days experienced during the previous 30-day window. Mediation analyses for dichotomous outcomes were conducted with logistic regression. Bootstrapped confidence intervals were generated for both total and specific indirect effects. RESULTS: Most participants reported 'good to excellent health' (76%) and about a fourth reported 'fair to poor health' (24%). The mean of total unhealthy days was 9 days per month (SD ± 10.5). Controlling for demographic and neighborhood covariates, excessive unhealthy days was associated with ACE (AOR = 1.23; 95% CI: 1.06, 1.43), perceived stress (AOR = 1.07; 95% CI: 1.03, 1.10), and sleep disturbance (AOR = 8.86; 3.61, 21.77). Mediated effects were significant for stress (β = 0.08) and sleep disturbances (β = 0.11) as they related to the relationship between ACE and excessive unhealthy days. CONCLUSION: ACE is linked to adult HRQoL. Stress and sleep disturbances may represent later consequences of childhood adversity that modulate adult quality of life.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adverse childhood experiences (ACE) have been previously linked to quality of life, health conditions, and life expectancy in adulthood. Less is known about the potential mechanisms which mediate these associations. This study examined how ACE influences adult health-related quality of life (HRQoL) in a low-income community in Florida. METHODS: A community-based participatory needs assessment was conducted from November 2013 to March 2014 with 201 residents of Tampa, Florida, USA. HRQoL was measured by an excessive number of unhealthy days experienced during the previous 30-day window. Mediation analyses for dichotomous outcomes were conducted with logistic regression. Bootstrapped confidence intervals were generated for both total and specific indirect effects. RESULTS: Most participants reported 'good to excellent health' (76%) and about a fourth reported 'fair to poor health' (24%). The mean of total unhealthy days was 9 days per month (SD ± 10.5). Controlling for demographic and neighborhood covariates, excessive unhealthy days was associated with ACE (AOR = 1.23; 95% CI: 1.06, 1.43), perceived stress (AOR = 1.07; 95% CI: 1.03, 1.10), and sleep disturbance (AOR = 8.86; 3.61, 21.77). Mediated effects were significant for stress (β = 0.08) and sleep disturbances (β = 0.11) as they related to the relationship between ACE and excessive unhealthy days. CONCLUSION: ACE is linked to adult HRQoL. Stress and sleep disturbances may represent later consequences of childhood adversity that modulate adult quality of life. |
Xing, Dongyuan; Huang, Yangxin; Chen, Henian; Zhu, Yiliang; Dagne, Getachew A; Baldwin, Julie A Bayesian inference for two-part mixed-effects model using skew distributions, with application to longitudinal semicontinuous alcohol data Journal Article Statistical Methods in Medical Research, pp. 1-19, 2015. @article{Xing2015, title = {Bayesian inference for two-part mixed-effects model using skew distributions, with application to longitudinal semicontinuous alcohol data}, author = {Dongyuan Xing and Yangxin Huang and Henian Chen and Yiliang Zhu and Getachew A Dagne and Julie A Baldwin}, url = {http://journals.sagepub.com/doi/10.1177/0962280215590284}, doi = {10.1177/0962280215590284}, year = {2015}, date = {2015-07-19}, journal = {Statistical Methods in Medical Research}, pages = {1-19}, abstract = {Semicontinuous data featured with an excessive proportion of zeros and right-skewed continuous positive values arise frequently in practice. One example would be the substance abuse/dependence symptoms data for which a substantial proportion of subjects investigated may report zero. Two-part mixed-effects models have been developed to analyze repeated measures of semicontinuous data from longitudinal studies. In this paper, we propose a flexible two-part mixed-effects model with skew distributions for correlated semicontinuous alcohol data under the framework of a Bayesian approach. The proposed model specification consists of two mixed-effects models linked by the correlated random effects: (i) a model on the occurrence of positive values using a generalized logistic mixed-effects model (Part I); and (ii) a model on the intensity of positive values using a linear mixed-effects model where the model errors follow skew distributions including skew-t and skew-normal distributions (Part II). The proposed method is illustrated with an alcohol abuse/dependence symptoms data from a longitudinal observational study, and the analytic results are reported by comparing potential models under different random-effects structures. Simulation studies are conducted to assess the performance of the proposed models and method.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Semicontinuous data featured with an excessive proportion of zeros and right-skewed continuous positive values arise frequently in practice. One example would be the substance abuse/dependence symptoms data for which a substantial proportion of subjects investigated may report zero. Two-part mixed-effects models have been developed to analyze repeated measures of semicontinuous data from longitudinal studies. In this paper, we propose a flexible two-part mixed-effects model with skew distributions for correlated semicontinuous alcohol data under the framework of a Bayesian approach. The proposed model specification consists of two mixed-effects models linked by the correlated random effects: (i) a model on the occurrence of positive values using a generalized logistic mixed-effects model (Part I); and (ii) a model on the intensity of positive values using a linear mixed-effects model where the model errors follow skew distributions including skew-t and skew-normal distributions (Part II). The proposed method is illustrated with an alcohol abuse/dependence symptoms data from a longitudinal observational study, and the analytic results are reported by comparing potential models under different random-effects structures. Simulation studies are conducted to assess the performance of the proposed models and method. |
Klaus, Kimberly; Baldwin, Julie A; Izurieta, Ricardo; Naik, Eknath; Seme, Assefa; Corvin, Jaime; Sinke, Abiy Hiruye; Enquselassie, Fikre REDUCING PMTCT ATTRITION: PERSPECTIVES OF HIV+ WOMEN ON THE PREVENTION OF MOTHER-TO-CHILD HIV SERVICES IN ADDIS ABABA, ETHIOPIA Journal Article Ethiopian Medical Journal, 53 (2), pp. 91-104, 2015. @article{Klaus2015, title = {REDUCING PMTCT ATTRITION: PERSPECTIVES OF HIV+ WOMEN ON THE PREVENTION OF MOTHER-TO-CHILD HIV SERVICES IN ADDIS ABABA, ETHIOPIA}, author = {Kimberly Klaus and Julie A Baldwin and Ricardo Izurieta and Eknath Naik and Assefa Seme and Jaime Corvin and Abiy Hiruye Sinke and Fikre Enquselassie}, url = {https://www.ncbi.nlm.nih.gov/pubmed/26591297}, year = {2015}, date = {2015-04-01}, journal = {Ethiopian Medical Journal}, volume = {53}, number = {2}, pages = {91-104}, abstract = {BACKGROUND: Only 41% of eligible Ethiopian women completed (PMTCT) therapy in 2012, with MTCT rate of 20%. OBJECTIVE: This study elicited the perspectives of HIV positive mothers on the situation and the unique beliefs, attitudes, cultural norms and individuals who have influence over them during their pregnancy. METHODS: The mixed-methods parent study included community level surveys, focus groups and in-depth individual interviews of HIV positive women with a child at least one year of age in Addis Ababa, Ethiopia: only focus group and interview data are presented here. All tools were completed in Amharic with English translation. RESULTS: 23 women completed in-depth interviews; 27 participated within 4 focus groups. The greatest barriers to PMTCT completion were: feelings of hopelessness and carelessness, lack of understanding of the efficacy of ARV, and negative religious influences. The advice to improve PMTCT adherence most frequently offered included increasing PLWHIV peer support and improving and extending current HIV educational efforts. Participants recommended that PLWHIV mothers be utilized in all PMTCT planning and interventions in the future. CONCLUSION: Maintaining the motivation to adhere to the entire PMTCT cascade requires that a PLWHIV mother understands the validity of the steps she is taking and receives support for the many challenges she faces. Engaging PLWHIV peers as active members of the health care workforce and expanding their use as educators and counselors is important. Health officials can consider these findings to develop innovative and effective PMTCT interventions.}, keywords = {}, pubstate = {published}, tppubtype = {article} } BACKGROUND: Only 41% of eligible Ethiopian women completed (PMTCT) therapy in 2012, with MTCT rate of 20%. OBJECTIVE: This study elicited the perspectives of HIV positive mothers on the situation and the unique beliefs, attitudes, cultural norms and individuals who have influence over them during their pregnancy. METHODS: The mixed-methods parent study included community level surveys, focus groups and in-depth individual interviews of HIV positive women with a child at least one year of age in Addis Ababa, Ethiopia: only focus group and interview data are presented here. All tools were completed in Amharic with English translation. RESULTS: 23 women completed in-depth interviews; 27 participated within 4 focus groups. The greatest barriers to PMTCT completion were: feelings of hopelessness and carelessness, lack of understanding of the efficacy of ARV, and negative religious influences. The advice to improve PMTCT adherence most frequently offered included increasing PLWHIV peer support and improving and extending current HIV educational efforts. Participants recommended that PLWHIV mothers be utilized in all PMTCT planning and interventions in the future. CONCLUSION: Maintaining the motivation to adhere to the entire PMTCT cascade requires that a PLWHIV mother understands the validity of the steps she is taking and receives support for the many challenges she faces. Engaging PLWHIV peers as active members of the health care workforce and expanding their use as educators and counselors is important. Health officials can consider these findings to develop innovative and effective PMTCT interventions. |