NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Baldwin, Julie; Alvarado, Angelica; Jarratt-Snider, Karen; Hunter, Amanda; Keene, Chesleigh; Castagno, Angelina; Ali-Joseph, Alisse; Roddy, Juliette; Jr, Manley Begay A; Joseph, Darold H; Goldtooth, Carol; Camplain, Carolyn; Smith, Melinda; McCue, Kelly; Begay, Andria B; Teufel-Shone, Nicolette I Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study Journal Article Forthcoming JMIR Publications, Forthcoming. @article{Baldwin2023, title = {Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study}, author = {Julie Baldwin and Angelica Alvarado and Karen Jarratt-Snider and Amanda Hunter and Chesleigh Keene and Angelina Castagno and Alisse Ali-Joseph and Juliette Roddy and Manley A. Begay Jr and Darold H. Joseph and Carol Goldtooth and Carolyn Camplain and Melinda Smith and Kelly McCue and Andria B. Begay and Nicolette I. Teufel-Shone}, url = {https://preprints.jmir.org/preprint/44727/accepted}, doi = {10.2196/44727}, year = {2023}, date = {2023-05-03}, journal = {JMIR Publications}, abstract = {Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A |
Armin, Julie S; Williamson, Heather J; Rothers, Janet; Lee, Michele S; Baldwin, Julie A JMIR Research Protocols, 12 (e37801), 2023. @article{Armin2023, title = {An adapted cancer screening education program for Native American women with intellectual and developmental disabilities and their caregivers: Protocol for feasibility and acceptability testing}, author = {Julie S Armin and Heather J Williamson and Janet Rothers and Michele S Lee and Julie A Baldwin }, url = {https://www.researchprotocols.org/2023/1/e37801}, doi = {10.2196/37801}, year = {2023}, date = {2023-02-13}, journal = {JMIR Research Protocols}, volume = {12}, number = {e37801}, abstract = {Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC. |
Baldwin, Julie A; A, Alvarado; K, Jarratt-Snider; A, Hunter; C, Keene; A, Castagno; A, Ali-Joseph; J, Roddy; Jr, Begay M; Joseph D, Goldtooth C; C, Camplain; M, Smith; K, McCue; A, Begay; N, Teufel-Shone Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Mixed-Methods Study Journal Article JMIR Publications, 2022. @article{Baldwin2022, title = {Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Mixed-Methods Study}, author = {Julie A. Baldwin and Alvarado A and Jarratt-Snider K and Hunter A and Keene C and Castagno A and Ali-Joseph A and Roddy J and Begay M Jr and Joseph D, Goldtooth C and Camplain C and Smith M and McCue K and Begay A and Teufel-Shone N}, url = {https://www.researchgate.net/publication/366048977_Understanding_Resilience_and_Mental_Wellbeing_in_Southwest_Indigenous_Nations_and_the_Impact_of_COVID-19_Protocol_for_a_Mixed-Methods_Study_Preprint}, doi = {10.2196/preprints.44727}, year = {2022}, date = {2022-11-09}, journal = {JMIR Publications}, abstract = {Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. OBJECTIVE Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. To guide this study, we developed a conceptual framework based upon IDOH, Indigenous Nation-Building, and concepts of Indigenous Mental Wellbeing and Resilience. The research process was guided by the CARE Principles for Indigenous Data Governance to honor tribal and data sovereignty. Data were collected through a mixed methods research design - including interviews, talking circles, asset mapping, and coding of executive orders - that documented the contextual factors that contribute to mental health and wellbeing among Native nations. Special attention was placed on the assets and culturally, socially, and geographically distinct features of each Native nation and the communities within them. Our study was unique in that our research team consisted of predominantly Indigenous scholars and community researchers representing at least eight tribes and nations in the United States. The members of the team, regardless of whether they identified as Indigenous or non-Indigenous, have many collective years of experience working with Indigenous peoples and are committed to the health and wellbeing of tribal communities. RESULTS: The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. CONCLUSIONS: This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. OBJECTIVE Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. To guide this study, we developed a conceptual framework based upon IDOH, Indigenous Nation-Building, and concepts of Indigenous Mental Wellbeing and Resilience. The research process was guided by the CARE Principles for Indigenous Data Governance to honor tribal and data sovereignty. Data were collected through a mixed methods research design - including interviews, talking circles, asset mapping, and coding of executive orders - that documented the contextual factors that contribute to mental health and wellbeing among Native nations. Special attention was placed on the assets and culturally, socially, and geographically distinct features of each Native nation and the communities within them. Our study was unique in that our research team consisted of predominantly Indigenous scholars and community researchers representing at least eight tribes and nations in the United States. The members of the team, regardless of whether they identified as Indigenous or non-Indigenous, have many collective years of experience working with Indigenous peoples and are committed to the health and wellbeing of tribal communities. RESULTS: The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. CONCLUSIONS: This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. |
Dreifuss, Heather M; Belin, Kalvina L; Wilson, Jamie; George, Shawndeena; Waters, Amber-Rose; Bauer, Carmella Kahn 1and Mark B C; Teufel-Shone, Nicolette I Engaging Native American High School Students in Public Health Career Preparation Through the Indigenous Summer Enhancement Program Journal Article Frontiers in Public Heath, 10 , 2022. @article{Dreifuss2022, title = {Engaging Native American High School Students in Public Health Career Preparation Through the Indigenous Summer Enhancement Program}, author = {Heather M Dreifuss and Kalvina L Belin and Jamie Wilson and Shawndeena George and Amber-Rose Waters and Carmella B Kahn 1and Mark C Bauer and Nicolette I Teufel-Shone}, url = {https://pubmed.ncbi.nlm.nih.gov/35273937/10.3389/fpubh.2022.789994}, doi = {10.3389/fpubh.2022.789994}, year = {2022}, date = {2022-02-22}, journal = {Frontiers in Public Heath}, volume = {10}, abstract = {Native American populations are systematically marginalized in the healthcare and public health workforce. One effective approach to reduce health disparities and improve health care delivery among Indigenous populations is to train more Native American health professionals who integrate academic and cultural knowledge to understand and influence health behaviors and perspectives. Diné College partnered with Northern Arizona University to develop the Navajo Native American Research Center for Health (NARCH) Partnership, funded by the National Institutes of Health. The high school component of the Navajo NARCH Partnership created the Indigenous Summer Enhancement Program (ISEP), a 1-week summer training program providing exposure to health careers and mentorship in pursuing public health careers for Native American high school students. ISEP utilizes the Diné Educational Philosophy (DEP), a Navajo conceptual framework to serve as the foundation of the program. In 2020-2021, due to COVID-19 restrictions, the DEP model had to be incorporated in the Navajo NARCH high school virtual program activities. ISEP used 2018 and 2019 past program evaluation data to inform the virtual programming. Students' perception of the program was collected using an online Qualtrics evaluation questionnaire. Students stated appreciation for program staff, fellow students, peer mentors and culturally relevant learning experiences in both virtual and in-person environments. Recommendations included: expanding the length of ISEP and continuing the hands-on activities and Public Health Leadership series}, keywords = {}, pubstate = {published}, tppubtype = {article} } Native American populations are systematically marginalized in the healthcare and public health workforce. One effective approach to reduce health disparities and improve health care delivery among Indigenous populations is to train more Native American health professionals who integrate academic and cultural knowledge to understand and influence health behaviors and perspectives. Diné College partnered with Northern Arizona University to develop the Navajo Native American Research Center for Health (NARCH) Partnership, funded by the National Institutes of Health. The high school component of the Navajo NARCH Partnership created the Indigenous Summer Enhancement Program (ISEP), a 1-week summer training program providing exposure to health careers and mentorship in pursuing public health careers for Native American high school students. ISEP utilizes the Diné Educational Philosophy (DEP), a Navajo conceptual framework to serve as the foundation of the program. In 2020-2021, due to COVID-19 restrictions, the DEP model had to be incorporated in the Navajo NARCH high school virtual program activities. ISEP used 2018 and 2019 past program evaluation data to inform the virtual programming. Students' perception of the program was collected using an online Qualtrics evaluation questionnaire. Students stated appreciation for program staff, fellow students, peer mentors and culturally relevant learning experiences in both virtual and in-person environments. Recommendations included: expanding the length of ISEP and continuing the hands-on activities and Public Health Leadership series |
Bordeaux, Skyler J; Baca, Anthony W; Begay, Rene L; Gachupin, Francine C; Caporaso, Gregory J; Herbst-Kralovetz, Melissa M; Lee, Naomi R Designing Inclusive HPV Cancer Vaccines and Increasing Uptake among Native Americans-A Cultural Perspective Review Journal Article Current Oncology, 28 (5), pp. 3705-3716, 2020. @article{Bordeaux2021, title = {Designing Inclusive HPV Cancer Vaccines and Increasing Uptake among Native Americans-A Cultural Perspective Review}, author = {Skyler J Bordeaux and Anthony W Baca and Rene L Begay and Francine C Gachupin and J Gregory Caporaso and Melissa M Herbst-Kralovetz and Naomi R Lee}, url = {https://www.mdpi.com/1718-7729/28/5/316}, doi = {10.3390/curroncol28050316}, year = {2020}, date = {2020-09-24}, journal = {Current Oncology}, volume = {28}, number = {5}, pages = {3705-3716}, abstract = {Despite a global and nationwide decrease, Native Americans continue to experience high rates of cancer morbidity and mortality. Vaccination is one approach to decrease cancer incidence such as the case of cervical cancer. However, the availability of vaccines does not guarantee uptake, as evident in the Coronavirus 2019 pandemic. Therefore, as we consider current and future cancer vaccines, there are certain considerations to be mindful of to increase uptake among Native Americans such as the incidence of disease, social determinants of health, vaccine hesitancy, and historical exclusion in clinical trials. This paper primarily focuses on human papillomavirus (HPV) and potential vaccines for Native Americans. However, we also aim to inform researchers on factors that influence Native American choices surrounding vaccination and interventions including cancer therapies. We begin by providing an overview of the historical distrust and trauma Native Americans experience, both past and present. In addition, we offer guidance and considerations when engaging with sovereign Tribal Nations in vaccine development and clinical trials in order to increase trust and encourage vaccine uptake.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Despite a global and nationwide decrease, Native Americans continue to experience high rates of cancer morbidity and mortality. Vaccination is one approach to decrease cancer incidence such as the case of cervical cancer. However, the availability of vaccines does not guarantee uptake, as evident in the Coronavirus 2019 pandemic. Therefore, as we consider current and future cancer vaccines, there are certain considerations to be mindful of to increase uptake among Native Americans such as the incidence of disease, social determinants of health, vaccine hesitancy, and historical exclusion in clinical trials. This paper primarily focuses on human papillomavirus (HPV) and potential vaccines for Native Americans. However, we also aim to inform researchers on factors that influence Native American choices surrounding vaccination and interventions including cancer therapies. We begin by providing an overview of the historical distrust and trauma Native Americans experience, both past and present. In addition, we offer guidance and considerations when engaging with sovereign Tribal Nations in vaccine development and clinical trials in order to increase trust and encourage vaccine uptake. |
Williamson, Heather J; Brennan, Alissa C; Tress, Samantha F; Joseph, Darold H; Baldwin, Julie A Exploring Health and Wellness among Native American Adults with Intellectual and/or Developmental Disabilities and Their Family Caregivers Journal Article Journal of Applied Research in Intellectual Disabilities, pp. 1-7, 2019. @article{Williamson2019b, title = {Exploring Health and Wellness among Native American Adults with Intellectual and/or Developmental Disabilities and Their Family Caregivers}, author = {Heather J. Williamson and Alissa C. Brennan and Samantha F. Tress and Darold H. Joseph and Julie A. Baldwin}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jar.12664}, doi = {10.1111/jar.12664}, year = {2019}, date = {2019-08-22}, journal = {Journal of Applied Research in Intellectual Disabilities}, pages = {1-7}, abstract = {Background: Adults with intellectual and/or developmental disabilities (IDD) experience health inequities, and those who also identify as a member of an ethnic minority group face additional health inequities. In the United States, a majority of adults with IDD continue to be supported by family caregivers making their health equity also important. The purpose of this study was to explore how Native American adults with IDD and their family caregivers experience health and wellness. Method: This community‐engaged research was guided by a Community Advisory Board (CAB) with study participants completing a photovoice project. Results: Participants identified individual, family and community level influences on health and wellness including the importance of participation in meaningful activities and connection to culture. Conclusions: In order to address health inequities, more research is needed to under‐ stand health and wellness from the unique perspectives of individuals with IDD and those from racial and ethnic minority groups.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background: Adults with intellectual and/or developmental disabilities (IDD) experience health inequities, and those who also identify as a member of an ethnic minority group face additional health inequities. In the United States, a majority of adults with IDD continue to be supported by family caregivers making their health equity also important. The purpose of this study was to explore how Native American adults with IDD and their family caregivers experience health and wellness. Method: This community‐engaged research was guided by a Community Advisory Board (CAB) with study participants completing a photovoice project. Results: Participants identified individual, family and community level influences on health and wellness including the importance of participation in meaningful activities and connection to culture. Conclusions: In order to address health inequities, more research is needed to under‐ stand health and wellness from the unique perspectives of individuals with IDD and those from racial and ethnic minority groups. |
Dunn, Dorothy J; Schwartz, Anna; Teufel-Shone, Nicolette I; Meyer, Linda A Visions: The Journal of Rogerian Scholar Science, 25 (2), pp. 16, 2019. @article{Dunn2019, title = {Educational Program to Build Resilience for Caregivers, Family Members, and Community Members in the Care of Elder Native Americans who are Experiencing Memory Loss and Cognitive Decline}, author = {Dorothy J Dunn and Anna Schwartz and Nicolette I. Teufel-Shone and Linda A. Meyer }, url = {https://www.thefreelibrary.com/Educational+Program+to+Promote+Resilience+for+Caregivers%2C+Family...-a0583693719}, year = {2019}, date = {2019-03-01}, journal = {Visions: The Journal of Rogerian Scholar Science}, volume = {25}, number = {2}, pages = {16}, abstract = {Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced. |
Cordova-Marks, Felina M; Harris, Robin; Teufel-Shone, Nicolette I; Norton, Beatrice; Mastergeorge, Ann M; Gerald, Lynn Characteristics of American Indian Female Caregivers on a Southwest American Indian Reservation Journal Article Journal of Community Health, 44 (1), pp. 52-60, 2019. @article{Cordova-Marks2019, title = {Characteristics of American Indian Female Caregivers on a Southwest American Indian Reservation}, author = {Felina M Cordova-Marks and Robin Harris and Nicolette I Teufel-Shone and Beatrice Norton and Ann M Mastergeorge and Lynn Gerald}, url = {https://link.springer.com/article/10.1007/s10900-018-0552-7}, year = {2019}, date = {2019-02-01}, journal = {Journal of Community Health}, volume = {44}, number = {1}, pages = {52-60}, abstract = {American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress. |
Cordova-Marks, Felina M; Harris, Robin; Teufel-Shone, Nicolette; Norton, Beatrice; Mastergeorge, Ann M; Gerald, Lynn Characteristics of American Indian female caregivers on a Southwest American Indian reservation Journal Article Journal of Community Health, 2018. @article{Cordova-Marks2018, title = {Characteristics of American Indian female caregivers on a Southwest American Indian reservation}, author = {Felina M Cordova-Marks and Robin Harris and Nicolette Teufel-Shone and Beatrice Norton and Ann M Mastergeorge and Lynn Gerald}, url = {https://link.springer.com/article/10.1007%2Fs10900-018-0552-7}, year = {2018}, date = {2018-07-28}, journal = {Journal of Community Health}, abstract = {American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress. |
Chief, Carmenlita; Sabo, Samantha; Clark, Hershel; Henderson, Patricia Nez; Yazzie, Alfred; Nahee, Jacqueline; Leischow, Scott J Tobacco Control, 25 , pp. 19-25, 2016. @article{Chief2016, title = {Breathing clean air is Są’áh Naagháí Bik'eh Hózhóó (SNBH): a culturally centered approach to understanding commercial smoke-free policy among the Diné (Navajo People)}, author = {Carmenlita Chief and Samantha Sabo and Hershel Clark and Patricia Nez Henderson and Alfred Yazzie and Jacqueline Nahee and Scott J Leischow}, url = {http://dx.doi.org/10.1136/tobaccocontrol-2016-053081}, year = {2016}, date = {2016-10-03}, journal = {Tobacco Control}, volume = {25}, pages = {19-25}, abstract = {Introduction Indigenous worldviews and research approaches are fundamental to make meaning of complex health issues and increase the likelihood of identifying existing cultural protective factors that have contributed to the resilience and survival of Indigenous people worldwide. Objective: We describe the process for applying the Diné (Navajo) paradigm of Są’áh Naagháí Bik'eh Hózhóó (SNBH), a belief system that guides harmonious living, and demonstrate how the application of SNBH enhances understanding of Navajo principles for well-being. Specifically, we juxtapose this analysis with a conventional qualitative analysis to illuminate and interpret Diné perspectives on the health and economic impact of commercial secondhand smoke and smoke-free policy. Methods Focus groups were conducted throughout Navajo Nation to assess the appeal and impact of several evidence-based messages regarding the health and economic impact of smoke-free policy. Results Diné perspectives have shifted away from family and cultural teachings considered protective of a smoke-free life, and struggle to balance the ethical and economics of respect for individual and collective rights to live and work in smoke-free environments. Conclusions Indigenous-centered approaches to public health research and policy analysis contribute to understanding the cultural knowledge, practices and beliefs that are protective of the health and well-being of Indigenous people.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Introduction Indigenous worldviews and research approaches are fundamental to make meaning of complex health issues and increase the likelihood of identifying existing cultural protective factors that have contributed to the resilience and survival of Indigenous people worldwide. Objective: We describe the process for applying the Diné (Navajo) paradigm of Są’áh Naagháí Bik'eh Hózhóó (SNBH), a belief system that guides harmonious living, and demonstrate how the application of SNBH enhances understanding of Navajo principles for well-being. Specifically, we juxtapose this analysis with a conventional qualitative analysis to illuminate and interpret Diné perspectives on the health and economic impact of commercial secondhand smoke and smoke-free policy. Methods Focus groups were conducted throughout Navajo Nation to assess the appeal and impact of several evidence-based messages regarding the health and economic impact of smoke-free policy. Results Diné perspectives have shifted away from family and cultural teachings considered protective of a smoke-free life, and struggle to balance the ethical and economics of respect for individual and collective rights to live and work in smoke-free environments. Conclusions Indigenous-centered approaches to public health research and policy analysis contribute to understanding the cultural knowledge, practices and beliefs that are protective of the health and well-being of Indigenous people. |
Laurila, Kelly; Ingram, Jani C; Briehl, Margaret M; Trotter, Robert Weaving the Web: Evaluation Strategies to Help Native-American Undergraduate Research Training Programs Navigate Students to Success Journal Article CURQ on the Web, 35 (3), pp. 4-11, 2015. @article{Laurila2015, title = {Weaving the Web: Evaluation Strategies to Help Native-American Undergraduate Research Training Programs Navigate Students to Success}, author = {Kelly Laurila and Jani C Ingram and Margaret M Briehl and Robert Trotter}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4671630/}, year = {2015}, date = {2015-12-07}, journal = {CURQ on the Web}, volume = {35}, number = {3}, pages = {4-11}, abstract = {Native-American cultures are characterized by strong connections to community, family, and the land. These connections are integrated into Native-American education, resulting in curricula that are different from those in Western educational systems. Differences between Native-American and Western cultures create challenges for those educated in Native-American education systems when they pursue postsecondary education in Western cultures. The under-representation of Native-Americans among those earning degrees reflects both extremely low enrollment rates and generally poor retention rates for Native-American college students (UA 2009). Obstacles for Native-American students include inadequate academic preparation, cultural differences, vague constructs of educational or vocational goals, insufficient financial aid, and social isolation (McClellan et al. 2005). Engaging Native-American students in research is one strategy for overcoming these obstacles and improving their college experience. Here we describe a research-based training program focused on Native-American undergraduates, the evaluation model and process used to evaluate this program, and the paradigm-shifting insights that emerged from the evaluation data.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Native-American cultures are characterized by strong connections to community, family, and the land. These connections are integrated into Native-American education, resulting in curricula that are different from those in Western educational systems. Differences between Native-American and Western cultures create challenges for those educated in Native-American education systems when they pursue postsecondary education in Western cultures. The under-representation of Native-Americans among those earning degrees reflects both extremely low enrollment rates and generally poor retention rates for Native-American college students (UA 2009). Obstacles for Native-American students include inadequate academic preparation, cultural differences, vague constructs of educational or vocational goals, insufficient financial aid, and social isolation (McClellan et al. 2005). Engaging Native-American students in research is one strategy for overcoming these obstacles and improving their college experience. Here we describe a research-based training program focused on Native-American undergraduates, the evaluation model and process used to evaluate this program, and the paradigm-shifting insights that emerged from the evaluation data. |
Walsh, Margaret L; Baldwin, Julie A AMERICAN INDIAN SUBSTANCE ABUSE PREVENTION EFFORTS: A REVIEW OF PROGRAMS, 2003-2013 Journal Article American Indian and Alaska Native Mental Health Research, 22 (2), pp. 41-68, 2015. @article{Walsh2015, title = {AMERICAN INDIAN SUBSTANCE ABUSE PREVENTION EFFORTS: A REVIEW OF PROGRAMS, 2003-2013}, author = {Margaret L Walsh and Julie A Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pubmed/26053884}, doi = {10.5820/aian.2202.2015.41}, year = {2015}, date = {2015-11-02}, journal = {American Indian and Alaska Native Mental Health Research}, volume = {22}, number = {2}, pages = {41-68}, abstract = {The purpose of the review was to assess substance abuse prevention (SAP) efforts in American Indian and Alaska Native (AI/AN) communities from 2003-2013. In the past, many SAP programs were unable to meet the unique cultural needs of AI/AN communities adequately. It has been suggested that a disconnect may exist between the theories that are used to guide development of prevention programs in AI/AN communities and culturally appropriate theoretical constructs of AI/AN worldviews. To explore this possible disconnect further, Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to assess a total of 18 articles (N = 31 programs) on program location and method, participant characteristics, described program cultural elements, use of theory, program outcomes, program measures, and future recommendations. Results indicated that SAP programs in AI/AN communities vary widely in their use of theory, implementation strategies, view and definition of cultural constructs, overall evaluational rigor, and reporting methods. Future research is needed to integrate appropriate theory and cultural elements into SAP programs to tie them to measurable outcomes for AI/AN communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The purpose of the review was to assess substance abuse prevention (SAP) efforts in American Indian and Alaska Native (AI/AN) communities from 2003-2013. In the past, many SAP programs were unable to meet the unique cultural needs of AI/AN communities adequately. It has been suggested that a disconnect may exist between the theories that are used to guide development of prevention programs in AI/AN communities and culturally appropriate theoretical constructs of AI/AN worldviews. To explore this possible disconnect further, Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to assess a total of 18 articles (N = 31 programs) on program location and method, participant characteristics, described program cultural elements, use of theory, program outcomes, program measures, and future recommendations. Results indicated that SAP programs in AI/AN communities vary widely in their use of theory, implementation strategies, view and definition of cultural constructs, overall evaluational rigor, and reporting methods. Future research is needed to integrate appropriate theory and cultural elements into SAP programs to tie them to measurable outcomes for AI/AN communities. |
Teufel-Shone, Nicolette; Gamber, Michelle; Watahomigie, Helen; Siyuja, Jr T J; Crozier, Laurie; Irwin, Sandra L Preventing Chronic Disease, 11 (E166), 2014. @article{Teufel-Shone2014, title = {Using a participatory research approach in a school-based physical activity intervention to prevent diabetes in the Hualapai Indian community, Arizona, 2002-2006}, author = {Nicolette Teufel-Shone and Michelle Gamber and Helen Watahomigie and Jr T. J. Siyuja and Laurie Crozier and Sandra L Irwin}, url = {https://www.ncbi.nlm.nih.gov/pubmed/25254984}, doi = {10.5888/pcd11.130397}, year = {2014}, date = {2014-09-25}, journal = {Preventing Chronic Disease}, volume = {11}, number = {E166}, abstract = {INTRODUCTION: In the United States, type 2 diabetes has reached epidemic proportions among indigenous people. Community-based participatory research offers American Indian communities and university partners an opportunity to integrate skills in community action and systematic inquiry to develop locally acceptable primary prevention interventions to combat diabetes risk factors. The Hualapai Tribe and the University of Arizona designed, implemented, and assessed a school-based physical activity intervention to reduce diabetes risk factors among youth. METHODS: During a 2-year period, trained community members led in-school physical activity classes 2 times per week among students in grades 3 through 8. Body mass index (BMI), fitness measures, and fasting blood glucose level were measured on 6 occasions. Descriptive statistics and t tests were used to assess change in outcome measures. RESULTS: Of the more than 100 youth who took part in the physical activity classes for 2 years, 71 youth (38 male, 33 female) participated in 3 or more data collection sessions. Over time, the percentage of youth with a high fasting blood glucose level of more than 125 mg/dL decreased concurrently with significant improvements in fitness measures. However, BMI increased in both male and female participants. The high number of youth who missed more than 3 data collection sessions was attributed to poor school attendance and tardiness. CONCLUSION: Classes led by lay physical activity leaders can affect diabetes risk factors in youth. Incongruous health and fitness outcomes suggest that one indicator does not adequately define the risk profile; BMI alone may not be sufficient as a measure of diabetes risk in youth.}, keywords = {}, pubstate = {published}, tppubtype = {article} } INTRODUCTION: In the United States, type 2 diabetes has reached epidemic proportions among indigenous people. Community-based participatory research offers American Indian communities and university partners an opportunity to integrate skills in community action and systematic inquiry to develop locally acceptable primary prevention interventions to combat diabetes risk factors. The Hualapai Tribe and the University of Arizona designed, implemented, and assessed a school-based physical activity intervention to reduce diabetes risk factors among youth. METHODS: During a 2-year period, trained community members led in-school physical activity classes 2 times per week among students in grades 3 through 8. Body mass index (BMI), fitness measures, and fasting blood glucose level were measured on 6 occasions. Descriptive statistics and t tests were used to assess change in outcome measures. RESULTS: Of the more than 100 youth who took part in the physical activity classes for 2 years, 71 youth (38 male, 33 female) participated in 3 or more data collection sessions. Over time, the percentage of youth with a high fasting blood glucose level of more than 125 mg/dL decreased concurrently with significant improvements in fitness measures. However, BMI increased in both male and female participants. The high number of youth who missed more than 3 data collection sessions was attributed to poor school attendance and tardiness. CONCLUSION: Classes led by lay physical activity leaders can affect diabetes risk factors in youth. Incongruous health and fitness outcomes suggest that one indicator does not adequately define the risk profile; BMI alone may not be sufficient as a measure of diabetes risk in youth. |
Bletzer, Keith V; Yuan, Nicole P; Koss, Mary P; Polacca, Mona; Eaves, Emery R; Goldman, David Taking humor seriously: talking about drinking in Native American focus groups Journal Article Medical Anthropology, 30 (3), pp. 295-318, 2011. @article{Bletzer2011, title = {Taking humor seriously: talking about drinking in Native American focus groups}, author = {Keith V Bletzer and Nicole P Yuan and Mary P Koss and Mona Polacca and Emery R Eaves and David Goldman}, url = {https://www.ncbi.nlm.nih.gov/pubmed/21590583}, doi = {10.1080/01459740.2011.560584}, year = {2011}, date = {2011-05-01}, journal = {Medical Anthropology}, volume = {30}, number = {3}, pages = {295-318}, abstract = {Focus groups provide a source of data that highlight community ideas on a topic of interest. How interview data will be utilized varies by project. With this in mind, we identify ways that focus group data from a particular population (Native American) articulate a health issue of individual tribal concern (alcohol consumption). Taking our analytic framework from linguistics, one of the four fields of inquiry in anthropology, we examine format ties and the performance of humor as stylistic features of tribal focus groups and illustrate how linguistic devices can be used in analyzing aspects of adolescent and adult drinking. Focus group data require systematic review and analysis to identify useful findings that can lead to inquiry points to initiate collaborative work with local experts before the data can be developed and configured into effective program initiatives.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Focus groups provide a source of data that highlight community ideas on a topic of interest. How interview data will be utilized varies by project. With this in mind, we identify ways that focus group data from a particular population (Native American) articulate a health issue of individual tribal concern (alcohol consumption). Taking our analytic framework from linguistics, one of the four fields of inquiry in anthropology, we examine format ties and the performance of humor as stylistic features of tribal focus groups and illustrate how linguistic devices can be used in analyzing aspects of adolescent and adult drinking. Focus group data require systematic review and analysis to identify useful findings that can lead to inquiry points to initiate collaborative work with local experts before the data can be developed and configured into effective program initiatives. |
Sanderson, Priscilla R; Weinstein, Neil; Teufel-Shone, Nicolette; Martínez, María Elena Assessing colorectal cancer screening knowledge at tribal fairs Journal Article Preventing Chronic Disease, 8 (1), pp. 1-10, 2011. @article{Sanderson2011, title = {Assessing colorectal cancer screening knowledge at tribal fairs}, author = {Priscilla R Sanderson and Neil Weinstein and Nicolette Teufel-Shone and María Elena Martínez}, url = {https://www.ncbi.nlm.nih.gov/pubmed/21159228}, year = {2011}, date = {2011-01-01}, journal = {Preventing Chronic Disease}, volume = {8}, number = {1}, pages = {1-10}, abstract = {INTRODUCTION: Increasing public awareness and knowledge about the need for colorectal cancer (CRC) screening among American Indians is key to reducing health disparities. The objective of this study was to assess Navajo adults' knowledge of CRC risk factors and prevention, CRC screening, and self-reported experience with CRC screening. METHODS: We collected data generated by a self-administered survey given to Navajo adults, most of whom lived on the reservation. Data were collected at 2 annual tribal fairs in 2006. Fair attendees who visited an exhibit booth completed a CRC knowledge survey. The study design was nonrandomized. RESULTS: Of the 285 Navajo adults who participated, most were bilingual (74%) and female (80%). Of the respondents aged 50 years or older, 77% had heard of CRC screening and 28% reported being screened for colon or colorectal cancer. Knowledge was high (mean, 5.78 [standard deviation (SD), 1.28]) (8.0 was the highest possible knowledge score). Respondents with little or no formal schooling had lower scores (mean, 5.4), indicating less knowledge of CRC and associated screening tests than did those with more education (mean, 6.0). CONCLUSION: Among a sample of Navajo adults aged 50 years or older, participants with more education were more likely to be knowledgeable about CRC and to have received screening. This survey, led by a Navajo investigator with Navajo surveyors, revealed a high awareness of CRC and screening, but overall CRC screening was low. CRC education for Navajo adults who have little or no formal schooling should be improved.}, keywords = {}, pubstate = {published}, tppubtype = {article} } INTRODUCTION: Increasing public awareness and knowledge about the need for colorectal cancer (CRC) screening among American Indians is key to reducing health disparities. The objective of this study was to assess Navajo adults' knowledge of CRC risk factors and prevention, CRC screening, and self-reported experience with CRC screening. METHODS: We collected data generated by a self-administered survey given to Navajo adults, most of whom lived on the reservation. Data were collected at 2 annual tribal fairs in 2006. Fair attendees who visited an exhibit booth completed a CRC knowledge survey. The study design was nonrandomized. RESULTS: Of the 285 Navajo adults who participated, most were bilingual (74%) and female (80%). Of the respondents aged 50 years or older, 77% had heard of CRC screening and 28% reported being screened for colon or colorectal cancer. Knowledge was high (mean, 5.78 [standard deviation (SD), 1.28]) (8.0 was the highest possible knowledge score). Respondents with little or no formal schooling had lower scores (mean, 5.4), indicating less knowledge of CRC and associated screening tests than did those with more education (mean, 6.0). CONCLUSION: Among a sample of Navajo adults aged 50 years or older, participants with more education were more likely to be knowledgeable about CRC and to have received screening. This survey, led by a Navajo investigator with Navajo surveyors, revealed a high awareness of CRC and screening, but overall CRC screening was low. CRC education for Navajo adults who have little or no formal schooling should be improved. |
Johnson, Jeannette; Baldwin, Julie A; Gryczynski, Jan; Wiechelt, Shelly A; Haring, Rodney C The Native American experience: From displacement and cultural trauma to resilience Book Chapter Multiethnicity and Multiethnic Families: Development, Identity, and Resilience, Chapter 14, pp. 277-302, Xlibris Corporation, 2010, ISBN: 9781450003407. @inbook{Johnson2010, title = {The Native American experience: From displacement and cultural trauma to resilience}, author = {Jeannette Johnson and Julie A Baldwin and Jan Gryczynski and Shelly A Wiechelt and Rodney C Haring}, url = {https://books.google.com/books?hl=en&lr=&id=VidnMGRDFdwC&oi=fnd&pg=PR2&dq=Multiethnicity+and+Multiethnic+Families:+Development,+Identity,+and+Resilience,+Chapter+14&ots=Z610xp1ePw&sig=8M8O6UAUJvfcnTvZO92e4atv-6c#v=onepage&q=Multiethnicity%20and%20Multiethnic%20Families%3A%20Development%2C%20Identity%2C%20and%20Resilience%2C%20Chapter%2014&f=false}, isbn = {9781450003407}, year = {2010}, date = {2010-01-01}, booktitle = {Multiethnicity and Multiethnic Families: Development, Identity, and Resilience}, pages = {277-302}, publisher = {Xlibris Corporation}, chapter = {14}, keywords = {}, pubstate = {published}, tppubtype = {inbook} } |
Harris, Kelly A; Trotter, Robert Community Health Status Assessment Navajo County, Arizona Journal Article 2010. @article{Harris2010, title = {Community Health Status Assessment Navajo County, Arizona}, author = {Kelly A Harris and Robert Trotter}, url = {https://repository.asu.edu/items/23700}, year = {2010}, date = {2010-01-01}, abstract = {The CHSA focuses on 11 health status indicators which include: demographic characteristics, socioeconomic characteristics, health resource availability, quality of life, behavioral risk factors, environmental health, social and mental health, maternal and child health, death, illness and injury, communicable disease, and sentinel events.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The CHSA focuses on 11 health status indicators which include: demographic characteristics, socioeconomic characteristics, health resource availability, quality of life, behavioral risk factors, environmental health, social and mental health, maternal and child health, death, illness and injury, communicable disease, and sentinel events. |
Baldwin, Julie A; Johnson, Jeannette L; Benally, Christine C Building partnerships between indigenous communities and universities: lessons learned in HIV/AIDS and substance abuse prevention research Journal Article American Journal of Public health, 99 (S1), pp. S77-S82, 2009. @article{Baldwin2009, title = {Building partnerships between indigenous communities and universities: lessons learned in HIV/AIDS and substance abuse prevention research}, author = {Julie A Baldwin and Jeannette L Johnson and Christine C Benally}, url = {https://www.ncbi.nlm.nih.gov/pubmed/19246672}, doi = {10.2105/AJPH.2008.134585}, year = {2009}, date = {2009-04-01}, journal = {American Journal of Public health}, volume = {99}, number = {S1}, pages = {S77-S82}, abstract = {Many HIV/AIDS and substance abuse prevention studies in American Indian and Alaska Native communities have been directed by academic researchers with little community input. We examined the challenges in conducting HIV/AIDS-related research in American Indian and Alaska Native communities and the benefits of changing the research paradigm to a community-based participatory model. The lessons we learned illustrate that the research process should be a cyclical one with continual involvement by community members. Steps in the process include (1) building and sustaining collaborative relationships, (2) planning the program together, (3) implementing and evaluating the program in culturally acceptable ways, and (4) disseminating research findings from a tribal perspective. These steps can enhance the long-term capacity of the community to conduct HIV/AIDS and substance abuse prevention research.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Many HIV/AIDS and substance abuse prevention studies in American Indian and Alaska Native communities have been directed by academic researchers with little community input. We examined the challenges in conducting HIV/AIDS-related research in American Indian and Alaska Native communities and the benefits of changing the research paradigm to a community-based participatory model. The lessons we learned illustrate that the research process should be a cyclical one with continual involvement by community members. Steps in the process include (1) building and sustaining collaborative relationships, (2) planning the program together, (3) implementing and evaluating the program in culturally acceptable ways, and (4) disseminating research findings from a tribal perspective. These steps can enhance the long-term capacity of the community to conduct HIV/AIDS and substance abuse prevention research. |
Mmari, Kristin N; Blum, Robert Wm.; Teufel-Shone, Nicolette What Increases Risk and Protection for Delinquent Behaviors Among American Indian Youth? Findings from Three Tribal Communities Journal Article Youth and Society, 41 (3), pp. 382-413, 2009. @article{Mmari2009, title = {What Increases Risk and Protection for Delinquent Behaviors Among American Indian Youth? Findings from Three Tribal Communities}, author = {Kristin N Mmari and Robert Wm. Blum and Nicolette Teufel-Shone}, url = {http://journals.sagepub.com/doi/pdf/10.1177/0044118X09333645}, doi = {10.1177/0044118X09333645}, year = {2009}, date = {2009-03-24}, journal = {Youth and Society}, volume = {41}, number = {3}, pages = {382-413}, abstract = {The primary purpose of this study was to compare the risk and protective factors for delinquent behaviors among American Indian youth in three distinct tribal communities. Focus group discussions were used to gather data from elders, parents, youth workers, and youth in each tribal community. Findings showed that the key source for increasing risk and protection for delinquent behaviors among American Indian youth is the family. In particular is the protective presence of a parent and having a parent available for discussing problems. Participants also revealed how many parents lack the knowledge and confidence to discipline their children. These findings suggest a need for programs that strengthen parent-adolescent communication, parenting skills, and offer cultural teachings and sensitivity training for school personnel. Interventions also need to be specific to the cultural context and cannot assume the same risk and protective factors will apply to all American Indian youth.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The primary purpose of this study was to compare the risk and protective factors for delinquent behaviors among American Indian youth in three distinct tribal communities. Focus group discussions were used to gather data from elders, parents, youth workers, and youth in each tribal community. Findings showed that the key source for increasing risk and protection for delinquent behaviors among American Indian youth is the family. In particular is the protective presence of a parent and having a parent available for discussing problems. Participants also revealed how many parents lack the knowledge and confidence to discipline their children. These findings suggest a need for programs that strengthen parent-adolescent communication, parenting skills, and offer cultural teachings and sensitivity training for school personnel. Interventions also need to be specific to the cultural context and cannot assume the same risk and protective factors will apply to all American Indian youth. |
Johnson, Jeannette L; Baldwin, Julie A; Haring, Rodney C; Wiechelt, Shelly A; Roth, Susan; Gryczynski, Jan; Lozano, Henry Essential information for disaster management and trauma specialists working with American Indians Book Chapter Marsella, A; Johnson, J; Watson, P; Gryczynski, J (Ed.): Ethnocultural Perspectives on Disaster and Trauma: Foundations, Issues, and Applications, Chapter 4, pp. 73-113, 2008, ISBN: 978-0-387-73285-5. @inbook{Johnson2008, title = {Essential information for disaster management and trauma specialists working with American Indians}, author = {Jeannette L Johnson and Julie A Baldwin and Rodney C Haring and Shelly A Wiechelt and Susan Roth and Jan Gryczynski and Henry Lozano}, editor = {A Marsella and J Johnson and P Watson and J Gryczynski}, url = {http://www.springer.com/us/book/9780387732848}, isbn = {978-0-387-73285-5}, year = {2008}, date = {2008-01-01}, booktitle = {Ethnocultural Perspectives on Disaster and Trauma: Foundations, Issues, and Applications}, pages = {73-113}, chapter = {4}, abstract = {In this pioneering volume, experts on individual and collective trauma experience, posttraumatic stress and related syndromes, and emergency and crisis intervention – share knowledge and insights on the cultural context of working with ethnic and racial minority communities during disasters. In each chapter, emotional, psychological, and social needs as well as communal strengths and coping skills that arise in disasters are documented for major minority groups in the United States including specific chapters on African Americans, Native Americans, Arab Americans, Asian Indians, Chinese Americans, Caribbean Americans, Latin Americans, Native Hawaiians, and Vietnamese Americans. Each chapter features information on: Demographics, major historical events, and core values of each population Important cultural insights, including communication styles, culture-specific disorders, and valid assessment instruments Therapeutic and healing traditions versus conventional medicine and therapy Perspectives specific to the population’s experience with disaster and trauma Authors’ recommendations for improving services to the population Practical appendices for readers new to the field This unique volume is a cultural competency compendium that will increase to the effectiveness of all who respond to disasters. It will also be of interest and value to scholars, policy makers, and health professionals working in the areas of disaster management, crisis intervention, and trauma. Ethnocultural Perspectives on Disaster and Trauma points readers to what the editors call the path "beyond simple assistance to healing and the restoration of hope and meaning."}, keywords = {}, pubstate = {published}, tppubtype = {inbook} } In this pioneering volume, experts on individual and collective trauma experience, posttraumatic stress and related syndromes, and emergency and crisis intervention – share knowledge and insights on the cultural context of working with ethnic and racial minority communities during disasters. In each chapter, emotional, psychological, and social needs as well as communal strengths and coping skills that arise in disasters are documented for major minority groups in the United States including specific chapters on African Americans, Native Americans, Arab Americans, Asian Indians, Chinese Americans, Caribbean Americans, Latin Americans, Native Hawaiians, and Vietnamese Americans. Each chapter features information on: Demographics, major historical events, and core values of each population Important cultural insights, including communication styles, culture-specific disorders, and valid assessment instruments Therapeutic and healing traditions versus conventional medicine and therapy Perspectives specific to the population’s experience with disaster and trauma Authors’ recommendations for improving services to the population Practical appendices for readers new to the field This unique volume is a cultural competency compendium that will increase to the effectiveness of all who respond to disasters. It will also be of interest and value to scholars, policy makers, and health professionals working in the areas of disaster management, crisis intervention, and trauma. Ethnocultural Perspectives on Disaster and Trauma points readers to what the editors call the path "beyond simple assistance to healing and the restoration of hope and meaning." |
2023 |
Baldwin, Julie; Alvarado, Angelica; Jarratt-Snider, Karen; Hunter, Amanda; Keene, Chesleigh; Castagno, Angelina; Ali-Joseph, Alisse; Roddy, Juliette; Jr, Manley Begay A; Joseph, Darold H; Goldtooth, Carol; Camplain, Carolyn; Smith, Melinda; McCue, Kelly; Begay, Andria B; Teufel-Shone, Nicolette I Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study Journal Article Forthcoming JMIR Publications, Forthcoming. @article{Baldwin2023, title = {Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Multi-Method Study}, author = {Julie Baldwin and Angelica Alvarado and Karen Jarratt-Snider and Amanda Hunter and Chesleigh Keene and Angelina Castagno and Alisse Ali-Joseph and Juliette Roddy and Manley A. Begay Jr and Darold H. Joseph and Carol Goldtooth and Carolyn Camplain and Melinda Smith and Kelly McCue and Andria B. Begay and Nicolette I. Teufel-Shone}, url = {https://preprints.jmir.org/preprint/44727/accepted}, doi = {10.2196/44727}, year = {2023}, date = {2023-05-03}, journal = {JMIR Publications}, abstract = {Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A}, keywords = {}, pubstate = {forthcoming}, tppubtype = {article} } Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. Clinical Trial: N/A |
Armin, Julie S; Williamson, Heather J; Rothers, Janet; Lee, Michele S; Baldwin, Julie A JMIR Research Protocols, 12 (e37801), 2023. @article{Armin2023, title = {An adapted cancer screening education program for Native American women with intellectual and developmental disabilities and their caregivers: Protocol for feasibility and acceptability testing}, author = {Julie S Armin and Heather J Williamson and Janet Rothers and Michele S Lee and Julie A Baldwin }, url = {https://www.researchprotocols.org/2023/1/e37801}, doi = {10.2196/37801}, year = {2023}, date = {2023-02-13}, journal = {JMIR Research Protocols}, volume = {12}, number = {e37801}, abstract = {Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Women with intellectual and developmental disabilities (IDD) do not undergo breast and cervical cancer screening at the same rate as women without IDD. IDDs are diagnosed in childhood, are lifelong, and involve difficulties in adaptive behaviors and intellectual functioning. Native American women also experience disparities in breast and cervical cancer screenings. Despite known disparities, women with IDD are often not included in health promotion programs, and there is a need for evidence-based programming for those with intersectional identities, such as Native American women with IDD. This study aims to assess the feasibility and acceptability of My Health My Choice (MHMC), an adaptation of the Women Be Healthy 2 program. There are 2 parts to the study: adaptation of the Women Be Healthy 2 program and feasibility and acceptability testing of MHMC. |
2022 |
Baldwin, Julie A; A, Alvarado; K, Jarratt-Snider; A, Hunter; C, Keene; A, Castagno; A, Ali-Joseph; J, Roddy; Jr, Begay M; Joseph D, Goldtooth C; C, Camplain; M, Smith; K, McCue; A, Begay; N, Teufel-Shone Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Mixed-Methods Study Journal Article JMIR Publications, 2022. @article{Baldwin2022, title = {Understanding Resilience and Mental Wellbeing in Southwest Indigenous Nations and the Impact of COVID-19: Protocol for a Mixed-Methods Study}, author = {Julie A. Baldwin and Alvarado A and Jarratt-Snider K and Hunter A and Keene C and Castagno A and Ali-Joseph A and Roddy J and Begay M Jr and Joseph D, Goldtooth C and Camplain C and Smith M and McCue K and Begay A and Teufel-Shone N}, url = {https://www.researchgate.net/publication/366048977_Understanding_Resilience_and_Mental_Wellbeing_in_Southwest_Indigenous_Nations_and_the_Impact_of_COVID-19_Protocol_for_a_Mixed-Methods_Study_Preprint}, doi = {10.2196/preprints.44727}, year = {2022}, date = {2022-11-09}, journal = {JMIR Publications}, abstract = {Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. OBJECTIVE Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. To guide this study, we developed a conceptual framework based upon IDOH, Indigenous Nation-Building, and concepts of Indigenous Mental Wellbeing and Resilience. The research process was guided by the CARE Principles for Indigenous Data Governance to honor tribal and data sovereignty. Data were collected through a mixed methods research design - including interviews, talking circles, asset mapping, and coding of executive orders - that documented the contextual factors that contribute to mental health and wellbeing among Native nations. Special attention was placed on the assets and culturally, socially, and geographically distinct features of each Native nation and the communities within them. Our study was unique in that our research team consisted of predominantly Indigenous scholars and community researchers representing at least eight tribes and nations in the United States. The members of the team, regardless of whether they identified as Indigenous or non-Indigenous, have many collective years of experience working with Indigenous peoples and are committed to the health and wellbeing of tribal communities. RESULTS: The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. CONCLUSIONS: This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Despite experiencing many adversities, American Indians/Alaska Natives (AI/ANs) have demonstrated tremendous resilience during the COVID-19 pandemic, drawing upon Indigenous determinants of health (IDOH) and Indigenous Nation-Building. OBJECTIVE Our multidisciplinary team undertook this study to achieve two aims: 1) to determine the role of IDOH in tribal government policy and action that support Indigenous mental health and wellbeing, and in turn, resilience during the COVID-19 crisis; and 2) to document the impact of IDOH on Indigenous mental health, wellbeing, and resilience of four specific community groups, including first responders, educators, traditional knowledge holders and practitioners, and the substance abuse recovery community, living and/or working in or near three Native nations in Arizona. To guide this study, we developed a conceptual framework based upon IDOH, Indigenous Nation-Building, and concepts of Indigenous Mental Wellbeing and Resilience. The research process was guided by the CARE Principles for Indigenous Data Governance to honor tribal and data sovereignty. Data were collected through a mixed methods research design - including interviews, talking circles, asset mapping, and coding of executive orders - that documented the contextual factors that contribute to mental health and wellbeing among Native nations. Special attention was placed on the assets and culturally, socially, and geographically distinct features of each Native nation and the communities within them. Our study was unique in that our research team consisted of predominantly Indigenous scholars and community researchers representing at least eight tribes and nations in the United States. The members of the team, regardless of whether they identified as Indigenous or non-Indigenous, have many collective years of experience working with Indigenous peoples and are committed to the health and wellbeing of tribal communities. RESULTS: The number of participants enrolled in this study was 105 adults, with a total of 92 individuals interviewed and 13 individuals engaged in four talking circles. Due to time constraints, the team elected to host talking circles with only one nation, with participants ranging from 2-6 in each group. Currently, we are in the process of conducting a qualitative analysis of the transcribed narratives from the interviews, talking circles, and executive orders. These processes and outcomes will be described in future manuscripts. CONCLUSIONS: This community-engaged study lays the groundwork for future studies addressing Indigenous mental health, wellbeing, and resilience. Findings from this study will be shared through presentations and publications to larger Indigenous and non-Indigenous audiences; local recovery groups, treatment centers, and individuals in recovery; K-12 and higher education educators and administrators; directors of first responder agencies; traditional medicine practitioners; and elected community leaders. The findings will also be used to produce wellbeing and resilience education materials, such as print and digital toolkits, in-service training sessions, and future recommendations for stakeholder organizations. |
Dreifuss, Heather M; Belin, Kalvina L; Wilson, Jamie; George, Shawndeena; Waters, Amber-Rose; Bauer, Carmella Kahn 1and Mark B C; Teufel-Shone, Nicolette I Engaging Native American High School Students in Public Health Career Preparation Through the Indigenous Summer Enhancement Program Journal Article Frontiers in Public Heath, 10 , 2022. @article{Dreifuss2022, title = {Engaging Native American High School Students in Public Health Career Preparation Through the Indigenous Summer Enhancement Program}, author = {Heather M Dreifuss and Kalvina L Belin and Jamie Wilson and Shawndeena George and Amber-Rose Waters and Carmella B Kahn 1and Mark C Bauer and Nicolette I Teufel-Shone}, url = {https://pubmed.ncbi.nlm.nih.gov/35273937/10.3389/fpubh.2022.789994}, doi = {10.3389/fpubh.2022.789994}, year = {2022}, date = {2022-02-22}, journal = {Frontiers in Public Heath}, volume = {10}, abstract = {Native American populations are systematically marginalized in the healthcare and public health workforce. One effective approach to reduce health disparities and improve health care delivery among Indigenous populations is to train more Native American health professionals who integrate academic and cultural knowledge to understand and influence health behaviors and perspectives. Diné College partnered with Northern Arizona University to develop the Navajo Native American Research Center for Health (NARCH) Partnership, funded by the National Institutes of Health. The high school component of the Navajo NARCH Partnership created the Indigenous Summer Enhancement Program (ISEP), a 1-week summer training program providing exposure to health careers and mentorship in pursuing public health careers for Native American high school students. ISEP utilizes the Diné Educational Philosophy (DEP), a Navajo conceptual framework to serve as the foundation of the program. In 2020-2021, due to COVID-19 restrictions, the DEP model had to be incorporated in the Navajo NARCH high school virtual program activities. ISEP used 2018 and 2019 past program evaluation data to inform the virtual programming. Students' perception of the program was collected using an online Qualtrics evaluation questionnaire. Students stated appreciation for program staff, fellow students, peer mentors and culturally relevant learning experiences in both virtual and in-person environments. Recommendations included: expanding the length of ISEP and continuing the hands-on activities and Public Health Leadership series}, keywords = {}, pubstate = {published}, tppubtype = {article} } Native American populations are systematically marginalized in the healthcare and public health workforce. One effective approach to reduce health disparities and improve health care delivery among Indigenous populations is to train more Native American health professionals who integrate academic and cultural knowledge to understand and influence health behaviors and perspectives. Diné College partnered with Northern Arizona University to develop the Navajo Native American Research Center for Health (NARCH) Partnership, funded by the National Institutes of Health. The high school component of the Navajo NARCH Partnership created the Indigenous Summer Enhancement Program (ISEP), a 1-week summer training program providing exposure to health careers and mentorship in pursuing public health careers for Native American high school students. ISEP utilizes the Diné Educational Philosophy (DEP), a Navajo conceptual framework to serve as the foundation of the program. In 2020-2021, due to COVID-19 restrictions, the DEP model had to be incorporated in the Navajo NARCH high school virtual program activities. ISEP used 2018 and 2019 past program evaluation data to inform the virtual programming. Students' perception of the program was collected using an online Qualtrics evaluation questionnaire. Students stated appreciation for program staff, fellow students, peer mentors and culturally relevant learning experiences in both virtual and in-person environments. Recommendations included: expanding the length of ISEP and continuing the hands-on activities and Public Health Leadership series |
2020 |
Bordeaux, Skyler J; Baca, Anthony W; Begay, Rene L; Gachupin, Francine C; Caporaso, Gregory J; Herbst-Kralovetz, Melissa M; Lee, Naomi R Designing Inclusive HPV Cancer Vaccines and Increasing Uptake among Native Americans-A Cultural Perspective Review Journal Article Current Oncology, 28 (5), pp. 3705-3716, 2020. @article{Bordeaux2021, title = {Designing Inclusive HPV Cancer Vaccines and Increasing Uptake among Native Americans-A Cultural Perspective Review}, author = {Skyler J Bordeaux and Anthony W Baca and Rene L Begay and Francine C Gachupin and J Gregory Caporaso and Melissa M Herbst-Kralovetz and Naomi R Lee}, url = {https://www.mdpi.com/1718-7729/28/5/316}, doi = {10.3390/curroncol28050316}, year = {2020}, date = {2020-09-24}, journal = {Current Oncology}, volume = {28}, number = {5}, pages = {3705-3716}, abstract = {Despite a global and nationwide decrease, Native Americans continue to experience high rates of cancer morbidity and mortality. Vaccination is one approach to decrease cancer incidence such as the case of cervical cancer. However, the availability of vaccines does not guarantee uptake, as evident in the Coronavirus 2019 pandemic. Therefore, as we consider current and future cancer vaccines, there are certain considerations to be mindful of to increase uptake among Native Americans such as the incidence of disease, social determinants of health, vaccine hesitancy, and historical exclusion in clinical trials. This paper primarily focuses on human papillomavirus (HPV) and potential vaccines for Native Americans. However, we also aim to inform researchers on factors that influence Native American choices surrounding vaccination and interventions including cancer therapies. We begin by providing an overview of the historical distrust and trauma Native Americans experience, both past and present. In addition, we offer guidance and considerations when engaging with sovereign Tribal Nations in vaccine development and clinical trials in order to increase trust and encourage vaccine uptake.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Despite a global and nationwide decrease, Native Americans continue to experience high rates of cancer morbidity and mortality. Vaccination is one approach to decrease cancer incidence such as the case of cervical cancer. However, the availability of vaccines does not guarantee uptake, as evident in the Coronavirus 2019 pandemic. Therefore, as we consider current and future cancer vaccines, there are certain considerations to be mindful of to increase uptake among Native Americans such as the incidence of disease, social determinants of health, vaccine hesitancy, and historical exclusion in clinical trials. This paper primarily focuses on human papillomavirus (HPV) and potential vaccines for Native Americans. However, we also aim to inform researchers on factors that influence Native American choices surrounding vaccination and interventions including cancer therapies. We begin by providing an overview of the historical distrust and trauma Native Americans experience, both past and present. In addition, we offer guidance and considerations when engaging with sovereign Tribal Nations in vaccine development and clinical trials in order to increase trust and encourage vaccine uptake. |
2019 |
Williamson, Heather J; Brennan, Alissa C; Tress, Samantha F; Joseph, Darold H; Baldwin, Julie A Exploring Health and Wellness among Native American Adults with Intellectual and/or Developmental Disabilities and Their Family Caregivers Journal Article Journal of Applied Research in Intellectual Disabilities, pp. 1-7, 2019. @article{Williamson2019b, title = {Exploring Health and Wellness among Native American Adults with Intellectual and/or Developmental Disabilities and Their Family Caregivers}, author = {Heather J. Williamson and Alissa C. Brennan and Samantha F. Tress and Darold H. Joseph and Julie A. Baldwin}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jar.12664}, doi = {10.1111/jar.12664}, year = {2019}, date = {2019-08-22}, journal = {Journal of Applied Research in Intellectual Disabilities}, pages = {1-7}, abstract = {Background: Adults with intellectual and/or developmental disabilities (IDD) experience health inequities, and those who also identify as a member of an ethnic minority group face additional health inequities. In the United States, a majority of adults with IDD continue to be supported by family caregivers making their health equity also important. The purpose of this study was to explore how Native American adults with IDD and their family caregivers experience health and wellness. Method: This community‐engaged research was guided by a Community Advisory Board (CAB) with study participants completing a photovoice project. Results: Participants identified individual, family and community level influences on health and wellness including the importance of participation in meaningful activities and connection to culture. Conclusions: In order to address health inequities, more research is needed to under‐ stand health and wellness from the unique perspectives of individuals with IDD and those from racial and ethnic minority groups.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Background: Adults with intellectual and/or developmental disabilities (IDD) experience health inequities, and those who also identify as a member of an ethnic minority group face additional health inequities. In the United States, a majority of adults with IDD continue to be supported by family caregivers making their health equity also important. The purpose of this study was to explore how Native American adults with IDD and their family caregivers experience health and wellness. Method: This community‐engaged research was guided by a Community Advisory Board (CAB) with study participants completing a photovoice project. Results: Participants identified individual, family and community level influences on health and wellness including the importance of participation in meaningful activities and connection to culture. Conclusions: In order to address health inequities, more research is needed to under‐ stand health and wellness from the unique perspectives of individuals with IDD and those from racial and ethnic minority groups. |
Dunn, Dorothy J; Schwartz, Anna; Teufel-Shone, Nicolette I; Meyer, Linda A Visions: The Journal of Rogerian Scholar Science, 25 (2), pp. 16, 2019. @article{Dunn2019, title = {Educational Program to Build Resilience for Caregivers, Family Members, and Community Members in the Care of Elder Native Americans who are Experiencing Memory Loss and Cognitive Decline}, author = {Dorothy J Dunn and Anna Schwartz and Nicolette I. Teufel-Shone and Linda A. Meyer }, url = {https://www.thefreelibrary.com/Educational+Program+to+Promote+Resilience+for+Caregivers%2C+Family...-a0583693719}, year = {2019}, date = {2019-03-01}, journal = {Visions: The Journal of Rogerian Scholar Science}, volume = {25}, number = {2}, pages = {16}, abstract = {Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Partnering with Adopt-A-Native-Elder Program (ANE) afforded the opportunity for tribal and academic partners to explore the role of resilience in contributing positive health outcomes in the Navajo communities who are experience memory loss, cognitive decline, and/or dementia as they age. The purpose of this project was to provide an educational program to build and nurture resilience for caregivers and their Navajo Elder‘s in a manner to maintain their traditional spirit and cultural lifestyle. Using a community-based participatory framework grounded through the lens of compassion energy with ANE and focusing on Navajo Elder’s and their caregivers for this project allowed for a better sense of how caregiving for Native Elders with memory loss and cognitive decline is manifested and experienced. |
Cordova-Marks, Felina M; Harris, Robin; Teufel-Shone, Nicolette I; Norton, Beatrice; Mastergeorge, Ann M; Gerald, Lynn Characteristics of American Indian Female Caregivers on a Southwest American Indian Reservation Journal Article Journal of Community Health, 44 (1), pp. 52-60, 2019. @article{Cordova-Marks2019, title = {Characteristics of American Indian Female Caregivers on a Southwest American Indian Reservation}, author = {Felina M Cordova-Marks and Robin Harris and Nicolette I Teufel-Shone and Beatrice Norton and Ann M Mastergeorge and Lynn Gerald}, url = {https://link.springer.com/article/10.1007/s10900-018-0552-7}, year = {2019}, date = {2019-02-01}, journal = {Journal of Community Health}, volume = {44}, number = {1}, pages = {52-60}, abstract = {American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress. |
2018 |
Cordova-Marks, Felina M; Harris, Robin; Teufel-Shone, Nicolette; Norton, Beatrice; Mastergeorge, Ann M; Gerald, Lynn Characteristics of American Indian female caregivers on a Southwest American Indian reservation Journal Article Journal of Community Health, 2018. @article{Cordova-Marks2018, title = {Characteristics of American Indian female caregivers on a Southwest American Indian reservation}, author = {Felina M Cordova-Marks and Robin Harris and Nicolette Teufel-Shone and Beatrice Norton and Ann M Mastergeorge and Lynn Gerald}, url = {https://link.springer.com/article/10.1007%2Fs10900-018-0552-7}, year = {2018}, date = {2018-07-28}, journal = {Journal of Community Health}, abstract = {American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress.}, keywords = {}, pubstate = {published}, tppubtype = {article} } American Indian (AI) caregivers have been excluded from national survey efforts. Drawing from a 2012 survey administered on the Hopi Reservation in northern Arizona, 20% of adults are caregivers. More information is needed to guide program development tailored to Hopi needs. In a University-Community collaboration, a 58 question survey was administered to self-identified caregivers of a family member about amount and type of care provided, difficulties, caregiver health, and desired support services. Characteristics of caregivers and their experiences were described. Forty-four (44) female Hopi caregivers were interviewed from June–October 2017, mean age of 59 years (± 12.6) with mean 5.5 year (± 4.4) history of providing care. Over 84% provided care to either a parent or grandparent. Most caregivers provided transportation (93.2%), housework (93.2%), and medical related care (72.7%). Caregivers stated they had difficulties with not having enough time for family and or friends (88.6%), financial burdens (75.0%), and not having enough time for themselves (61.4%). The most frequently identified difficulty was stress (45.5%). Caregivers would like additional services, with 76.7% asking for training. Over 77% would not consider placing their relative in an assisted living facility. Compared to national data, Hopi female caregivers are older, provide more care hours/week, more caregiving duties, and for a longer number of years. Stress is the most reported difficulty, although lower than national levels. As caregivers are resistant to placing the recipient in assisted living, educational efforts should focus on training caregivers to assist the care recipient and decreasing caregiver stress. |
2016 |
Chief, Carmenlita; Sabo, Samantha; Clark, Hershel; Henderson, Patricia Nez; Yazzie, Alfred; Nahee, Jacqueline; Leischow, Scott J Tobacco Control, 25 , pp. 19-25, 2016. @article{Chief2016, title = {Breathing clean air is Są’áh Naagháí Bik'eh Hózhóó (SNBH): a culturally centered approach to understanding commercial smoke-free policy among the Diné (Navajo People)}, author = {Carmenlita Chief and Samantha Sabo and Hershel Clark and Patricia Nez Henderson and Alfred Yazzie and Jacqueline Nahee and Scott J Leischow}, url = {http://dx.doi.org/10.1136/tobaccocontrol-2016-053081}, year = {2016}, date = {2016-10-03}, journal = {Tobacco Control}, volume = {25}, pages = {19-25}, abstract = {Introduction Indigenous worldviews and research approaches are fundamental to make meaning of complex health issues and increase the likelihood of identifying existing cultural protective factors that have contributed to the resilience and survival of Indigenous people worldwide. Objective: We describe the process for applying the Diné (Navajo) paradigm of Są’áh Naagháí Bik'eh Hózhóó (SNBH), a belief system that guides harmonious living, and demonstrate how the application of SNBH enhances understanding of Navajo principles for well-being. Specifically, we juxtapose this analysis with a conventional qualitative analysis to illuminate and interpret Diné perspectives on the health and economic impact of commercial secondhand smoke and smoke-free policy. Methods Focus groups were conducted throughout Navajo Nation to assess the appeal and impact of several evidence-based messages regarding the health and economic impact of smoke-free policy. Results Diné perspectives have shifted away from family and cultural teachings considered protective of a smoke-free life, and struggle to balance the ethical and economics of respect for individual and collective rights to live and work in smoke-free environments. Conclusions Indigenous-centered approaches to public health research and policy analysis contribute to understanding the cultural knowledge, practices and beliefs that are protective of the health and well-being of Indigenous people.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Introduction Indigenous worldviews and research approaches are fundamental to make meaning of complex health issues and increase the likelihood of identifying existing cultural protective factors that have contributed to the resilience and survival of Indigenous people worldwide. Objective: We describe the process for applying the Diné (Navajo) paradigm of Są’áh Naagháí Bik'eh Hózhóó (SNBH), a belief system that guides harmonious living, and demonstrate how the application of SNBH enhances understanding of Navajo principles for well-being. Specifically, we juxtapose this analysis with a conventional qualitative analysis to illuminate and interpret Diné perspectives on the health and economic impact of commercial secondhand smoke and smoke-free policy. Methods Focus groups were conducted throughout Navajo Nation to assess the appeal and impact of several evidence-based messages regarding the health and economic impact of smoke-free policy. Results Diné perspectives have shifted away from family and cultural teachings considered protective of a smoke-free life, and struggle to balance the ethical and economics of respect for individual and collective rights to live and work in smoke-free environments. Conclusions Indigenous-centered approaches to public health research and policy analysis contribute to understanding the cultural knowledge, practices and beliefs that are protective of the health and well-being of Indigenous people. |
2015 |
Laurila, Kelly; Ingram, Jani C; Briehl, Margaret M; Trotter, Robert Weaving the Web: Evaluation Strategies to Help Native-American Undergraduate Research Training Programs Navigate Students to Success Journal Article CURQ on the Web, 35 (3), pp. 4-11, 2015. @article{Laurila2015, title = {Weaving the Web: Evaluation Strategies to Help Native-American Undergraduate Research Training Programs Navigate Students to Success}, author = {Kelly Laurila and Jani C Ingram and Margaret M Briehl and Robert Trotter}, url = {https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4671630/}, year = {2015}, date = {2015-12-07}, journal = {CURQ on the Web}, volume = {35}, number = {3}, pages = {4-11}, abstract = {Native-American cultures are characterized by strong connections to community, family, and the land. These connections are integrated into Native-American education, resulting in curricula that are different from those in Western educational systems. Differences between Native-American and Western cultures create challenges for those educated in Native-American education systems when they pursue postsecondary education in Western cultures. The under-representation of Native-Americans among those earning degrees reflects both extremely low enrollment rates and generally poor retention rates for Native-American college students (UA 2009). Obstacles for Native-American students include inadequate academic preparation, cultural differences, vague constructs of educational or vocational goals, insufficient financial aid, and social isolation (McClellan et al. 2005). Engaging Native-American students in research is one strategy for overcoming these obstacles and improving their college experience. Here we describe a research-based training program focused on Native-American undergraduates, the evaluation model and process used to evaluate this program, and the paradigm-shifting insights that emerged from the evaluation data.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Native-American cultures are characterized by strong connections to community, family, and the land. These connections are integrated into Native-American education, resulting in curricula that are different from those in Western educational systems. Differences between Native-American and Western cultures create challenges for those educated in Native-American education systems when they pursue postsecondary education in Western cultures. The under-representation of Native-Americans among those earning degrees reflects both extremely low enrollment rates and generally poor retention rates for Native-American college students (UA 2009). Obstacles for Native-American students include inadequate academic preparation, cultural differences, vague constructs of educational or vocational goals, insufficient financial aid, and social isolation (McClellan et al. 2005). Engaging Native-American students in research is one strategy for overcoming these obstacles and improving their college experience. Here we describe a research-based training program focused on Native-American undergraduates, the evaluation model and process used to evaluate this program, and the paradigm-shifting insights that emerged from the evaluation data. |
Walsh, Margaret L; Baldwin, Julie A AMERICAN INDIAN SUBSTANCE ABUSE PREVENTION EFFORTS: A REVIEW OF PROGRAMS, 2003-2013 Journal Article American Indian and Alaska Native Mental Health Research, 22 (2), pp. 41-68, 2015. @article{Walsh2015, title = {AMERICAN INDIAN SUBSTANCE ABUSE PREVENTION EFFORTS: A REVIEW OF PROGRAMS, 2003-2013}, author = {Margaret L Walsh and Julie A Baldwin}, url = {https://www.ncbi.nlm.nih.gov/pubmed/26053884}, doi = {10.5820/aian.2202.2015.41}, year = {2015}, date = {2015-11-02}, journal = {American Indian and Alaska Native Mental Health Research}, volume = {22}, number = {2}, pages = {41-68}, abstract = {The purpose of the review was to assess substance abuse prevention (SAP) efforts in American Indian and Alaska Native (AI/AN) communities from 2003-2013. In the past, many SAP programs were unable to meet the unique cultural needs of AI/AN communities adequately. It has been suggested that a disconnect may exist between the theories that are used to guide development of prevention programs in AI/AN communities and culturally appropriate theoretical constructs of AI/AN worldviews. To explore this possible disconnect further, Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to assess a total of 18 articles (N = 31 programs) on program location and method, participant characteristics, described program cultural elements, use of theory, program outcomes, program measures, and future recommendations. Results indicated that SAP programs in AI/AN communities vary widely in their use of theory, implementation strategies, view and definition of cultural constructs, overall evaluational rigor, and reporting methods. Future research is needed to integrate appropriate theory and cultural elements into SAP programs to tie them to measurable outcomes for AI/AN communities.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The purpose of the review was to assess substance abuse prevention (SAP) efforts in American Indian and Alaska Native (AI/AN) communities from 2003-2013. In the past, many SAP programs were unable to meet the unique cultural needs of AI/AN communities adequately. It has been suggested that a disconnect may exist between the theories that are used to guide development of prevention programs in AI/AN communities and culturally appropriate theoretical constructs of AI/AN worldviews. To explore this possible disconnect further, Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were used to assess a total of 18 articles (N = 31 programs) on program location and method, participant characteristics, described program cultural elements, use of theory, program outcomes, program measures, and future recommendations. Results indicated that SAP programs in AI/AN communities vary widely in their use of theory, implementation strategies, view and definition of cultural constructs, overall evaluational rigor, and reporting methods. Future research is needed to integrate appropriate theory and cultural elements into SAP programs to tie them to measurable outcomes for AI/AN communities. |
2014 |
Teufel-Shone, Nicolette; Gamber, Michelle; Watahomigie, Helen; Siyuja, Jr T J; Crozier, Laurie; Irwin, Sandra L Preventing Chronic Disease, 11 (E166), 2014. @article{Teufel-Shone2014, title = {Using a participatory research approach in a school-based physical activity intervention to prevent diabetes in the Hualapai Indian community, Arizona, 2002-2006}, author = {Nicolette Teufel-Shone and Michelle Gamber and Helen Watahomigie and Jr T. J. Siyuja and Laurie Crozier and Sandra L Irwin}, url = {https://www.ncbi.nlm.nih.gov/pubmed/25254984}, doi = {10.5888/pcd11.130397}, year = {2014}, date = {2014-09-25}, journal = {Preventing Chronic Disease}, volume = {11}, number = {E166}, abstract = {INTRODUCTION: In the United States, type 2 diabetes has reached epidemic proportions among indigenous people. Community-based participatory research offers American Indian communities and university partners an opportunity to integrate skills in community action and systematic inquiry to develop locally acceptable primary prevention interventions to combat diabetes risk factors. The Hualapai Tribe and the University of Arizona designed, implemented, and assessed a school-based physical activity intervention to reduce diabetes risk factors among youth. METHODS: During a 2-year period, trained community members led in-school physical activity classes 2 times per week among students in grades 3 through 8. Body mass index (BMI), fitness measures, and fasting blood glucose level were measured on 6 occasions. Descriptive statistics and t tests were used to assess change in outcome measures. RESULTS: Of the more than 100 youth who took part in the physical activity classes for 2 years, 71 youth (38 male, 33 female) participated in 3 or more data collection sessions. Over time, the percentage of youth with a high fasting blood glucose level of more than 125 mg/dL decreased concurrently with significant improvements in fitness measures. However, BMI increased in both male and female participants. The high number of youth who missed more than 3 data collection sessions was attributed to poor school attendance and tardiness. CONCLUSION: Classes led by lay physical activity leaders can affect diabetes risk factors in youth. Incongruous health and fitness outcomes suggest that one indicator does not adequately define the risk profile; BMI alone may not be sufficient as a measure of diabetes risk in youth.}, keywords = {}, pubstate = {published}, tppubtype = {article} } INTRODUCTION: In the United States, type 2 diabetes has reached epidemic proportions among indigenous people. Community-based participatory research offers American Indian communities and university partners an opportunity to integrate skills in community action and systematic inquiry to develop locally acceptable primary prevention interventions to combat diabetes risk factors. The Hualapai Tribe and the University of Arizona designed, implemented, and assessed a school-based physical activity intervention to reduce diabetes risk factors among youth. METHODS: During a 2-year period, trained community members led in-school physical activity classes 2 times per week among students in grades 3 through 8. Body mass index (BMI), fitness measures, and fasting blood glucose level were measured on 6 occasions. Descriptive statistics and t tests were used to assess change in outcome measures. RESULTS: Of the more than 100 youth who took part in the physical activity classes for 2 years, 71 youth (38 male, 33 female) participated in 3 or more data collection sessions. Over time, the percentage of youth with a high fasting blood glucose level of more than 125 mg/dL decreased concurrently with significant improvements in fitness measures. However, BMI increased in both male and female participants. The high number of youth who missed more than 3 data collection sessions was attributed to poor school attendance and tardiness. CONCLUSION: Classes led by lay physical activity leaders can affect diabetes risk factors in youth. Incongruous health and fitness outcomes suggest that one indicator does not adequately define the risk profile; BMI alone may not be sufficient as a measure of diabetes risk in youth. |
2011 |
Bletzer, Keith V; Yuan, Nicole P; Koss, Mary P; Polacca, Mona; Eaves, Emery R; Goldman, David Taking humor seriously: talking about drinking in Native American focus groups Journal Article Medical Anthropology, 30 (3), pp. 295-318, 2011. @article{Bletzer2011, title = {Taking humor seriously: talking about drinking in Native American focus groups}, author = {Keith V Bletzer and Nicole P Yuan and Mary P Koss and Mona Polacca and Emery R Eaves and David Goldman}, url = {https://www.ncbi.nlm.nih.gov/pubmed/21590583}, doi = {10.1080/01459740.2011.560584}, year = {2011}, date = {2011-05-01}, journal = {Medical Anthropology}, volume = {30}, number = {3}, pages = {295-318}, abstract = {Focus groups provide a source of data that highlight community ideas on a topic of interest. How interview data will be utilized varies by project. With this in mind, we identify ways that focus group data from a particular population (Native American) articulate a health issue of individual tribal concern (alcohol consumption). Taking our analytic framework from linguistics, one of the four fields of inquiry in anthropology, we examine format ties and the performance of humor as stylistic features of tribal focus groups and illustrate how linguistic devices can be used in analyzing aspects of adolescent and adult drinking. Focus group data require systematic review and analysis to identify useful findings that can lead to inquiry points to initiate collaborative work with local experts before the data can be developed and configured into effective program initiatives.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Focus groups provide a source of data that highlight community ideas on a topic of interest. How interview data will be utilized varies by project. With this in mind, we identify ways that focus group data from a particular population (Native American) articulate a health issue of individual tribal concern (alcohol consumption). Taking our analytic framework from linguistics, one of the four fields of inquiry in anthropology, we examine format ties and the performance of humor as stylistic features of tribal focus groups and illustrate how linguistic devices can be used in analyzing aspects of adolescent and adult drinking. Focus group data require systematic review and analysis to identify useful findings that can lead to inquiry points to initiate collaborative work with local experts before the data can be developed and configured into effective program initiatives. |
Sanderson, Priscilla R; Weinstein, Neil; Teufel-Shone, Nicolette; Martínez, María Elena Assessing colorectal cancer screening knowledge at tribal fairs Journal Article Preventing Chronic Disease, 8 (1), pp. 1-10, 2011. @article{Sanderson2011, title = {Assessing colorectal cancer screening knowledge at tribal fairs}, author = {Priscilla R Sanderson and Neil Weinstein and Nicolette Teufel-Shone and María Elena Martínez}, url = {https://www.ncbi.nlm.nih.gov/pubmed/21159228}, year = {2011}, date = {2011-01-01}, journal = {Preventing Chronic Disease}, volume = {8}, number = {1}, pages = {1-10}, abstract = {INTRODUCTION: Increasing public awareness and knowledge about the need for colorectal cancer (CRC) screening among American Indians is key to reducing health disparities. The objective of this study was to assess Navajo adults' knowledge of CRC risk factors and prevention, CRC screening, and self-reported experience with CRC screening. METHODS: We collected data generated by a self-administered survey given to Navajo adults, most of whom lived on the reservation. Data were collected at 2 annual tribal fairs in 2006. Fair attendees who visited an exhibit booth completed a CRC knowledge survey. The study design was nonrandomized. RESULTS: Of the 285 Navajo adults who participated, most were bilingual (74%) and female (80%). Of the respondents aged 50 years or older, 77% had heard of CRC screening and 28% reported being screened for colon or colorectal cancer. Knowledge was high (mean, 5.78 [standard deviation (SD), 1.28]) (8.0 was the highest possible knowledge score). Respondents with little or no formal schooling had lower scores (mean, 5.4), indicating less knowledge of CRC and associated screening tests than did those with more education (mean, 6.0). CONCLUSION: Among a sample of Navajo adults aged 50 years or older, participants with more education were more likely to be knowledgeable about CRC and to have received screening. This survey, led by a Navajo investigator with Navajo surveyors, revealed a high awareness of CRC and screening, but overall CRC screening was low. CRC education for Navajo adults who have little or no formal schooling should be improved.}, keywords = {}, pubstate = {published}, tppubtype = {article} } INTRODUCTION: Increasing public awareness and knowledge about the need for colorectal cancer (CRC) screening among American Indians is key to reducing health disparities. The objective of this study was to assess Navajo adults' knowledge of CRC risk factors and prevention, CRC screening, and self-reported experience with CRC screening. METHODS: We collected data generated by a self-administered survey given to Navajo adults, most of whom lived on the reservation. Data were collected at 2 annual tribal fairs in 2006. Fair attendees who visited an exhibit booth completed a CRC knowledge survey. The study design was nonrandomized. RESULTS: Of the 285 Navajo adults who participated, most were bilingual (74%) and female (80%). Of the respondents aged 50 years or older, 77% had heard of CRC screening and 28% reported being screened for colon or colorectal cancer. Knowledge was high (mean, 5.78 [standard deviation (SD), 1.28]) (8.0 was the highest possible knowledge score). Respondents with little or no formal schooling had lower scores (mean, 5.4), indicating less knowledge of CRC and associated screening tests than did those with more education (mean, 6.0). CONCLUSION: Among a sample of Navajo adults aged 50 years or older, participants with more education were more likely to be knowledgeable about CRC and to have received screening. This survey, led by a Navajo investigator with Navajo surveyors, revealed a high awareness of CRC and screening, but overall CRC screening was low. CRC education for Navajo adults who have little or no formal schooling should be improved. |
2010 |
Johnson, Jeannette; Baldwin, Julie A; Gryczynski, Jan; Wiechelt, Shelly A; Haring, Rodney C The Native American experience: From displacement and cultural trauma to resilience Book Chapter Multiethnicity and Multiethnic Families: Development, Identity, and Resilience, Chapter 14, pp. 277-302, Xlibris Corporation, 2010, ISBN: 9781450003407. @inbook{Johnson2010, title = {The Native American experience: From displacement and cultural trauma to resilience}, author = {Jeannette Johnson and Julie A Baldwin and Jan Gryczynski and Shelly A Wiechelt and Rodney C Haring}, url = {https://books.google.com/books?hl=en&lr=&id=VidnMGRDFdwC&oi=fnd&pg=PR2&dq=Multiethnicity+and+Multiethnic+Families:+Development,+Identity,+and+Resilience,+Chapter+14&ots=Z610xp1ePw&sig=8M8O6UAUJvfcnTvZO92e4atv-6c#v=onepage&q=Multiethnicity%20and%20Multiethnic%20Families%3A%20Development%2C%20Identity%2C%20and%20Resilience%2C%20Chapter%2014&f=false}, isbn = {9781450003407}, year = {2010}, date = {2010-01-01}, booktitle = {Multiethnicity and Multiethnic Families: Development, Identity, and Resilience}, pages = {277-302}, publisher = {Xlibris Corporation}, chapter = {14}, keywords = {}, pubstate = {published}, tppubtype = {inbook} } |
Harris, Kelly A; Trotter, Robert Community Health Status Assessment Navajo County, Arizona Journal Article 2010. @article{Harris2010, title = {Community Health Status Assessment Navajo County, Arizona}, author = {Kelly A Harris and Robert Trotter}, url = {https://repository.asu.edu/items/23700}, year = {2010}, date = {2010-01-01}, abstract = {The CHSA focuses on 11 health status indicators which include: demographic characteristics, socioeconomic characteristics, health resource availability, quality of life, behavioral risk factors, environmental health, social and mental health, maternal and child health, death, illness and injury, communicable disease, and sentinel events.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The CHSA focuses on 11 health status indicators which include: demographic characteristics, socioeconomic characteristics, health resource availability, quality of life, behavioral risk factors, environmental health, social and mental health, maternal and child health, death, illness and injury, communicable disease, and sentinel events. |
2009 |
Baldwin, Julie A; Johnson, Jeannette L; Benally, Christine C Building partnerships between indigenous communities and universities: lessons learned in HIV/AIDS and substance abuse prevention research Journal Article American Journal of Public health, 99 (S1), pp. S77-S82, 2009. @article{Baldwin2009, title = {Building partnerships between indigenous communities and universities: lessons learned in HIV/AIDS and substance abuse prevention research}, author = {Julie A Baldwin and Jeannette L Johnson and Christine C Benally}, url = {https://www.ncbi.nlm.nih.gov/pubmed/19246672}, doi = {10.2105/AJPH.2008.134585}, year = {2009}, date = {2009-04-01}, journal = {American Journal of Public health}, volume = {99}, number = {S1}, pages = {S77-S82}, abstract = {Many HIV/AIDS and substance abuse prevention studies in American Indian and Alaska Native communities have been directed by academic researchers with little community input. We examined the challenges in conducting HIV/AIDS-related research in American Indian and Alaska Native communities and the benefits of changing the research paradigm to a community-based participatory model. The lessons we learned illustrate that the research process should be a cyclical one with continual involvement by community members. Steps in the process include (1) building and sustaining collaborative relationships, (2) planning the program together, (3) implementing and evaluating the program in culturally acceptable ways, and (4) disseminating research findings from a tribal perspective. These steps can enhance the long-term capacity of the community to conduct HIV/AIDS and substance abuse prevention research.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Many HIV/AIDS and substance abuse prevention studies in American Indian and Alaska Native communities have been directed by academic researchers with little community input. We examined the challenges in conducting HIV/AIDS-related research in American Indian and Alaska Native communities and the benefits of changing the research paradigm to a community-based participatory model. The lessons we learned illustrate that the research process should be a cyclical one with continual involvement by community members. Steps in the process include (1) building and sustaining collaborative relationships, (2) planning the program together, (3) implementing and evaluating the program in culturally acceptable ways, and (4) disseminating research findings from a tribal perspective. These steps can enhance the long-term capacity of the community to conduct HIV/AIDS and substance abuse prevention research. |
Mmari, Kristin N; Blum, Robert Wm.; Teufel-Shone, Nicolette What Increases Risk and Protection for Delinquent Behaviors Among American Indian Youth? Findings from Three Tribal Communities Journal Article Youth and Society, 41 (3), pp. 382-413, 2009. @article{Mmari2009, title = {What Increases Risk and Protection for Delinquent Behaviors Among American Indian Youth? Findings from Three Tribal Communities}, author = {Kristin N Mmari and Robert Wm. Blum and Nicolette Teufel-Shone}, url = {http://journals.sagepub.com/doi/pdf/10.1177/0044118X09333645}, doi = {10.1177/0044118X09333645}, year = {2009}, date = {2009-03-24}, journal = {Youth and Society}, volume = {41}, number = {3}, pages = {382-413}, abstract = {The primary purpose of this study was to compare the risk and protective factors for delinquent behaviors among American Indian youth in three distinct tribal communities. Focus group discussions were used to gather data from elders, parents, youth workers, and youth in each tribal community. Findings showed that the key source for increasing risk and protection for delinquent behaviors among American Indian youth is the family. In particular is the protective presence of a parent and having a parent available for discussing problems. Participants also revealed how many parents lack the knowledge and confidence to discipline their children. These findings suggest a need for programs that strengthen parent-adolescent communication, parenting skills, and offer cultural teachings and sensitivity training for school personnel. Interventions also need to be specific to the cultural context and cannot assume the same risk and protective factors will apply to all American Indian youth.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The primary purpose of this study was to compare the risk and protective factors for delinquent behaviors among American Indian youth in three distinct tribal communities. Focus group discussions were used to gather data from elders, parents, youth workers, and youth in each tribal community. Findings showed that the key source for increasing risk and protection for delinquent behaviors among American Indian youth is the family. In particular is the protective presence of a parent and having a parent available for discussing problems. Participants also revealed how many parents lack the knowledge and confidence to discipline their children. These findings suggest a need for programs that strengthen parent-adolescent communication, parenting skills, and offer cultural teachings and sensitivity training for school personnel. Interventions also need to be specific to the cultural context and cannot assume the same risk and protective factors will apply to all American Indian youth. |
2008 |
Johnson, Jeannette L; Baldwin, Julie A; Haring, Rodney C; Wiechelt, Shelly A; Roth, Susan; Gryczynski, Jan; Lozano, Henry Essential information for disaster management and trauma specialists working with American Indians Book Chapter Marsella, A; Johnson, J; Watson, P; Gryczynski, J (Ed.): Ethnocultural Perspectives on Disaster and Trauma: Foundations, Issues, and Applications, Chapter 4, pp. 73-113, 2008, ISBN: 978-0-387-73285-5. @inbook{Johnson2008, title = {Essential information for disaster management and trauma specialists working with American Indians}, author = {Jeannette L Johnson and Julie A Baldwin and Rodney C Haring and Shelly A Wiechelt and Susan Roth and Jan Gryczynski and Henry Lozano}, editor = {A Marsella and J Johnson and P Watson and J Gryczynski}, url = {http://www.springer.com/us/book/9780387732848}, isbn = {978-0-387-73285-5}, year = {2008}, date = {2008-01-01}, booktitle = {Ethnocultural Perspectives on Disaster and Trauma: Foundations, Issues, and Applications}, pages = {73-113}, chapter = {4}, abstract = {In this pioneering volume, experts on individual and collective trauma experience, posttraumatic stress and related syndromes, and emergency and crisis intervention – share knowledge and insights on the cultural context of working with ethnic and racial minority communities during disasters. In each chapter, emotional, psychological, and social needs as well as communal strengths and coping skills that arise in disasters are documented for major minority groups in the United States including specific chapters on African Americans, Native Americans, Arab Americans, Asian Indians, Chinese Americans, Caribbean Americans, Latin Americans, Native Hawaiians, and Vietnamese Americans. Each chapter features information on: Demographics, major historical events, and core values of each population Important cultural insights, including communication styles, culture-specific disorders, and valid assessment instruments Therapeutic and healing traditions versus conventional medicine and therapy Perspectives specific to the population’s experience with disaster and trauma Authors’ recommendations for improving services to the population Practical appendices for readers new to the field This unique volume is a cultural competency compendium that will increase to the effectiveness of all who respond to disasters. It will also be of interest and value to scholars, policy makers, and health professionals working in the areas of disaster management, crisis intervention, and trauma. Ethnocultural Perspectives on Disaster and Trauma points readers to what the editors call the path "beyond simple assistance to healing and the restoration of hope and meaning."}, keywords = {}, pubstate = {published}, tppubtype = {inbook} } In this pioneering volume, experts on individual and collective trauma experience, posttraumatic stress and related syndromes, and emergency and crisis intervention – share knowledge and insights on the cultural context of working with ethnic and racial minority communities during disasters. In each chapter, emotional, psychological, and social needs as well as communal strengths and coping skills that arise in disasters are documented for major minority groups in the United States including specific chapters on African Americans, Native Americans, Arab Americans, Asian Indians, Chinese Americans, Caribbean Americans, Latin Americans, Native Hawaiians, and Vietnamese Americans. Each chapter features information on: Demographics, major historical events, and core values of each population Important cultural insights, including communication styles, culture-specific disorders, and valid assessment instruments Therapeutic and healing traditions versus conventional medicine and therapy Perspectives specific to the population’s experience with disaster and trauma Authors’ recommendations for improving services to the population Practical appendices for readers new to the field This unique volume is a cultural competency compendium that will increase to the effectiveness of all who respond to disasters. It will also be of interest and value to scholars, policy makers, and health professionals working in the areas of disaster management, crisis intervention, and trauma. Ethnocultural Perspectives on Disaster and Trauma points readers to what the editors call the path "beyond simple assistance to healing and the restoration of hope and meaning." |