NAU publications by CHER
Faculty & staff publications
NAU faculty and staff have the opportunity to publish their findings and knowledge as authors. CHER has many researchers that have been cited multiple times in major publications for their great work. The Center for Health Equity Research has accumulated all faculty publications into one, easy to navigate database.
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Bosch, Pamela Rogers; Barr, Dawn; Roy, Indrakshi; Fabricant, Maximillian; Mann, Audrey; Mangone, Elizabeth; Karmarkar, Amol; Kumar, Amit Association of Caregiver Availability and Training With Patient Community Discharge After Stroke Journal Article Archives of Rehabilitation Research and Clinical Translation, 100251 , 2022, ISSN: 2590-1095. @article{Bosch2022b, title = {Association of Caregiver Availability and Training With Patient Community Discharge After Stroke}, author = {Pamela Rogers Bosch and Dawn Barr and Indrakshi Roy and Maximillian Fabricant and Audrey Mann and Elizabeth Mangone and Amol Karmarkar and Amit Kumar}, url = {https://doi.org/10.1016/j.arrct.2022.100251}, doi = {10.1016/j.arrct.2022.100251}, issn = {2590-1095}, year = {2022}, date = {2022-12-17}, journal = {Archives of Rehabilitation Research and Clinical Translation}, volume = {100251}, abstract = {The objective of this study was to examine the association between committed caregivers and caregiver training with community discharge from inpatient rehabilitation following a stroke. Design Secondary analysis of data extracted from electronic health records linked with the Uniform Data System for Medical Rehabilitation. Setting Three hospital-based inpatient rehabilitation facilities (IRF) in a major metropolitan area. Participants 1,397 adult patients (mean (SD) age: 69.4 (13.5); 724 males) transferred from an acute care setting to inpatient rehabilitation after an ischemic or hemorrhagic stroke. Intervention None. Main Outcome Measure Community discharge from IRF. Results 82.4% of patients had caregivers, 63.4% of patient caregivers received training at the IRF, and 79.5% had community discharge. After adjusting for age, stroke severity, functional status, and other social risk factors, having a committed caregiver and caregiver training were significantly associated with community discharge (OR=7.80, 95% CI: 5.03 – 12.10 and OR= 4.89, 95% CI: 3.16 – 7.57 respectively). Conclusion Caregivers increase a patient's likelihood of discharge from IRF; the added benefit of caregiver training needs to be further assessed, with essential elements prioritized prior to patients’ IRF discharge.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The objective of this study was to examine the association between committed caregivers and caregiver training with community discharge from inpatient rehabilitation following a stroke. Design Secondary analysis of data extracted from electronic health records linked with the Uniform Data System for Medical Rehabilitation. Setting Three hospital-based inpatient rehabilitation facilities (IRF) in a major metropolitan area. Participants 1,397 adult patients (mean (SD) age: 69.4 (13.5); 724 males) transferred from an acute care setting to inpatient rehabilitation after an ischemic or hemorrhagic stroke. Intervention None. Main Outcome Measure Community discharge from IRF. Results 82.4% of patients had caregivers, 63.4% of patient caregivers received training at the IRF, and 79.5% had community discharge. After adjusting for age, stroke severity, functional status, and other social risk factors, having a committed caregiver and caregiver training were significantly associated with community discharge (OR=7.80, 95% CI: 5.03 – 12.10 and OR= 4.89, 95% CI: 3.16 – 7.57 respectively). Conclusion Caregivers increase a patient's likelihood of discharge from IRF; the added benefit of caregiver training needs to be further assessed, with essential elements prioritized prior to patients’ IRF discharge. |
Williamson, Heather J; Perkins, Elizabeth A; Massey, Oliver T; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Levins, Bruce L Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports Journal Article Journal of Policy and Practice in Intellectual Disabilities, 15 (3), pp. 214-225, 2018. @article{Williamson2018, title = {Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports}, author = {Heather J Williamson and Elizabeth A Perkins and Oliver T Massey and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Bruce L Levins}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12258}, year = {2018}, date = {2018-08-24}, journal = {Journal of Policy and Practice in Intellectual Disabilities}, volume = {15}, number = {3}, pages = {214-225}, abstract = {Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS. |
2022 |
Bosch, Pamela Rogers; Barr, Dawn; Roy, Indrakshi; Fabricant, Maximillian; Mann, Audrey; Mangone, Elizabeth; Karmarkar, Amol; Kumar, Amit Association of Caregiver Availability and Training With Patient Community Discharge After Stroke Journal Article Archives of Rehabilitation Research and Clinical Translation, 100251 , 2022, ISSN: 2590-1095. @article{Bosch2022b, title = {Association of Caregiver Availability and Training With Patient Community Discharge After Stroke}, author = {Pamela Rogers Bosch and Dawn Barr and Indrakshi Roy and Maximillian Fabricant and Audrey Mann and Elizabeth Mangone and Amol Karmarkar and Amit Kumar}, url = {https://doi.org/10.1016/j.arrct.2022.100251}, doi = {10.1016/j.arrct.2022.100251}, issn = {2590-1095}, year = {2022}, date = {2022-12-17}, journal = {Archives of Rehabilitation Research and Clinical Translation}, volume = {100251}, abstract = {The objective of this study was to examine the association between committed caregivers and caregiver training with community discharge from inpatient rehabilitation following a stroke. Design Secondary analysis of data extracted from electronic health records linked with the Uniform Data System for Medical Rehabilitation. Setting Three hospital-based inpatient rehabilitation facilities (IRF) in a major metropolitan area. Participants 1,397 adult patients (mean (SD) age: 69.4 (13.5); 724 males) transferred from an acute care setting to inpatient rehabilitation after an ischemic or hemorrhagic stroke. Intervention None. Main Outcome Measure Community discharge from IRF. Results 82.4% of patients had caregivers, 63.4% of patient caregivers received training at the IRF, and 79.5% had community discharge. After adjusting for age, stroke severity, functional status, and other social risk factors, having a committed caregiver and caregiver training were significantly associated with community discharge (OR=7.80, 95% CI: 5.03 – 12.10 and OR= 4.89, 95% CI: 3.16 – 7.57 respectively). Conclusion Caregivers increase a patient's likelihood of discharge from IRF; the added benefit of caregiver training needs to be further assessed, with essential elements prioritized prior to patients’ IRF discharge.}, keywords = {}, pubstate = {published}, tppubtype = {article} } The objective of this study was to examine the association between committed caregivers and caregiver training with community discharge from inpatient rehabilitation following a stroke. Design Secondary analysis of data extracted from electronic health records linked with the Uniform Data System for Medical Rehabilitation. Setting Three hospital-based inpatient rehabilitation facilities (IRF) in a major metropolitan area. Participants 1,397 adult patients (mean (SD) age: 69.4 (13.5); 724 males) transferred from an acute care setting to inpatient rehabilitation after an ischemic or hemorrhagic stroke. Intervention None. Main Outcome Measure Community discharge from IRF. Results 82.4% of patients had caregivers, 63.4% of patient caregivers received training at the IRF, and 79.5% had community discharge. After adjusting for age, stroke severity, functional status, and other social risk factors, having a committed caregiver and caregiver training were significantly associated with community discharge (OR=7.80, 95% CI: 5.03 – 12.10 and OR= 4.89, 95% CI: 3.16 – 7.57 respectively). Conclusion Caregivers increase a patient's likelihood of discharge from IRF; the added benefit of caregiver training needs to be further assessed, with essential elements prioritized prior to patients’ IRF discharge. |
2018 |
Williamson, Heather J; Perkins, Elizabeth A; Massey, Oliver T; Baldwin, Julie A; Lulinski, Amie; Armstrong, Mary I; Levins, Bruce L Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports Journal Article Journal of Policy and Practice in Intellectual Disabilities, 15 (3), pp. 214-225, 2018. @article{Williamson2018, title = {Family Caregivers as Needed Partners: Recognizing Their Role in Medicaid Managed Long‐Term Services and Supports}, author = {Heather J Williamson and Elizabeth A Perkins and Oliver T Massey and Julie A Baldwin and Amie Lulinski and Mary I Armstrong and Bruce L Levins}, url = {https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12258}, year = {2018}, date = {2018-08-24}, journal = {Journal of Policy and Practice in Intellectual Disabilities}, volume = {15}, number = {3}, pages = {214-225}, abstract = {Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS.}, keywords = {}, pubstate = {published}, tppubtype = {article} } Adults with intellectual and/or developmental disabilities (IDD) in the United States are supported by both formal Medicaid‐funded long‐term services and supports and family caregivers. Lack of alternative housing options and wait lists for long‐term services and supports means the role of the family caregiver is and will continue be critical. Rising long‐term services and supports costs combined with goals to improve care coordination and access to services are driving more states to change the design of their long‐term services and supports systems to a Medicaid‐Managed Long‐Term Services and Supports (MLTSS) approach. Best practices for implementing MLTSS for individuals with IDD include acknowledging the family caregiver role. The current study's aim is to understand how family caregivers and their roles are recognized in MLTSS for adults with IDD in Kansas. Kansas was selected given their unique approach to MLTSS for adults with IDD, referred to as KanCare. In‐depth semi‐structured telephone interviews were completed with 31 stakeholders in Kansas, including statewide/regional representatives (N = 13), service coordination providers (N = 7), and family caregivers (N = 11). Additional family support services were available in KanCare, but families had difficulty accessing them. No formal processes were reported for assessing the needs of family caregivers in KanCare and families found communications with managed care entities challenging. Families reported difficulties with taking on responsibility of managing in‐home supports and there were concerns about being paid to provide care as a guardian. Family caregivers play a critical role in MLTSS, including assisting with care coordination and access to services. However, their role was not formally acknowledged in KanCare. Future research, practice, and policy efforts should focus on promoting family caregiver assessments and identifying best practices for supporting family caregivers in MLTSS. |